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#1 | |||
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Magnate
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I guess my number of MS boards to frequent has been decreased to 2, NeuroTalk and very rarely MSWorld (hey, I gotta keep posting my weight weekly there!).
I got in trouble pointing out a user on another well known 'crack the whip' MS forum was flat out lying about their history of medications and experiences, and should stop fibbing. Was it worth it? Well, I know a few of us here will know who I'm referring to, because we have been watching the progress of this one, and I finally saw more fibbing and said "enough is enough", flew in with the evidence, and now I'm 'Banned'. Was it worth it? Oh hell yes. Because I'm sure enough people saw it. Not only that, now I get to grill the administration over the integrity of their board and how they seem to feel it's ok to embrace users that flat out lie about their histories to newly diagnosed MS'ers. It's honestly disgusting, but I digress. ![]()
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: |
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#2 | |||
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Administrator
Community Support Team
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Hi
I am sorry that you have had a bad experience elsewhere and we certainly hope NeuroTalk will always be a "user friendly" site. We do request tho' that problems from other forums not be carried over here, and we would also request that if members have issues with other members they discuss these things in PM rather than on the boards. In that light, I am therefore going to respectfully request that any continuation of this topic be taken to PM thanks Cheri
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | AfterMyNap (11-08-2008), AZjanie (11-09-2008), dmplaura (11-09-2008), ewizabeth (11-08-2008), FranksAngel (11-09-2008), SallyC (11-08-2008), yeahbut (11-10-2008) |
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#3 | |||
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Magnate
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No problems. Anyone can feel free to contact and you can lock up the thread if you wish
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: |
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#4 | |||
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Elder Member
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Hey Laura hows the
![]() how you been? doing well I hope, thought a hijack would help here, and if gaztastic shows up cool,
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. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
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"Thanks for this!" says: |
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#5 | |||
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Magnate
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Well I messaged you, lol. My mouth's suddenly back to burning in the past 3 days, go figure. NOT SMOKING. Still haven't had a puff or desire to have a puff since quitting.
Anyways... now I have the daunting task of trying to figure out.. is the burning mouth in fact connected to trigeminal neuralgia, and do I have atypical trigeminal neuralgia? My dentist said I had the classic TN... hrm. I just need to find a treatment plan that works. Pain or no pain, I'm going back to work on the 24th. MS isn't going anywhere, Trigeminal Neuralgia isn't going anywhere (least not for now!) and my TMJ (Jaw) is all fired up because I've been chewing gum for the burning mouth! Vicious cycle ![]()
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: |
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#6 | |||
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Senior Member
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Quote:
Ha! It should be Habanero instead of just Tabasco! ![]() Laying on the sauce again, Dimpled One? Hmmm..... I'm thinking you need another set of acronyms. TMJ, TN, MS, NS (non-smoker).
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A Hairy Chicken Is Better Than A Hairy Hand! |
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"Thanks for this!" says: |
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#7 | |||
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Elder
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Quote:
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | Koala77 (11-09-2008) |
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