Problems with hearing?
 

I just wanted to write in and see how many have issues when it comes to hearing?

I have my RSD full body and internal. Before about 6 months ago I had issues with my hearing being way to sensitive to everything and was always telling everyone to be quiet. Well now its going the opposit way and am loosing hearing starting in the right ear and first going in and out now its constant and has moved to the left. Now even my family is starting to tell as the tv and radio is higher and sometimes when I talk I talk louder than I should be. I have horrible pressure in my right ear it feels like I am in an airplane and in about the last 3 months about every 3 days it drains but the scarriest thing is it drains dark red. I told my doc about loosing hearing and he said for my state of RSD its normal but if it gets worse he will send me to a ENT specialist, but I havent yet told him of the draining. Anyone know what this could be, it kind of scares me and my mom as the dark red looks alot like blood which we all no isnt normal.
Anyone else have any of these issues?

Niki

Definitely go see an ENT specialist and don't wait any longer please. What meds are you on for the RSD? I learned the hard way that many of the meds prescribed for RSD have side effects that affect our hearing. Don't just chalk it up to a symptom of RSD as it may very well be something else that needs to be examined seriously?

I wish you well.

MsL

Anything draining out of your ear needs to be examined ASAP. It doesn't sound like anything to do with RSD. It could be an infection of some sort that has gone on too long. Get to the doc before the hearing loss become permanent.

Hugs,

Karen

Thank you both for your help.

The meds I am on is Ketamine infusion every week at 250mg, Demerol, Baclofen, Keppre, meclizine, Prednisone. I am not on much as I have allergies to many drugs and these so far have been the only ones I can take.

Would you think I can last another week or so, my doctor isnt here at the moment he is speaking at the RSD conference in vegas and wont be home until I think Tuesday. My doctor is also one and a half hours away and my mom who drives me isnt home as she is Alaska driving down our truck and horse trailer, its just me and my 16yr. old brother. I might have to be going to the ER today as I am in a very bad flair and my bladder is starting to shut down so I guess I can ask them.

Would an infection go on for this long? I will get to my doctor as soon as I can, I know I probably should have told him sooner I was just afraid of making a big deal and it ends up being nothing.

Thanks again for all the help!

Niki

Hi Niki,
 

I have hearing issues.

When I was growing up my right ear drained all of the time. When I was 19, I had an eardrum replaced. They said that I had ear infections and that's what caused the draining and my right eardrum had rotted out.

I'm 58 now and about 8 years ago I went to an ear specialist in Denver due to my hearing getting worse which was after the RSD. Of course the eardrum hadn't healed right but it was too late to repair due to dead nerves.

Noises got louder for me after the RSD started but I chalk that up to the RSD pain and being so stressed due to the pain not being under control.

They did tell me in Denver that my hearing in my right ear was gone and my left was about 50%. I sure can't afford hearing aids. It's frustrating because people talk to me and I miss out on a lot of interesting stories or should I say gossip. LOL

Do go to an ENT. The draining doesn't sound like it's from RSD. Don't wait for your Dr. to send you, make your own appt.

Ada

Hi, Im not sure how long you haVe had rsd, but if in stage iv your immune system is definitely affected. I have recurrent ear, nose and throat infections. I have double ear infections right now and am taking yet another antibiotic. My hearing remians highly sensitive when my ears are not blocked with infection. However, I had extremely sensitive hearing prior to rsd, it is just worse now and I have no tolerance for any normal volume. take care, cz

I'd follow the advise of going to see an ENT about this. Not everything that you get while having RSD is due to RSD; other things have to be ruled out first. It is really dangerous to just assume that everything just automatically is RSD and to leave it like that (and to just take it and cope with it) without a doctor looking at the current problem first.

DITTO to the advice given from Mslday and Crpsbe.
You should see a ENT dr immediatly,,,drianage of the nature and color is not good,,any inffection in the ear or teeth ,can migrate quickly to the brain, I personally wouldnt wait a week,,,Get into the car,,,although the ER is ok,,,,you need to be seen by an specialist because of all of the secoundary issues,,,,,,,,,prayers for you will be sent,

Ear issue also..
 

I have had a loss of hearing in one of my ears also but at the time, prior to RSD..I was told it was due to having shingles a fews years ago so I have placed it in that catagory and accepted that..One never knows tho so plz. seek advice from your Dr.s... it is so worth your trip there...I understand as RSD is formost on our minds, it hurts!! But rule everything else out first... Good luck and let us know..:rolleyes:

Hi Niki,
If you did not go to the ER today, you need to give your doctor a call and tell him about the drainage & go into have them take a look at your ear. I know you said he was away but is there someone else in the office you can talk to? Sounds like it could be an infection or possibly a ruptured ear drum. The pressure your feeling could be a fluid build up. Don't just chalk that up to RSD.
Hope you get some relief.
hopeful:)

Thank you everyone so much for all the help and suggestions, I will take everything I can get.

I did end up going to the ER yesterday but didnt bring up the hearing thing as they had enough to deal with, with my flair. I waited to long in my flair to go to the ER and my bladder shut down so was more focused on that then my hearing. I have to call my doctor today anyways to talk to him about my bladder so will talk to him about my hearing and see what he can do.

I will get this taken care of as soon as I can, I sure dont want to loose my hearing at 21 just because I didnt tell my doctor.
Thanks again everyone so very much and I will let you know what the doctors say when they find out whats going on.

Niki

Hi. I had this ear pain and pressure so bad. I went to the ENT doctor and they found nothing. Then I went to my neuro who did an MRI of my brain and ear canal which also found nothing. I have severe eye condition and often it feels like the pain and extreme pressure like it will explode is starting from the eye. They were concerned with something pressing or fluids and it turned out nothing. I am not sure if it is from my meds now for the rsd or just time but it has got a lot better. I still have ups and downs but not the daily crying pain. I had to accept that for me there was no dx same with my eye condition where I have been to 11 eye specialist,neuro,etc etc and 50 plus apts. If you don't get answers or relief I would go to a neuro. There is such a mix from the doctors I have dealt with about rsd in these areas said no not in the eyes.I still have heard others have it there and no one can figure out why I have such high pain as blepheritis and dry eye does not cause it this high and that was the dx. Anyhow hang in there and feel better

I agree with Mslday and Crpsbe, Marleen. Also, I agree that even though your doctor is away, he must have someone "on-call" for his patients.

So often RSD patients are told that every ailment, pain, or discomfort is RSD, without any test being ran..just by deduction and the fact that RSD is present in the body.RSD is used as a scapegoat for what the docs can't explain, or fix.

http://i2.tinypic.com/6opjng7.jpg

:grouphug:,

Thanks again to everyone for all your help and suggestions!

Daniella, I am sorry you to had issues with the ears and eyes and that no doctor has found a reason for it. For your eyes did you ever see a neuro-opthomologist? I had very bad problems with my eyes also when my RSD went full body, I too felt as if my eyes were going to come out of my head the pressure and pain was so bad. I ended up seeing a neuro-opthomologist who found in the back of my right eye all the nerves were swollan and I had several hemorrages. He couldnt do much as the damage was already done, it has cleared up a bit as in the pain but every once in awhile it comes back. I understand what you mean with the mix of doctors they all have different reasons and solutions for everything, just for my RSD in the past 2 years I have seen over 98 doctors in 9 states all of different specialties so know what you mean about the doctors.

I will listen to all of you and call my doctor. When it comes to emergancies all his patients have a contact # where we call and leave a message and will be sent to his cell. From there he will contact us no matter the time or place, he does have a doc on call if we need help now and he also has talked with all the ER staff at my local hospital incase I am having problems. I have a really hard time seeing any other doctor unless I am reffered by my doctor as I have been to so many and am tired of ending up with idiots who think I just need to suck it up. My RSD has also gotten a little complicated and my doctor doesnt like any doctor touching me until he speaks with them as I can get worse very easily and fast. I understand what everyone means when things get written off really fast as just RSD when it could be something else, it is the doctor I have now that found a few things I was told was RSD was actually something else which I needed different treatment. I am calling my doctor right after I am done writting this and will leave a message and see what goes on.

Thank you all so much, I appreciate getting so much help!
Pain Free Hugs to All!

Niki

Thanks for your thoughts. I am diagnosticly tested out. I have had basically every test possible for my eyes. All I know is the more they play with them and rx eye meds/drain etc the worse they get. The only thing that may be helping is the oral meds for the leg pain and the climate now.
What happened after the call? You are like me so many doctors and with that comes a mix of thoughts. I too wish they would not just brush things off and look at new conditions as that new. I tell my mom one day I feel I will think something is RSD pain and it won't be and I will have a major issue from letting it go. Just try to stay present though and hopeful.

Hi,
 

I was wondering how many of you are dealing with Fibro. Fibro causes eye problems and hearing problems also. A friend of mine went to the Dr. to get new glasses because she thought her eyesight was getting worse and they weren't. Her Dr. told her it was most likely from the Fibro. Fibro seems to mess with everything about us and cause other problems too.

ada