Yep, its a flare
 

went to the big city hospital for my six month follow up. Dragged out my laundry list of complaints, and was informed that I am indeed in a flare. I was offered IVSM if I wanted it, but since I am so far into the flare I was told it wouldnt make a huge difference in recovery if I said no. I declined. No wonder I am anxious, tense, and itchy. oh, btw, this means my trip in ONE WEEK is now postponed! I am so mad :mad: Now I get to stay home, and have the DH play the "i told you so" card. I was at the exit! I was almost gone! I moved my appointment up so I wouldnt miss out before I went away too.

I just wanna cry. :(

Sorry to hear about the flare and the missed trip. Hang in there!:hug:

:circlelove:(((((((((DEJ)))))))):circlelove:

Sorry you're having to postpone your trip, Dej. Get better soon so you can really enjoy your getaway!

What an absolute cr@p situation. I'm sorry. I know you really needed that trip.
:hissyfit:

How horrible that you're not feeling well and in a flare and that you are missing your trip because of it. (((hugs)))

feel better Dej.:hug:

I had the MS trolls try to ruin things for me before too. They're jealous and trying to make you pay more attention to them.

Last summer, the MS trolls in my optic nerve decided to screw up my vision over the Fourth of July. I'd been planning a weekend trip to Lincoln, NE for about four months, only to have the MS try to screw things up.

I had double vision thru most of June and July. I was still able to go on my trip... Went to a Larry the Cable Guy concert at Memorial Stadium in Lincoln and had to sit in the cheap seats with one eye closed and feeling dizzy most of the time. I was uncomfortable, but Larry the Cable Guy was funny enough that I enjoyed myself.

I had even more fun at the minor league baseball game I went to the next day...even tho I was patching my eye by that point. But, I was only having a vision and vertigo problem, and not having any other weird MS crud bugging me on that trip.

I swear, the MS seems to like to screw up anything that might be mildly enjoyable. Almost like there's a vindictive little creature running around in my brain, flipping switches and trying to make things as difficult as possible on purpose.


Hopefully the MS will settle down and let you go on your trip soon. Sometimes it's just not fair, is it?

)))))))))) SO SORRY DEJ((((((((



Understand how you feel. Since Sept.09 I had to cancel
2 trips. This disease seems to know when to pop out and say (I AM STILL
WITH YOU)!!!! YOU ARE NOT GOING ANYWHERE!!!!!!!


Jappy :mad::mad:

Awww, Dej, :hug::hug:
Sure that you can't still go?

I am thinking same thing... are you sure you have to cancel!!! sometimes the trip might pep you up even if having troubles physically... sorry your in flare... but are you sure it has to ruin the trip?? hugssss,sarah

Sorry to hear about the flare, Dej!!! Hope you can kick it to the curb and feel better soon. take care.

Sorry to hear about your flare, Dej! Hope you can kick it to the curb and get to feeling better soon. Take care. (sorry about the trip~Bummer)

aww thanks guys! :hug:

yeah, I have to cancel. split or double vision isnt going to be helpful when traveling alone. I am having a major skin flare, and feeling wobbly its probably best that I be a big girl, suck it up, and do what needs to be done. I will get my revenge later. For now, I am safe, warm, dry, well fed, comfortable, in a home where I am loved. cant ask for more than that.

Bummer about the trip, Dej~ but hope you can kick that flare to the curb soon. Your'e right, taking care of yourself is numero uno at this point. Feel better and rest.

Eating my own food costs alot less. Sleeping in my own bed, doesnt run me a big bill. not feeling great, and sulking in a hotel room, isnt my idea of a fun trip. once I am back up and shaking, I will hit the road. Thanks for all the well wishes. :grouphug:

Dej,
Just be careful and take it easy. I thought I was in a relapse but it seemed mild compared to some of my usual ones. Vertigo was the new symptom for me. Which didn't last too long.

Then I go Bursitis in my shoulder and neck and head pains. The inflammation took me into an acute relapse and even though I was well into the attack I had to do the IVSM to calm it down to neutral. It helped me so much.

Maybe because I have this disease so long and relapses last 6 to 8 weeks, that that is the pattern for me. Oral don't help when I am in deep do-do.

I am a week+, past finishing the IVSM and I am getting much stronger. I am not weak and wobbly in the legs, and my hands are not numb anymore. Vision is good too. Pain is gone.

It seems like devil juice at the time, but it is worth it to me. I have been real good. No relapses or progression in 18 months. Banner time. :) I usually relapse every 6 months. I just let this one slip through the cracks because I felt so good and it seemed mild.

My point is don't overdo things, rest and take care of yourself. If things change then call the Neuro again. I am sorry to hear that you missed your trip. There will be more opportunities for trips in the future, when you are well.

Just take care of you. :hug:

Sorry to hear about this Dej, take it easy. Bummer about your plans :( :hug:

Stilll praying for your return to feeling human again...:hug:

LOL! I see that my posts DID show up. I didn't mean to answer 3 X's, Dej~ Dumb pc kept telling me my connection was lost and was and running so slow, I thought my posts were lost, too. Oh well, you know the sentiment was there. DUH DM!!!

Do you have holes in your head? :p

AYUP~ AND, I'm only saying it once this time! (grin)

MS trolls ruin everything. Aw Dej:hug:

thought DM was checking if I was paying attention... or to make me feel lost reading three...lol

dej, take care and good luck, look forward to when it clears so you can get that trip!! hugsssss,sarah

IVSM usualy take 50 % of my flair away in 2 days. Rock On

my MS center has a 24/10/14 rule.

You must have the symptom for at least 24 hours straight. no breaks in it.

You have 10 days to start IVSM. After ten days the rate of recovery and the relief of symptoms drops back to equal of those that didnt take IVSM.

you have up to 14 days to interviene with some treatments. be it pills, or iv or what ever. after 14 days, your body is going to be over the hump of inflammation, and or flare, and from 14 days forward, its all about recovery. IVSM wont help the recovery then, nor will oral steroids. you should be seeing an improvement in sx or a recovery start. if not, they will repeat an MRI.

I hate this disease! I really do. it has taken so many things from me. :(

They have protocol, and they follow it. I see that as a positive. It may not help everybody everytime, but it's always better than flying by the seat of their pants, like so many neuros/clinics seem to do.

Rest, relax and recover. All the nonsense you had going on probably didn't help. I hope that keeps calm for you.

:hug:

Sorry to hear. Maybe you could still go and just take it easy.
I'm still very new at this ms thing. If you don't mind me asking, how do they know if you are "too far into a flar?"
Very best wishes to you.
I know how frustrating this is. I was on a cruise last June when ON hit. I said to xxxxx with it had just kept going.

Cordelia

Dej,
when you start into a flare up, are the sxs that noticeable to you?
I am really having difficulty understanding this whole topic.
For instance, my eye hurt when I moved it on Saturday...several times. A stabbing pain underneath it, kind of in the muscle, I guess. Then, later that day, the stabbing went to my upper lip and chin. then back to the eye. Same thing the next day. Then disappeared.
I don't understand how you are supposed to pay attention to the sxs...do you write it all down? Do you keep a daily sxs journal?
I am so confused...really I am:confused:

Anyway, I sure hope you are feeling a bit better, dear:hug:

NO! its not, and it is frustrating to me! I feel like everyone else wakes up, gets out of bed and says "oh, my X hurts, and I am XYZ, I am in a flare!" its not that cut and dry for me. I have vague silly things that lead up to suspcisions. like when watching TV for a longer period of time, I would get a split in my vision, but when I looked away for a min, or did something else it went away. The MS center says a flare is a sx that last 24 hours with NO breaks in the sx....so, I had a break in the sx...its not a flare? or is it?

I have this sense of high anxiety, and panic attacks, but they are not my normal attacks! its weird, its normal for me to have anxiety, but this is a change in what is normal for me. It doesnt last 24 hours, so the books say...no flare. my feet are burning lately. like standing on hot pavement. That shift your feet back and forth kinda burn, but if I sit down, they stop.

Went to the big city hospital and gave them my list of sx. They say "its a big flare!" well....how the heckpie and I supposed to know this? They do reccomend keeping a journal. they do reccomend calling them to discuss it if I feel out of the ordinary.

I dont know, I find this whole disease to be confusing and inconvienent. Can I swap it out please? nothing is "by the book" and what your sx are, may be completely different than mine! You can take interferons and get depressed, and I take them with no sx, oh unless you count the extremely high liver enzymes! not a single sx that led me to believe I was in danger. Nothing fits! nothing is like the books say its supposed to be! What happens to Suzy doesnt happen to me, and half of what happens to Cindy is bizaare in my world. I am confused, with enough cog fog to shut down the airport, and know they want me to keep track?

Im dizzy when I even start to think of this stupid disease.

Best answer. Keep a journal. If its out of the ordinary for you, call your MS center or the nurse from the drug maker that you use. The Shared solution or beta nurses are amazing! full of good answers. Past that, Im lost too. :o

Well I must have caught them on a bad day.

I rang the betaplus nurse the other day to ask why were my side effects getting worse and taking longer to kick in. She asked me when my next neuro appt was to which I replied 'next week'. She told me to
'..get a piece of paper and write down all the problems you're having because you forget things when you walk into a strange room. ..and on that paper, make a LIST... and on the top of that list write down 'side effects getting worse' because that's the most important for you... and ask your doctor if he knows because I've never heard of it before.'

Good job it was a free call that's all I can say :)

It's just that if I think about keeping a journal, then I feel like a freakin' hypochondriac, you know? I'm trying my best to forget about this stupid disease...you know, "Mind is the builder." Or "positive thoughts heal."

So, I try not to think about it...but then, if I try to ignore the sxs, it's just like my golden retriever when he wants to play when I'm reading the paper. Nudge the arm...bring ten toys over and put them on my lap...shake his head...stare at me...growl. "I want attention."
I think my dog is MS in fur...:p can't ignore either, or they'll bug you to death...