Ampyra's Been Released for prescribing
 

http://www.nationalmssociety.org/new....aspx?nid=2586

On the NMSS page today...now who wants to pony up and pay for it?;)

I paid $31.00 for a 30 day supply of SR 4-AP from a compounding pharmacy. Now it would only cost me a co-pay of $20.00 with health insurance paying the rest. Expensive for them, but cheaper for me!!! A shame it didn't help me.

I have been in the Fampridine SR phase III/extended study; now Ampyra. It has helped me with foot drop/walking therefore, hope I will be able to find a way to afford the med as I have a 25% copay :( I now walk with one cane instead of two! My only complaint is it wears off before the 12 hr interval-I would like to take it at about 9 hrs.
Linda

Linda if you can't afford it, try 4-AP SR (if still can get and I bet you can. use a "good" compounder who doesn't have old stock (it loses efficiency). PM me if you need.

Ampyra has a registry similar to Tysabri. I saw the paperwork yesterday when I stopped into my neuro's office. Not sure why. but his take was that it is because of the seizure risk. If anyone does go on it, let us know what that's all about, will you please?

RW, what I learned was that one person in the trial took more than rx and much closer in time - she had a seizure :(
Linda

One adverse reaction made them require a registry? :confused:

If it heals its worth it. I'll try it regardless. Testosterone is $100 for 4 month supply (male) which sure as heck along with protein helped MY strength.

I know ... it's what I heard :confused:

grinning here...now You KNOW I am gonna have to go digging. :p
I haven't paid much attention to Ampyra since I don't need it (yet?)
and I figured- hey, it's 4AP-already a lot known about it, but this has got my curiousity up.

I'll post what I find out.

Beth,
it's been forever!! So sorry to hear you're ailing...have you tried MMJ for the spasms? I haven't, sincie medical MJ hasn't been approved in my state, but my spasms are getting so painful, and the muscle relaxants aren't working as well...I'm tempted to go to MI to get a script from a neuro there hah hah...
hope the ampyra helps you. Please let us know!! And take care!:hug::hug:

Hi Debbie it has been forever hasn't it lol. I went to my MS doc today and we discussed mmj and Ampyra. He wanted me to try the pill first. If that doesn't work he said we would definetely discuss MMJ.

Hopefully it will help. My pain and spasms sometimes get out of control and it's just awful. His concern with the MM is my fatigue is really bad and he's afraid that might make it worse.

I guess we will see huh? One day at a time. Great talking to you. I've missed my NT buds.:D

I hope it helps you at least as much as it has helped me walk (I'm still in the extended study). I do exercise to
the best of my ability and know that helps me, too.
Best wishes,
Linda

RW, I googled Famp/seizures-reported 2 cases

My neuro mentioned it as I said Fampridine? I see him mid April and will likely get the paperwork rolling. Wish you luck.

I filled out a form for this today when I had my checkup with my neuro. He said he'd RX a 30 day supply to see if it helps me energy-wise since I work on my feet. My legs are dragging by the end of the day so maybe this will help. I'll check back when I get it and let you all know how it goes for me.