The Hospital, Doctor, And Therapist List
 

Let's make a list of the names and cities of the CURRENT doctors (including specailty), hospitals, and therapists our children see. That way, if someone is from say Boston and was wondering if anyone sees a neuro in Boston, they can look here and go "OH!" and look up the person.


Let's refrain from being negative thou about the places that are bad. ;) Let's just go with the positive.

Neurology (Atlanta, GA): Dr. Silverboard and Amy Grant at Child Neurology Associates at Scottish Rite (we used to see Dr Cheng who is really good but he has become a lot less available over time).

GI (Atlanta, GA): Dr Patel at GI Care for Kids at Scottish Rite

Peditrician (Peachtree City, GA): Jocelyn Collins

Opthamologist (Newnan, GA): Jackon Giles

Hospital (Atlanta, GA): Born at Northside and spent time in their NICU and Scottish Rite. Scottish Rite is the BEST children's hospital in Atlanta the kids have been on almost every floor and in the TICU and the PICU. They treat the parents really well and are focused on making the kids and the famlies as comfortable as possible through the hospital stays.

Cardiologist (Atlanta, GA): Sibley Heart Center at Scottish Rite (All the docs are good there)

Hematologist (Atanta, GA): Aflac Blood Disorders and Cancer center at Scottish Rite (all the docs are good there as well)

Therapists (Kennesaw, GA): Comprehensive Children's Therapy is GREAT for OT, PT, and SLT. They do specalize in sensory integration. We would have stayed there if we did not move.

Vision: GAPines (All over GA). They have been WONDERFUL with our daughter.

North Carolina

Genetics-

Asheville,NC~
Fullerton Genetics Center/Dr. Ellen Boyd
For our family she has been awesome. We travel about 3 hours to see her. Well worth it. She is willing to think outside of the box.

Neurologist

Charlotte, NC~
Neuroscience and Spine Institute/ Dr. James Parrott
Dr. Boyd recommended Dr. Parrott. He is a good neurologist, he listens to us and takes our concerns seriously. He does not treat just the EEG, which for a kid like Riley is good- it took a long time for her to have an abnormal EEG.

Neurosurgeon

Charlotte, NC
Carolina Neurosurgery and Spine Associates/ Dr. Michael Heafner
Dr. Heafner didn't leave me with a good first impression but since that first meeting he was great. He did Riley VNS and was also very compassionate ans listened to my fears and concerns about the surgery.

Orthopedics

Winston-Salem, NC
Orthopedic Specialist of the Carolinas/ Dr. O'keefe
Dr. O'Keefe is great too. They are NOT seeing any new peds patients though.


ENT

Winston-Salem, NC
Peidmont ENT/ Dr. Maxwell
He was ok, we haven't seen him in years though.

Developmental Pediatrician

Asheville, NC
Olsen Huff Developmental Center/ Dr. Adrian Sandler
Dr. Sandler was awesome.


Hospital perference- Carolinas Medical Center/ Levine Childrens Hospital
Charlotte, NC

Therapist
Winston-Salem, NC
~ Caring Hands~
Melody, PT
Merrilee, OT

Aquatic Therapy - Sticht Center/ Part of Wake Forest University Medical Center - All of the Rec. Therapist have been great with Riley.

Almost forgot- AFO's
Winston-Salem, NC~ Level Four / Jim Butts
We have been at one point or another to all of the AFO "makers" in town and for kids they are by far the best. The color and pattern choices are much better than anyone else- here they also order and bill your insurance for 6 pair of AFO sox and a paid of shoes.

If you want Cascade AFO's you have to go to -Advanced Orthotics- All the guys there are nice too. But you don't want the AFO's they make on site.

Feel free to contact me for additional information on any of these Medical Professionals.

Docs to see
GI, KUMC - Paul Hyman
GP - David Dobratz
ENT - Richard Price
Ortho - Danesh Gupta
Opthalmalogist - Trudi Grin
Physio, CMH - Richard Rinaldi
Neuro - NO body in KC
Pharmacy - Starks

Docs to AVOID
Children's Mercy Hospital
Anyone from the Neurological or Genetics Clinic

Doctors: All from Cardinal Glennon in St. Louis, MO

Neurology: Dr. Thomas Geller
GI: Dr. Thomas Foy, Dr. William Kane
Opthamology: Dr. Oscar Cruz
Orthopedic Surgeon: Dr. Elizabeth Engel
Physiatrist: Dr. Adrienne Tilbor


OT, PT, Speech and Developmental Therapy provided by the Special Learning Center, Jefferson City, MO
Pool Therapy by Capital Region Medical Center, Jefferson City, MO

Children's Hospital of WI - Genetics
Pulmonary
Adult Congenital Cardiology
Eye
Froedert Memorial - NeuroSurgery

U of MN Fairview Children's Hospital - Neurology
NeuroPsychology

Forgot to include that these Docs are in the Kansas City, MO / KS area.

So. California

Orthopediest - Dr. Gary Phipps (UCI in Orange)
Dr. Hank Chambers (Rady Children's Hospital)

Neurology - Dr. Nespeca (Rady Children's Hospital)

Pulmonology - Dr. Pian (Rady Children's Hospital)

Specialty Dentist - Dr. Davis (Encinitas)

Gastrointerologist - Dr. Jeanie Whang (Rady Children's Hospital)

ENT - Dr. Pransky (Rady Children's Hospital)

Richmond, VA

ENT: Dr. David Cross - Absolutely wonderful doctor!
Ped: Dr. Carol Willims- Hanover Pediatrics
Psych: Dr. Custalti- Children's Hospital

Illinois & Ohio
 

ILLINOIS - Chicagoland

Neurosurgeon, Dr. Tadanori Tomita, Children’s Memorial
Orthopaedic Surgeon, Dr. Erik King, Children’s Memorial
Urologist, Dr. William Kaplan, Children’s Memorial
Cardiologist, Dr. David Thoele, Lutheran General
Geneticist, Dr. Debra Rita, Lutheran General
Orthopaedic Surgeon, Dr. Albert Knuth, Lutheran General
Cardiologist, Dr. Ira Dubrow, Lutheran General
General Surgeon, Dr. Deborah Loeff, Lutheran General
Nephrologist, Dr. Richard Kaplan, Lutheran General
Neurosurgeon, Dr. John Ruge, Lutheran General
Physical Therapist, Pati Nutebar, Lutheran General
Pediatrician, Dr. Michelle Roig, Pediatric Associates of Barrington
Gastroenterologist, Dr. Stefano Guandalini, University of Chicago
Geneticist, Dr. Darrel Wagoner, University of Chicago
Nephrologist, Dr. Christopher Clardy, University of Chicago
Neurosurgeon, Dr. David Frim, University of Chicago
Orthopaedic Surgeon\, Dr. Christopher Sullivan, University of Chicago
Urologist, Dr. Mohan Gundeti, University of Chicago


OHIO - Cincinnati

Colorectal Surgeon, Dr. Alberto Pena, Cincinnati Children’s
Geneticist/Researcher, Dr. Michael Bates, Cincinnati Children’s
Neurosurgeon, Dr. Francesco Mangano, Cincinnati Children’s
Orthopaedic Surgeon, Dr. Charles Mehlman, Cincinnati Children’s
Orthopaedic Surgeon, Dr. Peter Sturm, Cincinnati Children’s
Interventive Radiologist, Dr. Neil Johnson, Cincinnati Children’s
Urologist, Dr. Shumyle Alam, Cincinnati Children’s

Atlanta, Georgia
 

Daniel Saade (Peditrician) 678.581.5729
3707 Largent Way, Marietta, GA 30064

Sonya George Bussey (Developmental Peditrician) 678-560-3999
3535 Roswell Road, Ste 44, Marietta, GA 30062

Cary Sauer (GI Doctor) 404.527.3224
2015 Upper Gate Drive, Atlanta, GA 30062

Robin Rosenthal (Psychologist) 404.653.0466
340 Blvd NE, Ste 345, Atlanta, GA 30312

Dynamic Therapy (Speech, OT) 770.974.2424
3105 Creek Side Village, Ste 603, Kennesaw, GA 30144

In northern Alabama, we have been able to find only one neurologist in the area who will see children-

David Longmire, Russellville, AL