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-   -   Internal Involvement & Urologist Dilemma (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/196770-internal-involvement-urologist-dilemma.html)

Vrae 11-06-2013 02:06 PM

Internal Involvement & Urologist Dilemma
 
So my OBGYN has suggested that I go see a Urologist after telling him about the spasms in my bladder. I'm just wonder if anyone else has traveled this path and if this is worth my time.

It doesn't spasm everyday, and I already take muscle relaxers, so what more is there to do? I know I have a prolapsed bladder, but so do lots of women that have had three children, and I'm not willing to do a mesh, so it's hard for me to understand how this doc can help me. It is entirely possible that I am overlooking something here.

Any advice is welcomed. Thanks in advance!!

Nanc 11-06-2013 02:29 PM

Hi Vrae! Sorry you are having issues with your bladder. I started having bladder issues and pain. My doctor sent me to a urogynocologist. Turns out I have interstitial cystitis and pelvic floor dysfunction. So for me, yes it was worth the visit.

Good luck!
Nanc
:hug:

Vrae 11-06-2013 04:29 PM

Quote:

Originally Posted by Nanc (Post 1027259)
Hi Vrae! Sorry you are having issues with your bladder. I started having bladder issues and pain. My doctor sent me to a urogynocologist. Turns out I have interstitial cystitis and pelvic floor dysfunction. So for me, yes it was worth the visit.

Good luck!
Nanc
:hug:


Hey Nanc, thanks so much! I have an ultrasound scheduled and I guess I will go ahead and schedule the urologist too. thanks again and I hope you're feeling better than you had been in recent days! Take care hon.

Nanc 11-06-2013 04:36 PM

Quote:

Originally Posted by Vrae (Post 1027285)
Hey Nanc, thanks so much! I have an ultrasound scheduled and I guess I will go ahead and schedule the urologist too. thanks again and I hope you're feeling better than you had been in recent days! Take care hon.

I think it is a good idea for you to make that appointment, it is better to know than wonder. I had a slew of tests and will have a procedure done the week of Thanksgiving. Good luck with this. I hope you can get some answers.

And thanks for the well wishes, still not doing so well. It has been a super rough ride lately. :hug:

Vrae 11-06-2013 04:48 PM

Quote:

Originally Posted by Nanc (Post 1027287)
I think it is a good idea for you to make that appointment, it is better to know than wonder. I had a slew of tests and will have a procedure done the week of Thanksgiving. Good luck with this. I hope you can get some answers.

And thanks for the well wishes, still not doing so well. It has been a super rough ride lately. :hug:


So sorry to hear that Nanc! Gosh, I hear ya though. Not sure I could buy a break right now. I hope all goes well with your procedure! Keep me / us posted. :hug:

SloRian 11-06-2013 07:44 PM

Quote:

Originally Posted by Vrae (Post 1027254)
So my OBGYN has suggested that I go see a Urologist after telling him about the spasms in my bladder. I'm just wonder if anyone else has traveled this path and if this is worth my time.

It doesn't spasm everyday, and I already take muscle relaxers, so what more is there to do? I know I have a prolapsed bladder, but so do lots of women that have had three children, and I'm not willing to do a mesh, so it's hard for me to understand how this doc can help me. It is entirely possible that I am overlooking something here.

Any advice is welcomed. Thanks in advance!!

I've had three kids, and things are prolapsing all over the place! :eek: I don't have bladder issues, but because we can be frank here and it was such a huge help to me, I'll pass on something that my mom passed on to me that has been an immense help :

(yucky medical details warning!)

My mom and I both sometimes have problems passing a bowel movement, because sometimes the poop prolapsed down into the vagina. I thought that it was merely constipation sometimes, but my mom passed on the little trick and it worked like a charm; I hadn't realized that it was hard because the poop had moved down and away from the opening. What you do is sit on the toilet, lean forward and insert your thumb into your vagina and gently push the poop up back into place, all nicely lined up and headed for the exit and a watery grave. Sometimes it has to go just a TINY bit backwards if it's stuck in a pocket.

I don't have to use this often, but it's a real lifesaver when I need it. I used to just strain and strain and not realize that the poop had dropped down into a little pocket and couldn't go anywhere.

SloRian 11-06-2013 07:47 PM

I'm sorry to hear about the bladder issues with you ladies :( Here's hoping and praying that you can find some good solid fixes. Please keep us updated :)

RSD ME 11-06-2013 08:36 PM

Hi Vrae, I don't know if what I have is the same thing. I have cramping and sharp pains in my stomach and am going to see an endocronologist (sp?) next week to see what it is. I think it's my gallstones, but have had several urinary tract infections since my oopherectomy and hysterectomy so I don't know if my bladder has something to do with this constant pain. I may need to have an endoscopy done, and am going to check with her about this intestinal cystitis that Nanc has. I'm think my rsd has attacked my surgical sites on my stomach because they hurt constantly. Maybe seeing an endo specialist too may help you find out what's wrong. I hope you feel better soon. From your friend RSD RENEE.

Vrae 11-07-2013 04:07 AM

Quote:

Originally Posted by SloRian (Post 1027316)
I've had three kids, and things are prolapsing all over the place! :eek:

LMAO, ain't it the truth? :rolleyes:

SloRian 11-10-2013 01:05 AM

The one thing that isn't prolapsing anymore is my boobs :D Before having kids, I was a 32-D, and I got bigger with each kid and never went back down, so I was like a 34-DDDD after my last kid. I qualified for a medically-indicated and fully-covered breast reduction because I was so huge (you get back and neck and skin issues), and it was one of the best things I've ever done. When the doctor walked in to the room to see if I qualified, he said "You're not that big,", then I opened up my gown and his jaw literally fell open as he stared at me, then he immediately approved me for the reduction :D They took over 3 pounds of boobage out :eek: and it was wonderful!!!!!! It was over 10 years ago, and I'm still grateful every day when I put my bra on. So I have nice perky boobs because while they're in there, they do a lift :D

Vrae 11-10-2013 01:58 PM

Quote:

Originally Posted by SloRian (Post 1028061)
The one thing that isn't prolapsing anymore is my boobs :D

Are we kin? lol ... Same thing with me except I never did the reduction. I hear women pay thousands for these and I just can't get my head wrapped around that. Did you have your reduction before or after CRPS?

SloRian 11-11-2013 11:13 PM

Quote:

Originally Posted by Vrae (Post 1028154)
Are we kin? lol ... Same thing with me except I never did the reduction. I hear women pay thousands for these and I just can't get my head wrapped around that. Did you have your reduction before or after CRPS?

Yes, a reduction is far more complex than implants. I had thousands of stitches! But he did an amazing job, and I'm SO grateful (and it was completely free for me because I was so big that it gave me other medical issues).

I had the reduction before the CRPS - I think the reduction was about 12 years ago. I got CRPS after foot surgery about 4 years ago. However, I was incredibly lucky in that I only had it for several months before I went into spontaneous remission when I tore my shoulder ligaments. It was full-on CRPS in the foot, though, complete with discoloration, shininess, temperature changes, less hair growth, anything touching the skin was horrible, and of course crushing pain (A penny fell on my foot once from the bathroom counter, and I literally collapsed on the floor in the fetal position from the pain). I was set to get my first spinal block when the doctor retired, then before I was set up with the next doctor, I tore my shoulder, and the RSD just went away.

My main problems now are CFS and fibromyalgia. The CFS is another invisible disease that is absolutely devastating to your life. Even going down the block to get the mail is like an expedition to Mt. Everest, and I can only do it on good days. And people just laugh at you when you try to explain the tiredness - they say that they get tired, too. They just don't get it - it's like the worst case of the flu you've ever had, but it's every day of your life. It's like starting the day with only a hundredth of the fuel that everyone else gets, so you have to sit whenever you can or lean if you can't sit, and lie down for hours at a time because you literally can't walk. But at least I'm stable. Then my daughter got CRPS last year, and it was advancing SO fast, and that's when I finally decided to join a few boards and stay in touch with what's going on and be around people that understand.

I suppose that I could be on the caregivers' board, or a CFS/fibro board, but I really don't have time for all of the boards that I could be on, and RSD is by far the most important in our life because of how it can spread so quickly and be so, so terrible, so I decided to stay here. I want to stay on top of new treatment developments, for one thing. Plus I did have RSD myself, so I understand what's going on far more than most people, and I deal with daily pain (but typically only in the 4 to 5 range) and a devastating disease, so I just feel at home here. I hope you all don't mind ...

Vrae 11-12-2013 12:17 AM

Quote:

Originally Posted by SloRian (Post 1028499)
Yes, a reduction is far more complex than implants. I had thousands of stitches! But he did an amazing job, and I'm SO grateful (and it was completely free for me because I was so big that it gave me other medical issues).

I had the reduction before the CRPS - I think the reduction was about 12 years ago. I got CRPS after foot surgery about 4 years ago. However, I was incredibly lucky in that I only had it for several months before I went into spontaneous remission when I tore my shoulder ligaments. It was full-on CRPS in the foot, though, complete with discoloration, shininess, temperature changes, less hair growth, anything touching the skin was horrible, and of course crushing pain (A penny fell on my foot once from the bathroom counter, and I literally collapsed on the floor in the fetal position from the pain). I was set to get my first spinal block when the doctor retired, then before I was set up with the next doctor, I tore my shoulder, and the RSD just went away.

My main problems now are CFS and fibromyalgia. The CFS is another invisible disease that is absolutely devastating to your life. Even going down the block to get the mail is like an expedition to Mt. Everest, and I can only do it on good days. And people just laugh at you when you try to explain the tiredness - they say that they get tired, too. They just don't get it - it's like the worst case of the flu you've ever had, but it's every day of your life. It's like starting the day with only a hundredth of the fuel that everyone else gets, so you have to sit whenever you can or lean if you can't sit, and lie down for hours at a time because you literally can't walk. But at least I'm stable. Then my daughter got CRPS last year, and it was advancing SO fast, and that's when I finally decided to join a few boards and stay in touch with what's going on and be around people that understand.

I suppose that I could be on the caregivers' board, or a CFS/fibro board, but I really don't have time for all of the boards that I could be on, and RSD is by far the most important in our life because of how it can spread so quickly and be so, so terrible, so I decided to stay here. I want to stay on top of new treatment developments, for one thing. Plus I did have RSD myself, so I understand what's going on far more than most people, and I deal with daily pain (but typically only in the 4 to 5 range) and a devastating disease, so I just feel at home here. I hope you all don't mind ...

Mind?! No way! I'm glad you're here with us! I am so sorry to hear about the other conditions you are wrestling with though. But wow! Remission from CRPS, that would be a dream come true!

I need a reduction but am scared now with CRPS all over me. :(

SloRian 11-13-2013 07:13 PM

Yes, I don't think I would risk it if I were you :( I'm so glad I was able to get it, and I sure wish you could, too. I love being able to get my bras at regular stores now instead of those specialty stores .... :eek:

moosey2me 11-14-2013 10:58 AM

In our thoughts and prayers..Good Luck


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