Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 11-06-2013, 02:06 PM #1
Vrae's Avatar
Vrae Vrae is offline
Member
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Question Internal Involvement & Urologist Dilemma

So my OBGYN has suggested that I go see a Urologist after telling him about the spasms in my bladder. I'm just wonder if anyone else has traveled this path and if this is worth my time.

It doesn't spasm everyday, and I already take muscle relaxers, so what more is there to do? I know I have a prolapsed bladder, but so do lots of women that have had three children, and I'm not willing to do a mesh, so it's hard for me to understand how this doc can help me. It is entirely possible that I am overlooking something here.

Any advice is welcomed. Thanks in advance!!
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
Vrae is offline   Reply With QuoteReply With Quote

advertisement
Old 11-06-2013, 02:29 PM #2
Nanc's Avatar
Nanc Nanc is offline
Member
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Nanc Nanc is offline
Member
Nanc's Avatar
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Default

Hi Vrae! Sorry you are having issues with your bladder. I started having bladder issues and pain. My doctor sent me to a urogynocologist. Turns out I have interstitial cystitis and pelvic floor dysfunction. So for me, yes it was worth the visit.

Good luck!
Nanc
Nanc is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Vrae (11-06-2013)
Old 11-06-2013, 04:29 PM #3
Vrae's Avatar
Vrae Vrae is offline
Member
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Default

Quote:
Originally Posted by Nanc View Post
Hi Vrae! Sorry you are having issues with your bladder. I started having bladder issues and pain. My doctor sent me to a urogynocologist. Turns out I have interstitial cystitis and pelvic floor dysfunction. So for me, yes it was worth the visit.

Good luck!
Nanc

Hey Nanc, thanks so much! I have an ultrasound scheduled and I guess I will go ahead and schedule the urologist too. thanks again and I hope you're feeling better than you had been in recent days! Take care hon.
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
Vrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Nanc (11-06-2013)
Old 11-06-2013, 04:36 PM #4
Nanc's Avatar
Nanc Nanc is offline
Member
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Nanc Nanc is offline
Member
Nanc's Avatar
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Default

Quote:
Originally Posted by Vrae View Post
Hey Nanc, thanks so much! I have an ultrasound scheduled and I guess I will go ahead and schedule the urologist too. thanks again and I hope you're feeling better than you had been in recent days! Take care hon.
I think it is a good idea for you to make that appointment, it is better to know than wonder. I had a slew of tests and will have a procedure done the week of Thanksgiving. Good luck with this. I hope you can get some answers.

And thanks for the well wishes, still not doing so well. It has been a super rough ride lately.
Nanc is offline   Reply With QuoteReply With Quote
Old 11-06-2013, 04:48 PM #5
Vrae's Avatar
Vrae Vrae is offline
Member
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Default

Quote:
Originally Posted by Nanc View Post
I think it is a good idea for you to make that appointment, it is better to know than wonder. I had a slew of tests and will have a procedure done the week of Thanksgiving. Good luck with this. I hope you can get some answers.

And thanks for the well wishes, still not doing so well. It has been a super rough ride lately.

So sorry to hear that Nanc! Gosh, I hear ya though. Not sure I could buy a break right now. I hope all goes well with your procedure! Keep me / us posted.
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
Vrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Nanc (11-06-2013)
Old 11-06-2013, 07:44 PM #6
SloRian's Avatar
SloRian SloRian is offline
Member
 
Join Date: Apr 2013
Location: Phoenix, AZ
Posts: 212
10 yr Member
SloRian SloRian is offline
Member
SloRian's Avatar
 
Join Date: Apr 2013
Location: Phoenix, AZ
Posts: 212
10 yr Member
Default

Quote:
Originally Posted by Vrae View Post
So my OBGYN has suggested that I go see a Urologist after telling him about the spasms in my bladder. I'm just wonder if anyone else has traveled this path and if this is worth my time.

It doesn't spasm everyday, and I already take muscle relaxers, so what more is there to do? I know I have a prolapsed bladder, but so do lots of women that have had three children, and I'm not willing to do a mesh, so it's hard for me to understand how this doc can help me. It is entirely possible that I am overlooking something here.

Any advice is welcomed. Thanks in advance!!
I've had three kids, and things are prolapsing all over the place! I don't have bladder issues, but because we can be frank here and it was such a huge help to me, I'll pass on something that my mom passed on to me that has been an immense help :

(yucky medical details warning!)

My mom and I both sometimes have problems passing a bowel movement, because sometimes the poop prolapsed down into the vagina. I thought that it was merely constipation sometimes, but my mom passed on the little trick and it worked like a charm; I hadn't realized that it was hard because the poop had moved down and away from the opening. What you do is sit on the toilet, lean forward and insert your thumb into your vagina and gently push the poop up back into place, all nicely lined up and headed for the exit and a watery grave. Sometimes it has to go just a TINY bit backwards if it's stuck in a pocket.

I don't have to use this often, but it's a real lifesaver when I need it. I used to just strain and strain and not realize that the poop had dropped down into a little pocket and couldn't go anywhere.
SloRian is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Vrae (11-07-2013)
Old 11-06-2013, 07:47 PM #7
SloRian's Avatar
SloRian SloRian is offline
Member
 
Join Date: Apr 2013
Location: Phoenix, AZ
Posts: 212
10 yr Member
SloRian SloRian is offline
Member
SloRian's Avatar
 
Join Date: Apr 2013
Location: Phoenix, AZ
Posts: 212
10 yr Member
Default

I'm sorry to hear about the bladder issues with you ladies Here's hoping and praying that you can find some good solid fixes. Please keep us updated
SloRian is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Nanc (11-06-2013), Vrae (11-07-2013)
Old 11-06-2013, 08:36 PM #8
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

Hi Vrae, I don't know if what I have is the same thing. I have cramping and sharp pains in my stomach and am going to see an endocronologist (sp?) next week to see what it is. I think it's my gallstones, but have had several urinary tract infections since my oopherectomy and hysterectomy so I don't know if my bladder has something to do with this constant pain. I may need to have an endoscopy done, and am going to check with her about this intestinal cystitis that Nanc has. I'm think my rsd has attacked my surgical sites on my stomach because they hurt constantly. Maybe seeing an endo specialist too may help you find out what's wrong. I hope you feel better soon. From your friend RSD RENEE.
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Vrae (11-07-2013)
Old 11-07-2013, 04:07 AM #9
Vrae's Avatar
Vrae Vrae is offline
Member
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Default

Quote:
Originally Posted by SloRian View Post
I've had three kids, and things are prolapsing all over the place!
LMAO, ain't it the truth?
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
Vrae is offline   Reply With QuoteReply With Quote
Old 11-10-2013, 01:05 AM #10
SloRian's Avatar
SloRian SloRian is offline
Member
 
Join Date: Apr 2013
Location: Phoenix, AZ
Posts: 212
10 yr Member
SloRian SloRian is offline
Member
SloRian's Avatar
 
Join Date: Apr 2013
Location: Phoenix, AZ
Posts: 212
10 yr Member
Default

The one thing that isn't prolapsing anymore is my boobs Before having kids, I was a 32-D, and I got bigger with each kid and never went back down, so I was like a 34-DDDD after my last kid. I qualified for a medically-indicated and fully-covered breast reduction because I was so huge (you get back and neck and skin issues), and it was one of the best things I've ever done. When the doctor walked in to the room to see if I qualified, he said "You're not that big,", then I opened up my gown and his jaw literally fell open as he stared at me, then he immediately approved me for the reduction They took over 3 pounds of boobage out and it was wonderful!!!!!! It was over 10 years ago, and I'm still grateful every day when I put my bra on. So I have nice perky boobs because while they're in there, they do a lift
SloRian is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Vrae (11-10-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
cerebellar involvement w/ALS? color ALS 0 11-06-2009 03:07 PM
Questions about seeing a Urologist... jowen214 Multiple Sclerosis 9 07-23-2008 08:18 PM
Jim's new urologist SandyC The Stumble Inn 36 06-20-2008 10:27 PM
Organ involvement? Sandel Reflex Sympathetic Dystrophy (RSD and CRPS) 10 07-28-2007 03:49 AM


All times are GMT -5. The time now is 11:22 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.