left side weakness
 

Is one side of your body weaker than the other? When I goggled it then it came up MS? Now one of my doctors thought that I may have MS in the past but did not show up on CT scan. Both symptoms of MS and Mg are similar in a way because MS can cause muscle pain. The only thing that really makes me think mg is because of the fact that I completely lost my breath a couple of times. However when I take Gabapentin, it helps me.it doesn't completely take my symptoms away. I quit taking it for a couple of days because it does make me retain water somewhat but when I came off of it, then I was in some pain. So I started back yesterday and the pain started easing. My MD had prescribed it for me. Then when I got put in the hospital, the did not give it to me the next day. Then that afternoon they did not give it to me and I was in major pain so I reached in my pocketbook and took one and my muscles started easing in a bit. last night my muscle felt like that they had me in a death grip and my mouth was feeling like it was locking up very painful and tongue was weak and I took the meds and it eased off.

Have you posted on the MS forum? Those folks are great about helping make sense of MS type symptoms and about CT scans and other MS diagnostic stuff. The level of pain and spasticity you post about seems like it could be more than is typical with MG. Of course symptoms can get "lost in the translation" from your body to the computer screen.

No I haven't but I am on another site with MS. My MD and eye doctor first though MS. The neurologist says MG. When I go to new neuro, he will most likely after doing blood work will send me for spinal tap first to rule out MS. I do not know. I wish that I had nothing but I know that it is something and I just want to be on the right meds. Thanks for your reply

Yes, you are in a tough spot. Hope you find an answer soon. I also had the "MS/MG" terms tossed around, depending on what doctor I was seeing. It was a scary time!

I have MS but have noticed major left side weakness lately. I just had surgery (non MS stuff) and thought that might be the reason. MS and surgery are not a good combo. :rolleyes: I am going to ask my Neuro what he thinks.

I was tested for MG when they were trying to figure out what I had and that came back negative. But they did diagnose me with MS. I think the two diseases are very similar.

Then you know what I am going through..it is hard situation..

Yes they are. So what tests came back positive for MS and negative for MG. If you don't mind answering

I was diagnosed with MG by an abnormal sfemg. My left side is very much weaker than the right, except for my face, where my right eye and right side drops much worse than my left. It is not uncommon for MG symptoms to be worse on one side, but still have symptoms on both side.

I experience pain and stiffness with my MG, but not spasticity.

I am certain I have MG because I respond so well to mestinon. Have you been prescribed mestinon?

kathie

No because I have to have more test to try and figure out what it is..Thank you for your response.

Some neurologist try mestinon on suspected MGers to see if they respond. I was started on mestinon several months before the diagnostic tests.

kathie

They try it before which test and if it works then what?

I have MG and my weakness is predominantly right-sided. My eye and facial droop is very one sided - although if I have really overdone it the other side will show mild weakness....but, by that time the right is so bad it only shows in pictures etc!! My arms and legs seem evenly weak but when my legs are bad I tend to limp a little compensating for the right side - so it seems I am weaker there too!

Good luck with getting to the bottom of this, limbo is not a nice place to be and I really hope you get some answers (and medication) soon. Let us know how you get on :) x

I know they did a test where they put some sticky glue like goop on my head and attached some sort of electrodes. I had to sit in a chair while they did all kinds of testing. I just remember the nurse telling me that I didn't have MG.

I had an MRI with contrast and that's what the Neuro based his dx on. I know they did extensive blood tests but I'm thinking that was for Lyme and Lupus.

I have progressed alot since 2005 when I was dx. But I think I've had MS for alot longer than just since '05. That was just when I finally got an answer to all the strange sx I'd had for many years.

My MRI showed nothing. So I do not know. I finally got a call back about my insurance and woman told ut if they me to hold for the woman that I was suppose to talk to and she gave me number to call back if we got disconnected and we did get disconnected and when I tried back all I got was answering machine but if they did not want to talk to someone on a Friday, why did they call me in first place...ugh..Had to vent a little..

I have similar problems with classic MG symptoms with gait and balance issues. I also have small fiber neuropathy ( leg pain and unusual sensation) and Neurotin has been a life saver for me in regards to pain. My right side is quite weaker including my face (left side of face is normal) and I will be starting Mestinon this week after an eye exam. I think I also have spasticity of the right leg. My right leg feels like it wooden. I feel like my leg is prosthetic and wooden especially when I walk and try to lift it up in PT. Yes all of my readings within the past few days points to MS as well. My MRI without constrast (allergic to constrast) showed white matter and vascular changes (no stroke)and just posted in MS forum also since I'm new here. I will keep you posted with any changes and I hope you will update us as well. Something is wrong and MG normally does not cause this. My walking is almost stroke like.