Is one side of your body weaker than the other? When I goggled it then it came up MS? Now one of my doctors thought that I may have MS in the past but did not show up on CT scan. Both symptoms of MS and Mg are similar in a way because MS can cause muscle pain. The only thing that really makes me think mg is because of the fact that I completely lost my breath a couple of times. However when I take Gabapentin, it helps me.it doesn't completely take my symptoms away. I quit taking it for a couple of days because it does make me retain water somewhat but when I came off of it, then I was in some pain. So I started back yesterday and the pain started easing. My MD had prescribed it for me. Then when I got put in the hospital, the did not give it to me the next day. Then that afternoon they did not give it to me and I was in major pain so I reached in my pocketbook and took one and my muscles started easing in a bit. last night my muscle felt like that they had me in a death grip and my mouth was feeling like it was locking up very painful and tongue was weak and I took the meds and it eased off.

Have you posted on the MS forum? Those folks are great about helping make sense of MS type symptoms and about CT scans and other MS diagnostic stuff. The level of pain and spasticity you post about seems like it could be more than is typical with MG. Of course symptoms can get "lost in the translation" from your body to the computer screen.

No I haven't but I am on another site with MS. My MD and eye doctor first though MS. The neurologist says MG. When I go to new neuro, he will most likely after doing blood work will send me for spinal tap first to rule out MS. I do not know. I wish that I had nothing but I know that it is something and I just want to be on the right meds. Thanks for your reply

Yes, you are in a tough spot. Hope you find an answer soon. I also had the "MS/MG" terms tossed around, depending on what doctor I was seeing. It was a scary time!

I have MS but have noticed major left side weakness lately. I just had surgery (non MS stuff) and thought that might be the reason. MS and surgery are not a good combo. I am going to ask my Neuro what he thinks.

I was tested for MG when they were trying to figure out what I had and that came back negative. But they did diagnose me with MS. I think the two diseases are very similar.

Then you know what I am going through..it is hard situation..

Yes they are. So what tests came back positive for MS and negative for MG. If you don't mind answering

I was diagnosed with MG by an abnormal sfemg. My left side is very much weaker than the right, except for my face, where my right eye and right side drops much worse than my left. It is not uncommon for MG symptoms to be worse on one side, but still have symptoms on both side.

I experience pain and stiffness with my MG, but not spasticity.

I am certain I have MG because I respond so well to mestinon. Have you been prescribed mestinon?

kathie

No because I have to have more test to try and figure out what it is..Thank you for your response.

Some neurologist try mestinon on suspected MGers to see if they respond. I was started on mestinon several months before the diagnostic tests.

kathie