New to this site...
 

Hi everyone I'm new to this site and just looking to talk to people that understand me. I've had RSD for about 6 months now and it's been the worst 6 months of my life. I ended up doing a outpatient mental health program because it was all just to much. I got hurt at work which is what caused the RSD and workers comp has been horrible. I'm getting ready to go to Cleveland Clinic at the end of this month for more help. My doctor is referring me there to do the program. I have RSD in my right hand, arm, both shoulders and lower back. Just looking for some new people to talk to. Hope everyone is staying warm.

Katie

Welcome! :Wave-Hello:

I'm sorry you are dealing with this. Fortunately you are in the beginning stages which are the most likely for remission.

It's nice to have a place to come where everyone understands what you are going through.

Sometimes I do more reading than posting.

Welcome to all
 

Read as much as you can.I have learned a lot too.I have had RSD for 4 years.It really sucks.We have to keep fighting for a cure.Take care,wish you all the best..remember no ice,heat yes.:grouphug:

Hi Katie! Welcome to NT. This is a great place for support and info. So sorry you have to deal with this horrible monster. Fbodgrl is right, your best chance of remission is in the early stages, so it is great you are getting treatment now. Hope it works out for you at Cleveland Clinic.

Welcome Katie,
You found a great place to vent, get info or just visit...

Hi Katie. I'm sorry you have to be here but welcome. I have had CRPS for just over a year now. I have found a lot of useful information here and I have also found so many kind and supportive people.

We are all different and we have our own unique experiences with CRPS but at the same time we understand each other's experiences in a way that people with CRPS just can't. I find it really comforting to have this group of people who just get it without me having to explain. I hope you find the same help, support and comfort here.

Kim

Welcome Katie
 

We all hope you get better soon ,unfortunately we battle the same demon and we do understand each other,I had crps for 2 years now not easy also wc related that makes the battle harder but get ready for the fight of your life, we all deal with stuff in different ways, is true, and we all at the end suffer the same condition,good luck don't give up and ask as many questions you can don't ignore any changes in your body, your body talks and tells you what wrong, don't rush yourself to get better too soon,will take time sometimes but just be positive,like we all you will had good days and bad days, be patient ,strong and we are here for you,blessings to all ,
:grouphug: From Jesika :)

Hi Katie - welcome! Sorry you are suffering. Read as much as you can and become an educated advocate for yourself. In my experince, most doctors, nurses and physical therapists know little or nothing about CRPS . You have to arm yourself with reliable current information. Be well - Lottie

Thanks everyone...I'm only 27 and I feel like I'm 100. Some days I don't want to even get out of bed and unfortunately the only thing that gets me up is to get to my pain meds. They by no means take it all away but sometimes they do make it to where I can stand to be awake. WC is a nightmare...I hate them, and I don't use hate very often but I do HATE them. They've made this all 10x harder and the WC doctor pretty much said my pain isn't real...that I'm faking. Why would I fake this??? How could anyone fake this pain??? I would LOVE to go back to work, I loved my job as a welder, it was my passion. I had no clue what RSD even was when I was diagnosed and trust me just like everyone else I'd rather work that have this crap. I take that back I hate 2 things...RSD and WC.

Yep! WC can be a nightmare for sure.
Do you have an RSD lawyer?
If you got someone fighting for you WC is a little easier to deal with.
I lucked out as far as the WC for the company I was working for. They did become A...holes at settlement time though.
I wish you the best in your trials...

Sound so familiar
 

Hi Katie , my case is also wc and crps on my right foot,ankle and on my calf ,but is spreading to my back,left foot,right arm and dr are ignoring my complaints because after all my injury is on my right foot and ankle, can you believe that? I have a spinal cord stimulator implanted on jan 2013 and battery repositioned on jan 2014 because of the pain that causes flare ups generating from the battery on my left buttocks,who in their 5senses will get surgeries,spinal block injections just because you want to pretend your ill,obviously,nobody,but insurances and dr are just playing around with people like us doing the most expensive medical treatments so they can get the most money but mean while we paid the price suffering,is enough by being sick,is worst been with crps because has no cure and you don't know if tomorrow will be a good day,we do understand your position,if your dr don't listen well,get a new one,after all they are working for you,you need to look for what is good for you,you don't need an ignorant telling you that you have nothing wrong because your body knows that is something wrong,don't give up,keep asking questions and never let your dr leave that room without the response you need,keep trying,if he or she don't listen,get a new one,there are dr who do listen and understand that our pain is real,hope you get better,hope you have a better day every day,if tomorrow is not that good,we'll,let it pass,and the day after will be good,blessing to you and all our friend in neuro talk, from Jesika. :grouphug:

Thoracic outlet syndrome
 

Hi all new to site I have Nero TOS in left shoulder. My surgery date is May 8th thought I would say Hi.

My ear is getting senetive
 

when I press on my shoulder my hand :eek::eek: funny feeling I get in my left ear goes away anyone else like that.

hi mikjul1
You are posting on the RSD/CRPS forum

the TOS forum is here
http://neurotalk.psychcentral.com/forum24.html

Welcome Katie. I'm so sorry you have rsd and at such a young age not less, but hope you know that I'm always here if you need to talk. Take care.

Katie, I sent you a private message with some info that might interest you.

Sorry you have this stupid disease. Its the pits.

new member PTSD/panic/agoraphobia
 

Hi!
So I'm very new to forums. I've been diagnosed with PTSD, panic disorder, and agoraphobia. I've been on Paxil CR for about 8 years and clonazapam for the same. Now my doctor wants to switch me to Prozac and Xanax long lasting. Today is my first day on Xanax (last night) and just need to take clonapin as needed. Has anyone been threw either of these changes? I feel like I'm withdrawing really bad and just want to curl up in a ball and cry....not to mention extremely hungry!

Please help....

Welcome Cherik

You've posted on our RSD/CRPS forum by mistake.

Here is our forum for medications
http://neurotalk.psychcentral.com/forum72.html

I would also like to suggest our other community, PsychCentral, as more members there will be able to offer support and info for the conditions you are dealing with
http://forums.psychcentral.com/
You will need to register again there, but can use the same info as here.