Hi everyone I'm new to this site and just looking to talk to people that understand me. I've had RSD for about 6 months now and it's been the worst 6 months of my life. I ended up doing a outpatient mental health program because it was all just to much. I got hurt at work which is what caused the RSD and workers comp has been horrible. I'm getting ready to go to Cleveland Clinic at the end of this month for more help. My doctor is referring me there to do the program. I have RSD in my right hand, arm, both shoulders and lower back. Just looking for some new people to talk to. Hope everyone is staying warm.

Katie

Welcome!

I'm sorry you are dealing with this. Fortunately you are in the beginning stages which are the most likely for remission.

It's nice to have a place to come where everyone understands what you are going through.

Sometimes I do more reading than posting.

Hello Katie, & welcome
I'm a newbie too. I have crps type 2 in my right foot. yes this monster we all got can ready get to us at times. I'm on fluoxtine for depression/ptsd. Got good info & people on here.

Read as much as you can.I have learned a lot too.I have had RSD for 4 years.It really sucks.We have to keep fighting for a cure.Take care,wish you all the best..remember no ice,heat yes.

Hi Katie! Welcome to NT. This is a great place for support and info. So sorry you have to deal with this horrible monster. Fbodgrl is right, your best chance of remission is in the early stages, so it is great you are getting treatment now. Hope it works out for you at Cleveland Clinic.

Welcome Katie,
You found a great place to vent, get info or just visit...

Hi Katie. I'm sorry you have to be here but welcome. I have had CRPS for just over a year now. I have found a lot of useful information here and I have also found so many kind and supportive people.

We are all different and we have our own unique experiences with CRPS but at the same time we understand each other's experiences in a way that people with CRPS just can't. I find it really comforting to have this group of people who just get it without me having to explain. I hope you find the same help, support and comfort here.

Kim

We all hope you get better soon ,unfortunately we battle the same demon and we do understand each other,I had crps for 2 years now not easy also wc related that makes the battle harder but get ready for the fight of your life, we all deal with stuff in different ways, is true, and we all at the end suffer the same condition,good luck don't give up and ask as many questions you can don't ignore any changes in your body, your body talks and tells you what wrong, don't rush yourself to get better too soon,will take time sometimes but just be positive,like we all you will had good days and bad days, be patient ,strong and we are here for you,blessings to all ,
From Jesika

Hi Katie - welcome! Sorry you are suffering. Read as much as you can and become an educated advocate for yourself. In my experince, most doctors, nurses and physical therapists know little or nothing about CRPS . You have to arm yourself with reliable current information. Be well - Lottie

Thanks everyone...I'm only 27 and I feel like I'm 100. Some days I don't want to even get out of bed and unfortunately the only thing that gets me up is to get to my pain meds. They by no means take it all away but sometimes they do make it to where I can stand to be awake. WC is a nightmare...I hate them, and I don't use hate very often but I do HATE them. They've made this all 10x harder and the WC doctor pretty much said my pain isn't real...that I'm faking. Why would I fake this??? How could anyone fake this pain??? I would LOVE to go back to work, I loved my job as a welder, it was my passion. I had no clue what RSD even was when I was diagnosed and trust me just like everyone else I'd rather work that have this crap. I take that back I hate 2 things...RSD and WC.