sorry I have not been on
 

sorry for everything I have missed this week..Its been a really terrible week..I was put on morphine,and then all heck broke out..I was elergric to it..now dealing with sores after mass..terrible pain had to rush to my doctor,now on 3 different meds..stayed home very weak,dizzy,and not stable..hopefully back to work tomorrow..going to new PM on april 2nd..sorry for the spelling..I was really good at it,but now memory sucks.. I hope he will continue with the stimulator..I am so scared that I will have to start all over again..I emotionally cannot take that..I am wore right out..This rsd is hard to deal with..I have had enough.yesterday was the worse day I have had.I wish my insurance would have paid for my usual meds..I would not be in the condition I am now in..

Moosey, so sorry you are having such a rough go of it. Are you saying you devloped skinsores from morphine?

yes I did..its really bad..stillhealing the doctor was shocked..they really hurt.thank you..I hope you are doing well.thank you so much for caring.:hug:

Hey Moosey
 

I am sooooo sorry for what your going thru I just read your post OMG that has to be so scary, painful & stressfull not to mention exausting! Im here if u need to talk I will be online for a while cuz I am waiting for my mom to get back w/the other daughter :eek: fun fun so keepin an eye on my grandma in the meantime since she stays up late like the rest of us lol. So I really hope your feeling better sweetie, I am sending air hugs happy thoughts & prayers as Im sure everyone on here is. :hug:

ya its been really crazy that's why I have not been on..yesterday I slept a lot a the day before almost all day..last week was so bad.I went to see for just a few hours a day..so I guess it caught up to me..I wish you the best I wrote to you too.Just do your best to stay busy..walk the babies if you can.Answer with short replies.Hope you tooth problem is better too and the cycst too.Keep me posted my dear.I am really sorry for your loss too.It always seem to be in 3 s they say..Hows your rsd pain?Anything different?You take care and remember I am here somewhere from time to time..I really have to be in the mood..sometimes my pain is sooooo bad I cannot read about rsd because I get angry,if that makes since...Best wishes,lots of prayers and hugs too..:hug:

The tooth pain is there...throbbing half my face but it is what it is I'm taking the antibiotics I had left over from last time back in November so it's helping slowly still swelled up on that side but it could be worse so I'm just doing what I can to keep the pain & swelling down. I'm not having too much pain from the cysts thankfully but just female issues if u know what I mean. As for rsd pain it's rsd pain always there u know how that goes & boy do I know that feeling of just wanting to scream just seeing that word so no worries about not being on u take care of u first & foremost!! We will be here still when ur all better :p I just mite duck out to friends for a few days to get away lol

Hey Heidi, perhaps try CoQ-10, Vit C, and mouth wash from herbal store. I did this for a long time fighting infection with no money or insurance. You can also make gauze wraps with some other liquid vits. Let me know if you need more info. I eventually lost the tooth and went to the dental school to have it pulled because it was cheap. My teeth will be an issue until I don't have any I think. I've lost a total of two bottom back on same side. Horrible! I worry about the rest. CRPS has taken it's toll.

Hi Moosey,

So sorry that you have had a bad reaction to morphine. I can't take the stuff. I just hallucinate. I can take other things in that family, but not this drug directly. Anyhow, again I am so sorry that you are struggling right now. :hug: I hope you can get some relief quick!

Moosey, I've just been there myself on the Morphine Terror Trip this last few weeks and I am so sorry you are going through it yourself. It's the most horrific drug when things don't go well...

You do come out the other side, try to hang on to that. The way you feel now might be horrible, but it will get better and you will find yourself forgetting much of the crap you've gone through.

It saps your strength and energy and hope, but those things will return, and you'll smile. Honest :)

I'm regaining them after my month of hell, and you will too. Just look after yourself, eat well, and don't be afraid to ask those around you for help with the little things.

Take care, and remember you're never alone.

Bram :hug:

you guys are so great..A BIG THANKS.....bram I know you sure have had it rough..Hows things going now ?vrae hows things with you too?i hope Everyone gets a smile on today..take care oh ya I forgot what about honey for the mouth sores!!!!I know when I get them it does help..usually keep replying it..Heidi...good luck and have better days..:grouphug:

HAD A RSD MOMENT HAD TO CORRECT LAST FEW WORDS.L.O.L....

Sorry you've had such a tough time of it, moosey. You finally got "the good stuff" and not only it didn't help, it's made things worse. That's a tough spot to be in. :hug:

Did you get hives that blistered or did you get spontaneous sores ? In all my years of oncology then hospice, I've never seen that kind of allergic reaction to morphine. Just what you DON'T need on top of RSD !

I hope that you feel better soon.

Hey Vrae,
I've got gauze & perscription antibiotic mouthwash all the things I need & I actually am a certified Dental Assistant & Dental Lab Tech, I used to make the teeth after working chairside a number of years but liked the lab side of things better was actually going back to become a dental hygenist when I got the RSD almost 10yrs ago. So I know my dental :D :p(I dont mean to sound rude in anyway plz dont take it as such) I miss working in the field but the problem Ive had due to RSD is all my teeth are basicly rotting from the inside out so nothing I can do to even prevent it I used to have such beautiful teeth now they are falling apart tooth by tooth :mad: I am so embarrassed to even smilie now cuz half of my front teeth are broke or gone to gum line it's so maddning...:mad: But thank u so much for the suggestions they are great vrae I really do appreciate it so much :hug: I hope your feeling good & So glad to hear your injections went well I'm so happy for you! I know they are scary but if they help u that's what matters.

So sorry Moosey,

I agree with Bram..This is a painful experience that will pass... . I also have developed miserable reactions to morphine, methadone, demerol and some of the other pain meds, but morphine and methadone are the worst. It does take time for our bodies to stop reacting and to reorient... I had to keep calming myself to remember that it was a time limited event and distractions were the best way to cope, and now NT, to share and receive care. You are not alone, and thanks for sharing this.

We wish you speedy healing..:hug::grouphug:

Hana

Good to hear you more cheerful moosey :)

I'm doing ok thanks, Just had a slight blue patch yesterday when hit with the realisation that my 'well' is never going to be the 'well' other folk refer to, and that kind of gets you down off the high peak of 'thank goodness for that, I'm actually feeling more human again!'...:rolleyes: I'm glad to just feel better than I did though....much better than that!

Hope today is a better day for moosey :winky:

Bram.

Hi Bram, Sorry you've been blue... and, I'm with you, that when we change our thoughts and the wording a bit we can help ourselves feel better.Years ago I thought life was fair and we got what we deserved ...:confused::( That was a very hard fall... I labeled myself, and my thoughts and emotions followed suit. When I changed my way of thinking from the years of "cure" and "well" ---something unobtainable (in this moment), to heal and better I was relieved too.:rolleyes: All of the years of stressing do not help our conditions. I realized that living in the now with gratitude for what I do have is my only salvation. Now I find the spot on my body that doesn't hurt and hang out there for awhile...
In fact, I'm ready for my hangout.


My heart is with you all and l and pray today brings relief ... :hug::grouphug:

sounds just terrible my heart aches for you sweety..I will pray for you..You Are a Great FRIEND..You are very caring.:hug:

So glad to hear you are better.Its been a very long hall for you..I will continue to pray for everyone..

it was really weird,started itching,and then these sores started to appear,and then some discharge now scabs....now they hurt.they are are healing slowly..it seems to take awhile for me to heal..thank you for your concern..Bless YOU ..I hope you are you having a good day..Right now I am so drugged up I hope this makes since..better go..best wishes.:hug:

Yikes!

That sounds scary and painful.

Hoping you're feeling better Moosey and the same to all of you :)

Thank you ALL....
 

I have been terrible lately.Sorry it took so long to write and thank everyone .I still have the sores.They are painful.Anyone else here take forever to heal?My life feels upside down right now.I am on so many meds.I cannot function they way I should.Monday I took my last patch of meds.before I went to bed.I woke up for work at 5:30 a.m. went feeling okay still alittle pain,but did not take anything because I wanted to be able to do my job.about 45 minutes into my job, I felt terrible..VERY VERY tired,I could not deal with that.went home,took meds,laid down.Later felt fine..next day same thing..Boy its hard working ....I am at witts end..Either pain or not able to function ..Well today I go to a new PM doc..I have heard good things about this unit.Time well tell.I will keep you posted later..I found out yesterday..I can use my sick time,then have 12 weeks recovery..So I will keep my benefits..Boy oh boy,what benefits..lol..what a joke..I leanered latey,its better to be poor,and stay home..RSD is really hard to coop with.I sure wish I could stay home.Even visiting people is hard.We are going up Sunday to my Aunts,and my Husbands just does not get it.Its really hard to go all day,because of pain,meds,and having heat with me..I cannot make him understand..Do you guys feel like you just feel better cooped up at home than trying to go out?Well I guess that's how it is..Thanks for listening I babballed long enough..TY...lol:winky:

Moosey,

I am sorry to hear about the trouble you've been having. I emphathize with you on the lack of understanding - makes it extra tough when the spouse doesn't fully get it. Tough for him (or anyone else) to really understand though without having actually been through it himself.

(Stating the obvious here) - It's definitely easier and sometimes necessary to stay cooped up when things get rough. Personally - I went outside as much as I could tolerate. At the beginning, just a couple minutes of the sun and breathing open air did a lot of good for me.

Workwise I was in a similar boat in that I had a crapton of sick time piled up - was also blessed with an understanding, caring boss.

From reading your posts it's obvious you're one tough cookie. :) All the best.
VNV

I'm sorry you're having such a tough time moosey. I too have trouble traveling and my family still does not seem to understand why. I've had rsd for over three years now and would rather stay home and walk outside when weather permits, then travel. Sitting in car for long periods of time and then trying to socialize while on all these pain med is exhausting. And with exhaustion and immobility comes more pain and flares from my RSD. Once I'm home I usually go to bed and stay there for a good two to three days until I get my RSD flares under control. I keep telling my brothers and mother that it's just too hard to travel anymore. I am so worn out from the pain and asked them to meet me half way. But they just can't seem to find the time. We live an hour and half away from each other, and it hurts that they won't make the effort. But I'm not going to cause myself more pain anymore for their sake. I hope that your family will eventually understand how hard it is for you to travel and maybe they will come to visit you for a change. So far, except for my son, my family won't make the effort. Hang in there Moosey and take care of you. You need to look out for yourself so you don't aggravate your rsd.
And as for morphine, I hate the stuff. It make me nuttier then I already am. Demoral helps more in hospitals, but they stopped using it. It figures. Oh well try to get some rest and I will pray that things get better for you soon. From your friend, Renee.

Thank you so much for you caring words.I had talked with my hubby and my Aunt and told them how hard it is for me.I know they acted like they know what I mean,but I know truthfully they really cannot unless you have rsd..Oh well love them both dearly.I sure hope your families reach out more often too..I will pray for you all.
On a good note I had a doctor appointment today with PM...I was surprised they called so I went..They were glad I had things already done.So I get to go back on Friday to talk about placement of stimulator..i am so happy.I was really worried I would have to start over..The meds..I take now seam to feel better,but its still hard to regulate them.. Thanks for caring..I sure wish the best for you all.