Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-11-2014, 05:05 PM #1
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Default sorry I have not been on

sorry for everything I have missed this week..Its been a really terrible week..I was put on morphine,and then all heck broke out..I was elergric to it..now dealing with sores after mass..terrible pain had to rush to my doctor,now on 3 different meds..stayed home very weak,dizzy,and not stable..hopefully back to work tomorrow..going to new PM on april 2nd..sorry for the spelling..I was really good at it,but now memory sucks.. I hope he will continue with the stimulator..I am so scared that I will have to start all over again..I emotionally cannot take that..I am wore right out..This rsd is hard to deal with..I have had enough.yesterday was the worse day I have had.I wish my insurance would have paid for my usual meds..I would not be in the condition I am now in..
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Old 03-11-2014, 09:03 PM #2
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Moosey, so sorry you are having such a rough go of it. Are you saying you devloped skinsores from morphine?
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1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 03-11-2014, 11:37 PM #3
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Moosey, so sorry you are having such a rough go of it. Are you saying you devloped skinsores from morphine?
yes I did..its really bad..stillhealing the doctor was shocked..they really hurt.thank you..I hope you are doing well.thank you so much for caring.
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Old 03-11-2014, 11:49 PM #4
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Default Hey Moosey

I am sooooo sorry for what your going thru I just read your post OMG that has to be so scary, painful & stressfull not to mention exausting! Im here if u need to talk I will be online for a while cuz I am waiting for my mom to get back w/the other daughter fun fun so keepin an eye on my grandma in the meantime since she stays up late like the rest of us lol. So I really hope your feeling better sweetie, I am sending air hugs happy thoughts & prayers as Im sure everyone on here is.
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GENERALIZED RSD/CRPS stage II/III (entire body
.
) since 2004
HIP DYSPLASIA(right side), hip turned & tilted into back & aprox 2in higher than left side; <wear a shoe lift>
ARTHRITIS in both hips & Pelvis; Both Ball Joints are Deteriorating; SIATICA (both sides now) & EPILEPSY
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Old 03-12-2014, 12:15 AM #5
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I am sooooo sorry for what your going thru I just read your post OMG that has to be so scary, painful & stressfull not to mention exausting! Im here if u need to talk I will be online for a while cuz I am waiting for my mom to get back w/the other daughter fun fun so keepin an eye on my grandma in the meantime since she stays up late like the rest of us lol. So I really hope your feeling better sweetie, I am sending air hugs happy thoughts & prayers as Im sure everyone on here is.
ya its been really crazy that's why I have not been on..yesterday I slept a lot a the day before almost all day..last week was so bad.I went to see for just a few hours a day..so I guess it caught up to me..I wish you the best I wrote to you too.Just do your best to stay busy..walk the babies if you can.Answer with short replies.Hope you tooth problem is better too and the cycst too.Keep me posted my dear.I am really sorry for your loss too.It always seem to be in 3 s they say..Hows your rsd pain?Anything different?You take care and remember I am here somewhere from time to time..I really have to be in the mood..sometimes my pain is sooooo bad I cannot read about rsd because I get angry,if that makes since...Best wishes,lots of prayers and hugs too..
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Old 03-12-2014, 12:28 AM #6
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The tooth pain is there...throbbing half my face but it is what it is I'm taking the antibiotics I had left over from last time back in November so it's helping slowly still swelled up on that side but it could be worse so I'm just doing what I can to keep the pain & swelling down. I'm not having too much pain from the cysts thankfully but just female issues if u know what I mean. As for rsd pain it's rsd pain always there u know how that goes & boy do I know that feeling of just wanting to scream just seeing that word so no worries about not being on u take care of u first & foremost!! We will be here still when ur all better I just mite duck out to friends for a few days to get away lol
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~HEIDI~
GENERALIZED RSD/CRPS stage II/III (entire body
.
) since 2004
HIP DYSPLASIA(right side), hip turned & tilted into back & aprox 2in higher than left side; <wear a shoe lift>
ARTHRITIS in both hips & Pelvis; Both Ball Joints are Deteriorating; SIATICA (both sides now) & EPILEPSY
.
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Old 03-12-2014, 04:08 AM #7
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Originally Posted by HeidiB View Post
The tooth pain is there...throbbing half my face but it is what it is I'm taking the antibiotics I had left over from last time back in November so it's helping slowly still swelled up on that side but it could be worse so I'm just doing what I can to keep the pain & swelling down. I'm not having too much pain from the cysts thankfully but just female issues if u know what I mean. As for rsd pain it's rsd pain always there u know how that goes & boy do I know that feeling of just wanting to scream just seeing that word so no worries about not being on u take care of u first & foremost!! We will be here still when ur all better I just mite duck out to friends for a few days to get away lol
Hey Heidi, perhaps try CoQ-10, Vit C, and mouth wash from herbal store. I did this for a long time fighting infection with no money or insurance. You can also make gauze wraps with some other liquid vits. Let me know if you need more info. I eventually lost the tooth and went to the dental school to have it pulled because it was cheap. My teeth will be an issue until I don't have any I think. I've lost a total of two bottom back on same side. Horrible! I worry about the rest. CRPS has taken it's toll.
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Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 03-12-2014, 04:12 AM #8
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Hi Moosey,

So sorry that you have had a bad reaction to morphine. I can't take the stuff. I just hallucinate. I can take other things in that family, but not this drug directly. Anyhow, again I am so sorry that you are struggling right now. I hope you can get some relief quick!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 03-12-2014, 07:10 AM #9
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Moosey, I've just been there myself on the Morphine Terror Trip this last few weeks and I am so sorry you are going through it yourself. It's the most horrific drug when things don't go well...

You do come out the other side, try to hang on to that. The way you feel now might be horrible, but it will get better and you will find yourself forgetting much of the crap you've gone through.

It saps your strength and energy and hope, but those things will return, and you'll smile. Honest

I'm regaining them after my month of hell, and you will too. Just look after yourself, eat well, and don't be afraid to ask those around you for help with the little things.

Take care, and remember you're never alone.

Bram
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Old 03-12-2014, 01:08 PM #10
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you guys are so great..A BIG THANKS.....bram I know you sure have had it rough..Hows things going now ?vrae hows things with you too?i hope Everyone gets a smile on today..take care oh ya I forgot what about honey for the mouth sores!!!!I know when I get them it does help..usually keep replying it..Heidi...good luck and have better days..

HAD A RSD MOMENT HAD TO CORRECT LAST FEW WORDS.L.O.L....

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