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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Seen this? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/20955-seen.html)

allentgamer 06-01-2007 02:40 PM

Seen this?
 
Cynthia and John PSA :)

http://www.youtube.com/watch?v=S1Qn5rus4Gg

Desi 06-01-2007 03:26 PM

Thank you Allen! I put this one in my favorites! wow!:eek: Love, Desi

debbiehub 06-01-2007 03:38 PM

u tube
 
Its funny-just came back from my support group and someone said why don't we put something on U -Tube

Thanks

Debbie

allentgamer 06-02-2007 03:43 AM

Watch the Hollywood magazine shows like Extra tomorrow. They had a teaser running that said Paula Abdul confesses to RSD. :eek:

It even showed a little clip of her talking about how she got it, and a snippet of her talking about others with RSD.

Could she have finally gone public?!

theoneRogue420 06-02-2007 05:21 AM

Goodness, I sure hope not! The last person I want as "spokesman" for rsd/crps is HER! She sits on that judging panel, clapping in that odd way, with a drugged-out blank look on her face. If she is going to be "the one", I'm going to have to call my disease something else :(

buckwheat 06-02-2007 06:01 AM

Hi Allan,

Thanks so much. Hugs, Roz

unrouley1 06-02-2007 06:14 AM

wow - that's great! the site (for grace) is informative too!

thanks!
ang

Abbie 06-02-2007 11:49 AM

Quote:

Originally Posted by allentgamer (Post 108065)
Watch the Hollywood magazine shows like Extra tomorrow. They had a teaser running that said Paula Abdul confesses to RSD. :eek:

It even showed a little clip of her talking about how she got it, and a snippet of her talking about others with RSD.

Could she have finally gone public?!



http://www.msnbc.msn.com/id/18946279/
"Abdul has been diagnosed with reflex sympathetic dystrophy (RSD), a chronic neurological disorder that causes severe pain.
“I have four titanium plates in my neck. I’ve had 14 surgeries over the years. I had an operation the same evening as the first season finale of ‘American Idol,’ ” she says. “It can come and go at any time, but I no longer have the intense nerve pain that is associated with RSD, thank God.”"

artist 06-02-2007 01:28 PM

Well!

There was me, being all open-minded, thinking hey, between the RSD, the RSI, arthritis and C4-C6 problems, I have a pretty odd way of clapping myself. I can't, actually, it's far too painful so I pretend clap.

So next I read Abbie's msn link, saying that she does have RSD, plus 4 metal plates in her neck, but she doesn't have the painful kind of RSD ....(??) I've read of that, though I can't imagine how they diagnose it, but anyway I digress...

Then what do I see on the net but this:
"Bravo has announced Hey Paula, a new docu-reality series that will give viewers a look at American Idol judge Paula Abdul's professional and personal life (...yada yada...)
Originally announced by Bravo in early January and placed on the network's Summer 2007 programming lineup in April, Hey Paula will follow the former Los Angeles Laker Girl and Grammy Award winner as she films the sixth installment of Idol; works on her new Bratz: The Movie project; develops her own line of perfumes and cosmetics; expands her originally-designed jewelry line; markets her clothing line; and fits personal appearances into her demanding schedule."

Yeah right, Paula, all that with RSD, and I expect you're back home to clean the house, make dins for your SO and tuck in the kids, too :rolleyes:.

I imagine that makes all of us feel soooo much better about things, huh? Sorry, just makes me want to spit, bah!! What *is* the woman up to?

all the best!

Abbie 06-02-2007 03:20 PM

I know what you mean Artist..
That's why I highlighted the part about RSD just coming and going at any time....

I'm not sure what to make of that comment...but my experience with this monster is that I've never had it just come and go at any time... :rolleyes:

if she no longer has the intense nerve pain that is associated with RSD.... Does she have RSD????????? Did she ever??? Did it go into remission???? Or did it just burn it's self out one day??? PAAALEEEAAASSSSEEEE!!!!!!!!!!!!!!!!!!!!!!!! :rolleyes:

artist 06-02-2007 11:43 PM

Hi yaaaawwwnnn....

And so now it's Addison's disease! Is that as well as RSD or instead of, or perhaps she has Munchausen's? Whichever it is I wish she'd get the facts about her latest disease right (hah! RSD coming and going!!! If only it went!!), because she obviously has no idea what a terrible disservice she's doing to those who really do have these conditions.
She definitely says (twice, I heard it) she's been diagnosed with Addison's on the YouTube mp3, but then denies it in the following article.

Here's the YouTube url to listen to the tape:
http://youtube.com/watch?v=1F6cTuP6E...elated&search=

Here's a bit from the eonline article:
http://www.eonline.com/news/article/...4-a0c02555c2f8

"Abdul also discusses an assortment of issues with her health on the tape, claiming that she had recently developed Addison's disease, a rare endocrine disorder that causes chronic fatigue and muscle weakness, among other symptoms.

"I've been going through tremendous amounts of a difficult time," she says.

"I've developed this thing called Addison's disease…My adrenals are empty…and my immune system is not very good. And the worst thing about my spinal cord injury, and now Addison's, is that stress makes it hyper, hyper bad."

At an event in New York Thursday night, Abdul downplayed her health problems, telling People magazine she had not actually been diagnosed with Addison's disease.

"I haven't been diagnosed with it. I'm just exhausted. Sometimes I have really low blood sugar levels. It's all because I work very hard, that's it," she said.

"When you work as hard as I do, you become exhausted. That's what happens. I'm working on five different projects right now. And now people are saying I have Addison's. I'm tired."

I expect she's in for a rough time. I don't wish her ill, but this "I've got a terrible disease be kind to me" thing is getting very old.

Bah humbug...all the best :)

Linmarie 06-03-2007 08:16 PM

Thanks for this post. Allen, I tried to email the link on the news to my daughter. Hope it went through. I've been trying to educate her on RSD for almost 4 years now. I'm not giving up.
She actually came over the other day & told be I should get botox because Paula Abdul did. Imagine that! Scares me what Paula Abdul might say next.:eek:
Linmarie

allentgamer 06-04-2007 03:14 AM

Perceived value
 
There is a term used in marketing called "top of the mind awareness". It means that the position for any business, or anything anyone wants a person to remember is on everyones mind. But not just on their mind, in the top things on their mind.

With Paula Abudul and RSD it is just that, except there is one more value in this problem, and it is called "perceived value". It seems everyones perception is that (Paula Abudul + RSD = Negative top of the mind awarness).

That maybe so, but if you compare it to say Paris Hilton our perception of the value may change. They say Paris Hilton is now more famous from the negative then she was before the negative publicity.

I think that is the way Paula Abdul will effect the publicity of RSD. Any publicity is good publicity when it causes top of the mind awareness. :)

Now that RSD is out of the bag, and on top of everyones mind, it is time to use the publicity we are getting to get the word out. Hopefully the hype wont die off too quickly which would cause Rsd to fall from top of the mind awareness.

Linmarie 06-05-2007 05:10 PM

Good point. If I could just get the focus to write some letters to politicians.
Linmarie


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