Thanks for all the support,sadly...
 

I have to leave the forums for few days or maybe few weeks. It's hurt me real bad to do this finally ,I have a relative suffering from last stage of Huntington disease and she doesn't look like she will make it ,we lost her sister this year from same conditions and now she is real sick on a possible final days,I'm stressing and flaring a lots but I felt I ned to be with the family as long as my body let me .
It's hard when family had severe conditions and no way to get better ,this is their case ,they are my father in law sister in law and we know then for long time and see how much the whole family suffer,I wore proudly a blue ribbon on her honor but never expected this way of things turn lately .
I want to be here but also I will get worry with all things happens,I'm only want to tell you guys ,I do appreciate all the support I had and please even the rules are not to mention anything related to religions ,please pray ,or do what other ways you do to ask for her healing and if she has to leave ,to,leave without pain and no more suffering at all.
Thanks so much ,I will try to once at week check here but I know it will be hard for me to concentrate and be here ,my flares are about to get out of control ,I did saw last week a new ortho who told me ,sorry about my rsd but nothing he can't do and refers me to a new pmp and rsd specialist,my wc case was finalized with me getting life time benefits for foot and ankle plus all rsd related ,I was please with that ,also all medications ,therapy and all necessary stuff for my rsd and foot and ankle injury,surgery on my foot will never happens ,I knew it since the begging but is ok I will see how things turns.
Also got the chance to get retaining for school as long as I feel ok ,not yet,also my union finally step up and try to fix the mistake the made by misrepresenting me ,so a new fight is coming as well.
So ,please ,forgive me if I'm not to active In the following days but sure you do understands me well.
I wish you all the best and hope soon be back and ready to help a little in my own way ,thanks so much with love Jesika .:grouphug:

I am praying for you Jesika.

Sending hugs and prayers Jesika!

All the best to you Jesika. Prayers your way - and how awesome are you for putting aside your own trials to be with family in their time of need? We'll see you soon.

I'm so sorry to hear that, Jesika. I'm sure you'll be a big comfort to them. My prayers are with you and your family. Remember to take care of yourself, too, though, as best as you can. Check in here if it's a support to you, otherwise, we will understand your absence.

:grouphug:

Jesika. I'm sorry your having such a rough time. I hope and pray things will get better soon for you and your family. I'm sending soft hugs your way. Take care.

Hi Jesika,

I am sorry this is something your relative(s) and family have suffered with. Praying you and your family find peace in knowing that your loved ones are no longer suffering when that time comes. We recently lost a friend to this same horrid disease and though it was very sad there was also some happiness knowing this crippling disease no longer binds them.

Take care of yourself during this difficult time!

Jesika, so sorry that your loved ones have been so terribly ill, you are a blessing to them with your love and support. Take good care of you, and all of us will be right here when you are ready to be back online. Wishing you peace ~ Lottie

Good luck Jesika,
It mad me sad to read your reason for leaving. I hope you and your friend will be okay.
Congrats on your retraining also.
Be well...

Thanks so much,
 

Thanks so much for the support and comforting words she in deed,our aunt passed yesterday at 1040 pm pt and she was pick up for the funerary personal around 3 am pt .
It's weird and might sound bad to many ,but when suffering is all you know ,you will understand :
Death many time comes with happiness and relief . She was awake the whole day ,we fed her and she was trying to said few words and even fight you back when she didn't Like something ,was so strong and also was her last breathe of life holding her to tell us in her way, good bye.
I was lucky and bless to enjoyed her present and her last moments as well.
she died peacefully with certain kind of smiling face ,felt for few moments she was looking at you and felt like she was simply slept ,but she was gone ,long gone but happy and finally in peace .
20 years suffering Huntington diseases gave her finally a rest much needed and she left in peace .
Thanks so much and hope soon be back and get in track,family stills need us ,thanks again with loving hugs ,Jesika .:grouphug:

I am sorry for the difficult time for you and your family. Yet having seen the suffering of family members, understand the blessing it is to let them go when it is time. I hope your time with your family gives you the opportunity to celebrate her life and heal. :grouphug:

I'm so glad to hear that she was with family and went peacefully and was able to communicate with you. :grouphug: I hope you are able to get some rest soon and start feeling better.

Dear Jesika,

I am so sorry for your loss. I am glad that she went peacefully and is no longer suffering. I am sure that this has been very difficult for you and your family. I hope you are able to rest soon. :hug: Vrae

Jesika, I'm so sorry for your loss. I am keeping you and your family in my thoughts and prayers. I am at least glad you and your family were with your aunt at the end and that she went peacefully. She is no longer suffering, but I know that the loss isn't easy for you. I am always here if you need a friend. With love and hugs,
Renee.

:grouphug: and thanks to all and sure she is resting in a happy and peaceful place ,not suffering any more ,I will be aback soon and appreciate all your thoughts and prayers ,keep me warm and feeling I'm surrendering by more family,you all ,thanks so much and see you soon ,with love Jesika .
:grouphug:

Thanks for the support ,
 

Today sadly have to tell you all ,we loss another family member and this time I will stay ,I realized my body can't deal with so much. So stay behind at home a driving or flying will be too much for me ,but sure family already know I can only do so much.
Last Wednesdays also a sister friend who also advocate for rsd passed away and that touched me so close as well, I many times imagine a happy ever after even with rsd but life is real fragile and we never take the time to tell someone how much we care I will eventually back for now I just want to tell you all,
I LOVE YOU ALL my brothers and sisters, I don't want to leave one day and you never knew how much I care and how much you meant to me,thank you.:grouphug: with love Jesika

I'm so sorry for your loss Jesika. My thoughts and prayers are with you and your family. Sincerely, your friend, Renee.

Life keep adding more losses in hour family ,sadly another of my auntie passed this past Tuesday morning ,it hard to be at this point strong ,I even decided to stay here instead of traveling with the rest of the family out the country ,I can't handle long trip and my rsd is in full flare,I really need to slow down and take care of my symptoms ,I had experienced new ones but I'm sure is due to all he stress I had lately,thanks for the support and I'm trying to comeback and move on ,thanks and gentle hugs to all with love Jesika .:grouphug::grouphug:

:hug:

I am so sorry for your loss...please remember to take care of yourself during this hard time. My thoughts and prayers are with you and your family...

So sorry for your loss Jesika. :hug:

I have a friend recently telling me ,when it rains it's pours ,something like it ,I do know the wold saying very well, my family is having week after week this past,few weeks Several losses and we came from being funeral after funeral,many of those who do and still work keep requesting days off and is a sad to tell the reasons. We all have loss one member ,in laws ,close relatives ,blood related and even friends, I wonder why is happening.
I felt twice this past days and could be more scared, I tried to handle my sudden tremors and leg totally numb , is new for me , I was thinking stress might be the cause now I don't even have an idea why is happening ,my good leg is not responding , I know I do have rsd and still is not officially diagnose by a dr but is there , my buttock in same leg hurts as hell and I can't longer sit more than 30 minutes without pain,that was the spot where my scs battery was originally positioned ,dawn, rsd is really getting the best of me,sucks.
I still feel hopeful and thinking a new approach will, be beneficial ,but hard to find an rsd specialist ,I got approved already ,after all this bad news I think I didn't mentioned , I won my wc case on trial obtaining medical lifetime benefits and also,my compensations by laws and also a school retraining voucher ,obviously I can't go to school yet until I get better ,also a judge accepted my 40% disability on my right foot and ankle and rsd as well, my company wants z12% and no medical benefits Judge rules in my favor immediately ,I didn't called the trial ,my company did but I got lucky ,the judge knew rsd and also recommended apply for state disability right away and also Medicare for the areas not cover but also knowing is rsd he said ,make my rsd dr officially declare he other areas affected and come back and reopen my case again and we will start all over again.he was nice and even told me ,if I got fired before the trial ,I can sue my company base on ADA and recommended me to seek a professional attorney and follow a case ,I was terminate in June without an opportunity to get back to work since I was realized in May 2013 under medical limitations but was gives vague excuses ,still now ,hr didn't know I was terminated this past June. 2014 and I still had not getting paid off my sick time accumulated and vacations hours ,personal holidays ,I'm a union member and also my union misrepresented me ,I was inform union can also be included in my case ,now they union is trying to fix what they didn't since August 2011 when I reported I was hurt and company didn't sent me to a dr but after 14 days when I demanded to see an specialist ,I went by my own. They knew since the beginning and ignored me for two weeks ,at lest wc is done ,now I'm looking under my legal options on maybe a wrongful termination ,unpaid salary and union misrepresentations ,what a hassle , after all this stress ,I will add more , I was postponing everything due to the past family events ,but I guess I need to move on quickly and start that new journey.
Thanks so much for all the support and Kind words and condolences , I do feel comforted and also my relatives as well ,we are not over yet ,but I need to keep my rsd taking care and continue the fight to my rightful benefits after all rsd came with my injury and all is part of the same sad story ,wish me luck.
Blessings to all and loving gentle soft hugs. Jesika .:grouphug: thanks .

so sorry
 

I am so sorry for your loss.I am trying to play catch up..I have been reading along and praying..You still need our prayers and our fellowship..Remember we are here for you..Take care of your-self..sweety..hugs..:hug: