I have to leave the forums for few days or maybe few weeks. It's hurt me real bad to do this finally ,I have a relative suffering from last stage of Huntington disease and she doesn't look like she will make it ,we lost her sister this year from same conditions and now she is real sick on a possible final days,I'm stressing and flaring a lots but I felt I ned to be with the family as long as my body let me .
It's hard when family had severe conditions and no way to get better ,this is their case ,they are my father in law sister in law and we know then for long time and see how much the whole family suffer,I wore proudly a blue ribbon on her honor but never expected this way of things turn lately .
I want to be here but also I will get worry with all things happens,I'm only want to tell you guys ,I do appreciate all the support I had and please even the rules are not to mention anything related to religions ,please pray ,or do what other ways you do to ask for her healing and if she has to leave ,to,leave without pain and no more suffering at all.
Thanks so much ,I will try to once at week check here but I know it will be hard for me to concentrate and be here ,my flares are about to get out of control ,I did saw last week a new ortho who told me ,sorry about my rsd but nothing he can't do and refers me to a new pmp and rsd specialist,my wc case was finalized with me getting life time benefits for foot and ankle plus all rsd related ,I was please with that ,also all medications ,therapy and all necessary stuff for my rsd and foot and ankle injury,surgery on my foot will never happens ,I knew it since the begging but is ok I will see how things turns.
Also got the chance to get retaining for school as long as I feel ok ,not yet,also my union finally step up and try to fix the mistake the made by misrepresenting me ,so a new fight is coming as well.
So ,please ,forgive me if I'm not to active In the following days but sure you do understands me well.
I wish you all the best and hope soon be back and ready to help a little in my own way ,thanks so much with love Jesika .

I am praying for you Jesika.

Sending hugs and prayers Jesika!

All the best to you Jesika. Prayers your way - and how awesome are you for putting aside your own trials to be with family in their time of need? We'll see you soon.

I'm so sorry to hear that, Jesika. I'm sure you'll be a big comfort to them. My prayers are with you and your family. Remember to take care of yourself, too, though, as best as you can. Check in here if it's a support to you, otherwise, we will understand your absence.

Jesika. I'm sorry your having such a rough time. I hope and pray things will get better soon for you and your family. I'm sending soft hugs your way. Take care.

Hi Jesika,

I am sorry this is something your relative(s) and family have suffered with. Praying you and your family find peace in knowing that your loved ones are no longer suffering when that time comes. We recently lost a friend to this same horrid disease and though it was very sad there was also some happiness knowing this crippling disease no longer binds them.

Take care of yourself during this difficult time!

Jesika, so sorry that your loved ones have been so terribly ill, you are a blessing to them with your love and support. Take good care of you, and all of us will be right here when you are ready to be back online. Wishing you peace ~ Lottie

Good luck Jesika,
It mad me sad to read your reason for leaving. I hope you and your friend will be okay.
Congrats on your retraining also.
Be well...

Thanks so much for the support and comforting words she in deed,our aunt passed yesterday at 1040 pm pt and she was pick up for the funerary personal around 3 am pt .
It's weird and might sound bad to many ,but when suffering is all you know ,you will understand :
Death many time comes with happiness and relief . She was awake the whole day ,we fed her and she was trying to said few words and even fight you back when she didn't Like something ,was so strong and also was her last breathe of life holding her to tell us in her way, good bye.
I was lucky and bless to enjoyed her present and her last moments as well.
she died peacefully with certain kind of smiling face ,felt for few moments she was looking at you and felt like she was simply slept ,but she was gone ,long gone but happy and finally in peace .
20 years suffering Huntington diseases gave her finally a rest much needed and she left in peace .
Thanks so much and hope soon be back and get in track,family stills need us ,thanks again with loving hugs ,Jesika .