Anyone know an angry Pancreas?
 

Do your pancreatic enzymes elevate if your pancreas gets mad from PN? I have had elevated Lipase several times, and once elevated Amylase, but no one seems to think I have Pancreatitis... My C-Reactive protein stays up now most of the time.

Sometimes, the Lipase is up, sometimes not-there doesn't seem to be any pattern. Sometimes I have pain in the upper left side, just under my ribcage. My Gyn doc thinks that I am all inflammed inside...

Also, does anyone know when Lipase is elevated, if that can affect the fatty coating on the nerves? I remember that it is an enzyme that acts on fats, I think, but could it act on the nerve coating and cause miserable burning pain?

This probably a dumb question, but I really am having a LOT of pain right now and am trying to figure out what is going on here...

Cathie

Hi
 

It's been years since i was told lipase can cause elveted fatty coating
on the nerves. Sad part can't remember which Dr. told me this.

Do you ever just fall asleep especially during the day,and can tell what
is going on around you,then wake up very fast and confused,I know
this sounds nuts, but you mentioned high protein levels.. Sue :)

Cathie - have a look at:- http://www.webmd.com/digestive-disorders/Lipase-14225
Some advice there.
Hope you soon feel better
Tony

Wow cathie,

My C reactive protein is always high and I have had a terrible burning pain all over my body the month or two. My doc told me I was all inflamed inside as well.

Interesting thing is I was taking a pancreatic enzyme called Creon and wondered if this was too much for me even though it was supposed to help with my food digestion.

I stopped taking it and it got better. Just to be safe I am going to see a gastro tomorrow morning.

These too
 

Cathie,
I'm sorry you are suffering so. I found this site that may help you with knowing if the pain is caused from the pancreas. http://sg.answers.yahoo.com/question...6080628AAZYG2q

And this one with some info about C-Reactive Protein
http://sg.answers.yahoo.com/question...6080628AAZYG2q

Wish I had more knowledge.
Billye

Thanks all... I guess I need to consult my GI doc about this, although he knows I have PN and has never said anything about a connection between PN and the elevation...

Shelley:

I hope you will post or PM after you see the Gastro guy...

Sue:

Did you mean elevated lipase causes a fatty coating on the nerves? The way I remember the myein coating is that this is the actual covering of the myelinated nerves. I would think lipase might affect or damage it, not the other way around. Do you remember?

Do I fall asleep? Yes, right in the chair. And I stay confused most of the time...

Tony:

Thank you for posting that link. I will go through that and see what I can find. I don't have a gallbladder, so I know that is no problem, but I noticed there are other ruleouts for lipase elevation.

Cathie, I have to apologize in
 

advance....I simply wouldn't know an angry pancreas from anything else angry in my system? Somehow I have a feeling that I should be grateful.

I'm still learning I guess...Don't kow about you, but will we ever learn enuf to cure our own selves? Before it's too late? - sometimes it does seem that way doesn't it?

I DO know my blood work and urine tests are all over the map - it's all the meds I take...X raises this count, Y lowers that count, and Z does funky things to both X & Y...It fair confuses this mortal brain....

Soft hugs and a gentle heating pad for you in the interim - :hug: 's - j

Cathie
 

It's been awhile but i would think you have pancreatisits i remember
the pain coming or burning from back to front just under the rib cage.
And at times in front just under the rib cage. But it would better be
discribed as burning or imflammed or hot. Sorry just woke up it
hurts i know that. Honest it's been so long can't remember the answer
to the other question but i will see if i can find anything. Did you
say your husband is out of town?? Do you have a fever,even a kidney
stone can be up that high,with infection around it. But sounds more like
the other call Dr. Cathie don't wait to long. :( :( Sue

Well, let's see. No fever, at least not now. Kidney stone was the diagnosis of the year in 2005, so I know what that feels likes. This is to the upper right under the rib cage, just off of center. The only thing left, if it is not the pancreas there, I think, would be the spleen... I don't have a gallbladder. Sooo...

Here is what I have had since Oct.:
D&C/Histeroscopy for numerous uterine polyps
Dec. CT scan of lungs finds nodule in l. thyroid lobe
Ultrasound finds 2 more tiny ones in rt. thyroid lobe
Needle biopsy of larger nodule inconclusive
2nd needle biopsy inconclusive (not enough cells on that one)
Reaction from Radioactive Iodine Scan of thyroid-ended up in ER w/fever 102 and horrible burning all over
3 weeks ago tick bite, now on antibiotics in case it is Lyme
Also, I forgot thyroid autoantibodies were elevated

Husband is in Brazil with 30 high school kids (questioning his sanity here). I think I have help lined up if I should need it.

Cathie

Hello
 

Well don't know but if no better ,call Dr. I checked other forum on Ly.
but you don't have stiff neck or fever. Have you had Shingles?? Don't
know,oldest son had ITP when he was young hit his spleen flying
over bike handles,is that what you did. ha!! Hope your husband's students
don't get sucked up by one of those big snakes..:D If you get worse
and have no help call 911,i hate that but have to once in a while..
Darn it :hug: :hug: :hug: that last thyroid thing ask Shelley. Sue

I have high liver enzymes and they thought pancreatitis last year. I would go to your gp and they sent me for ct scans. There is a range of symptoms especially whether acute or chronic. I'm not sure if it has to do with pn. I do know that when mine was even higher and I was in the hospital they had me on a special diet/meds to help take some stress off the liver and to see if it would come down. I still have high liver enzymes but it is something were just watching now. Feel better and I would talk to your doc about further stomach tests.

Ok Yorkiemom

I saw the gastro today. He said that he thought no pancreatisits but that past labs showed imflammatory bowel disease. He felt around alot and it was ok up near pancreas but angry down on both sides of large intestine type area.

Next steps....stool test :icon_evil:

And barium thingy.

Keep you posted.

poo poo on the whole bowel test bit!!!!


but mabye you'll learn something :hug:

Hehehehe poo poo get it?

Atleast I can still laugh. :D

Thanks Kit Kat!

Cathie
 

I forgot about both of those could also be a ulcer ever had one of those
some are as small as a dime. :confused: :confused: I hope your
ok. Shelley i think you will feel much lighter without the poo poo. Sue
Cathie don't make me drive to texas i can't drive!!

Sue I'll drive and pick you up on the way. :D I want to be Thelma you can be Louise

Cathie here we come!

you
 

Got it wouldn't that be fun,and we could look around,Brad Pit went
to college here,he will be the guy with the 4 kids. They will just have
to stay with mommy..;) ;) :) :) Sue

cathie..you know i am close. call me of you need anything. i mean it.

:hug: heck..i might have to take a boat with all rain we have been getting...but i can be there pretty darn fast if you need me,.

Come on down. I would love to see all of you. You may need a boat too though, if this rain keeps up...

Cathie

P.S. Sue, I have had duodenal ulcers, now that I think about it...

Cathie
 

They would be in the right place,may want to call dr. see if you
can get something to maybe calm them down. If that doesn't work
you know it's not them. Still no fever i hope,i can see Curious floating
her boat over there. May take Shelley and me just a little while to get
there got to make a lot of stops,she's got all that poo poo,and
we got to find Brad Pit. :D :D Sue

Sue I have all the bathrooms mapped out from here to Cathie's

Great... i will be expecting you soon.

By the way, you usually can't go wrong if you use McDonald's bathrooms, just don't spill their coffee on you. :)

Cathie

repeated?
 

Has the lipase been repeated and is abnormal twice in a row, with amylase abnormal. That's the most important part. If it is staying up, I'd think your doc needs to think about that pancreas of yours. If it's transient, I'm not sure it has meaning. Maybe you had a fatty meal.

It has been repeated, but only occasionally. Lipase is occasionally elevated, but amylase was only elevated once... Maybe I need to see if doc will rerun both at the same time...

Something is wrong though. Steroids at 7.5 daily are not holding things as they should. Previously, my dose was 5mg. I had all of these things done since Oct., which could have triggered problems, but I think the worst of this actually started after the Radioactive Iodine Scan... You would think though, that it would have worn off by now... I think that was in Feb. or March...
Cathie

I used to have blood work every other day and you would be amazed at the changes that can happen in wide ranges. There are so many factors that can throw things off. Do you still have the pain under the rib cage and also do you get pain in the back like where the pain in the rib cage is?How is your diet? Like I said dietary fat is hard to process and a lot can be controlled through diet/meds.I still think following up with a stomach doc. Feel better.
Also I hope they stop by Mich to pick me up so I can visit.

Wooo Hooo Daniella....Go Blue....Will pick you up first in Meeeeechigan. :hug:

Sue you are in charge of snacks for the trip.

Yesss
 

Since i spent a good part of my life in Mi. can't wait to get there.
And S can use your bathroom. Wait a minute you got to promise
to stay away from BRAD,i'm saving him for Cathie wel maybe,he he.
Don't worry Cathie we will fix your gut. I don't buy anything at
Mcdonald's it wil have to be hit and run. (Is that wrong) :confused: Sue

Alrighty
 

I just saw the snack thing, no prunes that's for sure. Cathie be sure
to call curious ,when we get near so she can float her boat.
Cathie i think i might get those tests again if you can. :hug: Sue

Heh heh heh... You guys are all funny!!! It sure is going to be a long road trip for you with all of the "on the way" ??? stops. :) Curious and I will have a big plateful of enchiladas and other yummy Mexican food waiting for you...

Cathie

i'm ready!!! :D

chicken enchiladas ok?

That would be fun if we could all meet oneday. Hopefully all cured though. Like on a cruise!

Well I am sure that mexican food will help me go :eek:

howza 'bout a big ole side of refried beans for ya shelley? :p

might want everyone to come to my house...i have 4 bathrooms. :D

We'd better go to Curious' house... I only have 2 and things might get kind of, aah, difficult.. :)

Why Thanks
 

Cause i think Shelley will need all of them. I wonder if you can buy a
BIG old bottle of Beno??? D just get your stuff ready,we will be there.
We will share each others meds. Poor Cathie doesn't know what she's
in for but we will save ya.
Shelley guess what came on TV when i woke up tonight,yep couldn't
believe it. It was so :cool: :cool: and so are we. :cool: Sue
PS Cathie your gut any better??