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-   -   Feeling crummy (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/227171-feeling-crummy.html)

Littlepaw 10-09-2015 03:52 PM

Feeling crummy
 
I try not to complain much because I feel very blessed to be doing as well as I am, but....

I just had bad infusion day. The vein they normally use is scarring so they used another one and it didn't go well and I have a huge bruise that is REALLY sore. It's on the CRPS side of my body so I am feeling paranoid. I put topical lidocaine on there and took some PEApure. Guess I should hit the VIT C too.

Then to top it off, literally, I got sick this time which has never happened. It has taken most of the day to stop feeling so rotten and out of it. :( I dunno what happened. Maybe my body has had enough or it liked the super slow infusion the doc did last time. Don't know that I feel as curious about doing any extra ones now...

okay enough 'woe is me', I hope everyone has a restorative and peaceful weekend.
:grouphug:

Enna70 10-09-2015 04:00 PM

:hug: my dear friend.....don't ever feel that you shouldn't feel bad....a huge bruise on the crps side is more than a valid vent! So sorry for the scaring vain too how painful.....
I wish I could do something more for you than respond to you pain....thanks for your shares they are so helpful....
Using my mind......get well little paw....:o

Lara 10-09-2015 04:14 PM

Littlepaw, I'm very sorry you've had a bad infusion day.
I hope these feelings pass quickly. I had read your other posts about past infusions and the one where you said the very slow one went quite well. I gather you get a different doctor every time?
Anyway, I just wanted to post to say that I hope your bruise heals fast and you are feeling better tomorrow. :hug:

Littlepaw 10-09-2015 04:25 PM

Thanks for the kind words Lara,

I have been the same place with typically with the same nurse each time! Isn't that funny? It has been different every time depending on how fast the ketamine was infused and from changing the versed dose a little. The doctor gave the slow one when the nurse was out. I hope others who get these are able to find the "sweet spot" early on. It does make a difference.

I feel a lot better than this morning already. Thank goodness the tech was quick with the wastebasket and I had followed instructions for nothing to eat or drink after midnight! :o I think the IV site is the worst and looks like it will take a while to clear. Just so long as my nerves stay happy I'm okay with it!

Littlepaw 10-09-2015 04:27 PM

Thanks Enna, you always make me smile :) which is already doing a lot.
:hug:

stillsmiling 10-09-2015 04:40 PM

Hey Little Paw, I'm sorry you're feeling bad, and that so many things went wrong! Sounds so painful and exhausting. I hope you have a peaceful, healing weekend. Hugs

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EnglishDave 10-09-2015 04:55 PM

Hey Littlepaw,

My veins are scarred and as resilient as old rubber tubing from the Chemo and years of monthly cannulas in the back of my hands for Infusions. I know how it is when they go searching for a new vein and I feel for you.

I will not bother trying to tell you how to reduce bruising, especially when worrying about CRPS. All I can do is send lots of Air Hugs winging back to you.

Dave.

Littlepaw 10-09-2015 06:59 PM

Quote:

Originally Posted by stillsmiling (Post 1176605)
Hey Little Paw, I'm sorry you're feeling bad, and that so many things went wrong! Sounds so painful and exhausting. I hope you have a peaceful, healing weekend. Hugs

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Thanks! The others haven't been too difficult so I guess 1 out 8 is not bad.
I hope you have peaceful weekend too.
:hug:

Littlepaw 10-09-2015 07:00 PM

Quote:

Originally Posted by EnglishDave (Post 1176607)
Hey Littlepaw,

My veins are scarred and as resilient as old rubber tubing from the Chemo and years of monthly cannulas in the back of my hands for Infusions. I know how it is when they go searching for a new vein and I feel for you.

I will not bother trying to tell you how to reduce bruising, especially when worrying about CRPS. All I can do is send lots of Air Hugs winging back to you.

Dave.

Thanks for the hugs Dave, Back at ya.
:hug:

stillsmiling 10-09-2015 07:35 PM

I forgot to mention my secret weapon for bruises. I've always kept them in my medicine cabinet. They are two homeopathic creams bought at any health food store or online. The first is Boericke & Tafel brand Triflora Arthritis Gel. The next is (any brand) Arnica Gel. My son came home Wednesday night after playing a game of football with a bruise covering his kneecap and the surrounding area. I applied both creams Wednesday night, Thursday morning, and night. This morning he was pain free and the bruise was completely gone. I wish you could get your hands on these two remedies. They work miracles. Hugs!

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Littlepaw 10-09-2015 07:59 PM

I have Arnica! Thanks for the reminder, I will slather some on before bed.
:hug:

stillsmiling 10-09-2015 08:15 PM

Awesome!! I hope it cuts down on the bruise time!

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NurseKris 10-09-2015 08:23 PM

That sucks you had such a bad time. Did they give you phenergan or zofran prior to the infusion? I read somewhere (on here maybe?) that people with CRPS have bad veins. Hopefully you will have a better day tomorrow! :hug:

PurpleFoot721 10-09-2015 08:33 PM

Don't ever feel sorry about feeling like your complaining. You have every right to. I am sorry your infusion did not go as well today as it did the last time. Healing hugs:hug: and I hope you start to feel better soon.
:hug:
Alaina

goblue1998 10-09-2015 08:58 PM

Sending healing vibes and posture thoughts your way. Glad to hear today was a better day. Don't feel bad about venting this forum us so supportive and non judgmental.

Hopeless 10-09-2015 09:03 PM

Phenergan
 
Quote:

Originally Posted by NurseKris (Post 1176644)
That sucks you had such a bad time. Did they give you phenergan or zofran prior to the infusion? I read somewhere (on here maybe?) that people with CRPS have bad veins. Hopefully you will have a better day tomorrow! :hug:

Hi Littlepaw,

Like Nurse Kris asked, can they give you phenergan prior to or at the start of your infusion to prevent the nausea and vomiting?

I can't take pain meds without also taking Phenergan due to the nausea caused by the pain med. Phenergan is my favorite drug but it does make one drowsy.

Anything that will prevent me from nausea is my BEST friend. I am not that good at handling pain, but you might as well put me in a pine box and throw mud on top of it when it comes to nausea and vomiting.

To have BOTH, pain and nausea at the same time is pure torture. I am so sorry this infusion was so bad for you.

Glad you are feeling better now. Let's hope that you have no other problems pop up beyond what you have already endured.

Littlepaw 10-09-2015 09:34 PM

Thanks everyone SO much. It is nice to get sympathy and virtual hugs.

Yeah, nausea and urping are the worst. Unless you're my cat, who seems to relish eating grass just so she can urp later....

Nursekris and Hope, I have been getting the max of Zofran at 8mg and though I have gotten nauseated every time, I have never actually gotten sick. I don't know what was different. I have been a little under the weather with allergies but I think it was largely the speed of infusion. sometimes you can inadvertently slow your IV down by shifting your arm the wrong way. I guess I was in the "full on" position. I kept wanting to ask them to back it down but just felt too loopy...

I have always had hard to access veins. Being dehydrated from the whole "nothing after midnight" thing and being small don't help. I have felt lucky they haven't had any trouble getting my IV before now.

:hug:

EnglishDave 10-10-2015 07:28 AM

"Thank you" for the visual of your cat urping. I had to go see what YouTube had to offer on the subject. I will not Post the Link as it is tasteless, but if you want that sort of laugh, search Cats Hairball Techno.

Dave.

Littlepaw 10-10-2015 09:12 AM

Sorry Dave...

You're the greatest though because your reply brought a smile first thing in the morning. I just gotta lighten it up sometimes. I always feel bad for my kitty if I see her in process but she DOES do it purposefully so it has become a running joke in my household when she goes to her favorite patch of grass. And I have to laugh because I am the one on clean up duty so the joke is really on me.

I feel much better today...

Hopeless 10-10-2015 11:48 AM

Littlepaw wrote:

Quote:

so it has become a running joke in my household when she goes to her favorite patch of grass. And I have to laugh because I am the one on clean up duty so the joke is really on me.

I feel much better today...

Glad to hear you are feeling better. Had to laugh at the last line of your post. I was just thinking about the clean up when you WROTE about YOU being the one to clean it up.

Forget what your cat is going through,...... I feel bad for what YOU are going through with the clean up. Not sure which is worse, your cat having the up chuck or YOU having to clean it up.

Juliek72 10-10-2015 01:04 PM

Sorry your feeling so bad. Hopefully you will start feeling better soon

Hugs


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Littlepaw 10-10-2015 02:35 PM

Oh boy, you guys really are making me feel better. The laughter I am getting out of this side conversation about my dear cat is kind of priceless. I just went out side and there she was, chewing on grass, and I just started laughing out loud.

That girl has been such a sweetheart to me through all I've gone through that I don't mind the extra duties. She is not an aloof kitty at all and is very loving. The hardwood floors make cleanup easy anyway...

I AM better today, just really worn out. And the bruise, in spite of arnica is big and looks awful. At least I am done for a while until booster time.

Thanks for the giggles and compassion, they really are healing. :p

stillsmiling 10-10-2015 04:36 PM

That is funny about your kitty. Darn it about the Arnica!! I'm sorry it's gotten so big. Hopefully it will settle down soon. You are blessed to have a compassionate little fur person. Glad to hear that you are feeling better. :)

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mama mac 10-10-2015 09:37 PM

Litttle Paw. Sorry you have had a rough few days. Glad you are healing.~mac


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