WooHoo.....update on me
 

I saw my neuro this morning and explained about the pelvic pain and the external feeling in the nether region.

My neuro believes it's the MS, sensory in nature.....geez, at least I no longer feel like I'm crazy. He said since I have spinal lesions it's not uncommon to have pelvic pain due to those lesions. He said what they like to see with MS patients are other things ruled out, which I had, then the comfort level is there to say yes it's the MS.

We talked about different meds that might help and the decision was made for me to go back on Cymbalta.....it's the only one that won't add to my fatigue.

I told him my PCP wanted me on an AD for depression and I told him no, I'm not depressed. My neuro smiled and said he would mention in his report to my PCP that the Cymbalta is to help with nerve pain and not depression:D

I don't like being told I'm depressed when I'm not.....been there, know how it feels and ask for help when I need an AD.

Now I'm just waiting to hear from my sister. She sees the neuro for the first time today.

Cool, Snoop! I have been worrying about you so much. I guess it's good to get the bad news that MS is getting its way with you.:confused:

Man, I hope your sis just has some weird thing that can be stopped, I hate the thought that any of my sibs could have to deal with this crap.

I'll still be praying about this.:)

WooooooooooHooooooooooo!!! :Bow: :Excited: :Head-Spin: :Dancing-Chilli:

It's always a relief when you can say it's just the dang MS again. :rolleyes:

I hope the report is a good one on your Sis today...keeping fingers crossed. :)

Such good news, Lee Ann:hug:

LMAO....

Who woulda thunk hearing it's the MS would make me happy but it did :rolleyes:

I hate that my sister might have MS.....I know none of us wants those we love to end up with this disease, heck I wouldn't wish it on my worst enemy......well, maybe.....:p

Glad you got some answers from you Neuro Snoops. :hug: Been there done that with the same issues!

Of course, it took a round of steroids to get the pain and numbness to go away, cuz it was a stupid exacerbation! Along with the fatigue issues. Duh! And some urinary problems. This was at the very beginning of my MS journey. I have a spinal lesion too. Just one....but it occasionally kicks me in the bee-hind and man do I have a one heck of an exacerbation when it does. That's when I really YELL for the steroids. I cannot take it...but I have other symptoms too and I cannot afford to stay in bed for 3 or 4 weeks for them to subside.

So...it's the 'roids and they do the trick.

I hope your sister's appt goes well today. :hug:

Snoopy/LeeAnn

So thrilled it's just MS. Hard to say, but beats the alternatives ... I guess :confused:

Anxious to here how your sis's appointment. Finger crossed for a good report.

:hug:

Interesting, and great news, Snoopy. I would have never thought of pelvic pain as being related to MS, but I guess it makes sense since I've heard of others with "****" (edit: "bottom") spasms from the disease.

I was just reading up on pelvic pain (curiousity got the cat) and came across this:

"The bottom of the pelvis is comprised of a series of muscles. These muscles extend from the pubic bone in the front to the tail bone in the back. Whenever we are in pain, the natural tendency is to tense up our muscles. This applies to pelvic pain as well. Often, without even realizing it, a patient is clenching the pelvic floor muscles. Over time, months or years, these muscles can go into spasm and become scarred and unable to fully relax. This condition is similar to a knot in the muscle in your back. It is not a matter of just relaxing the muscle to make the knot go away, this is impossible. Just as deep tissue massage is needed to get rid of the knots (muscle spasm and muscle fibrosis) in the back, deep tissue massage can be needed in the pelvic area. A qualified physical therapist who deals with pelvic pain and is experienced in transvaginal (through the vagina) deep tissue massage of the pelvic muscle floor is usually needed to correct pelvic muscle floor spasms. Although muscle spasms may not seem like a serious condition to some, anyone who has experienced a severe spasm in the calf knows how excruciatingly the pain can be. Imagine having this pain level constantly in the pelvic area."

http://www.pelvicpain.com/learn.html

Since we have spasms everywhere else, it's probably not too much of a stretch to consider this alternative as the "MS-reason" for your pain. :confused:

Good luck for your sister. I hope the results prove less then MS.

Cherie

Thanks for the link Cheri, I found it very interesting. I'm glad you got curious ;)

Thanks Beth, I'm really okay with the fact it's the MS causing what I'm feeling. It's not fun but at least I know what I'm dealing with and I know I'm not crazy.

Cheryl, I'm glad the roids helped you. My neuro mentioned roids but he said since it's sensory he won't do them. I told him that's fine because I don't want them :p just make the pain go away and I'm good :) The vibrations are really annoying right now but I consider that a minor issue.

My sister had bloodwork done and is waiting for a c-spine MRI to be scheduled......other than that we no nothing.

Finally we can blame MS! Yeah it is MS's fault! Yeah!

Yeah!

*grabbing bat, chainsaw, sledgehammer, bobby pins*

This sounds like a job for Empathy Mannnnnn!!!!!!

Snoopy,

I'm glad you're feeling better. :) I take Cymbalta too, (one of many meds) and I wouldn't give it up for anything. It really helps my mood and my pain!

:hug:

In my house, PODH (poor old dumb husband, in this case) blames everything I do on MS...:confused::mad:

But in your case Snoops, I am glad things turned out the way they did.

And Cherie, good info. That's a theory that is probably good in some cases, and maybe more than a lot of people realize. My ob/gyn actually presented my case at a conference cuz everyone was befuddled (yeah go figure:eek:) and I guess my pain (and I do mean PAIN), is caused by the location of that silly little lesion I have in my spine. All I can say is thank goodness it's the one that doesn't act up often. Yeah for that! ;)

Keeping fingers crossed on your sis's tests...

My doc put me on wellbutrin for pain management. It helped and makes me really happy.....also sped me up a bit.
Good luck to your sis:hug:

LeeAnn, is it a rectal pain? I get this about once a week, it's h*ll! Usually it hit in my sleep, but can happen anytime. No one seems to know what this is, and just shrug their shoulders. I am probable MS, I am beginning to think that is as far as I'll get.

If you are having the same thing I get I feel for you girl, it's not pleasant.
Pat

Hi Pat!

That doesn't sound good at all Pat, it sounds down right painful. I hope your doctor can figure it out and soon.

No, it's not rectal pain. It's the pelvic area. My PCP and urologist say it's not a urinary/bladder problem my gyn says it appears to be bladder related and my neuro says it's the MS.....holy cow.

I go back for another pelvic ultrasound next month and my gyn wants them to check that I have both my kidneys....I guess there is a possibility that I am missing one....good grief

Wait a minute. Do you get a refund if you find out that the big guy shorted you a kidney....or are you one of those people that found yourself in a bathtub filled with ice and a big scar!;)

Glad they're looking into it for you.

Uhhhh, yeah Snoops, wouldn't you know by now if you were one short of a full load of Kidneys????:eek:

*hiding red/white cooler behind back*

Meh, she only needs one! Let sleeping dogs lie!:Deliberate:

Wasn't there an episode on Law and Order about that?

You guys are crackin' me up.......

Nope, no scar and yep, I would have thought the possibility would have come up before.....heck I'm only 46 for pete's sake :rolleyes:

Internally things are not where they should be and apparently it's not uncommon because of that for a kidney to be missing......first I had ever heard that.

I feel like I'm in a scavenger hunt.....lets find the kidneys :p

It's not a big deal if I only have one kidney. My mother had a kidney removed when she was a kid so I am aware you can live just fine with one.

I love scavenger hunts!

Do we all get a scalpel?

Me too! I want one of those microscopic scopes to cruise around with! Kewl!!!

*oops, crashed! What IS that? AN M&M??*

OMG, Cheryl the Butcher.:eek:..:OuttaHere:

Not me! I used to work for a plastic surgeon! I am very careful! :D

Holy Cow! I guess I should never have mentioned scavenger hunt.




hmmm.....M&M?.....:rm_milk:

Snoopy glad to hear you now know what the pain is being caused by. I am going Monday morning for an MRI of the neck. I have been having terrible pain in my ear, left side of face, neck, left side of head for a long time. They have been checking with different tests and medications (no answer). I hope this will give me an answer because I just can't take it. When it flairs up bad all I do is cry, put heat and cold packs on it. I bought one of those chair massage machines it helps a little. But when done everything starts all over.I will pray for your sister that everything is allright. If it is OK with you I would like to light a candle when I go to church this weekend. Take care of yourself and keep your sister close. Joyce

no no no...i will not let them turn Snoopy into the "Operation Game". :eek:http://sp1.mm-a2.yimg.com/image/2335322254

<------monkey knocks treezers out of amn's hand.

We need entertainment this weekend! She said scavenger hunt! Why not! Oh oh oh, another m&m...I think I hear Taffy sneaking up...she's going to grab that M&M for sure...:mf_swordfight:

I'm sorry about your pain Joyce, I hope your doctor(s) can find a med to help. It can just be so very difficult to treat MS pain :hug:

That's very kind and thoughtful of you to light a candle :hug:

I love it! Now I'm an operation game :thud:

Everyone just keep your tweezers away from me :OuttaHere:

No one gets the M&M. If it was found on my person it's mine.

looks like she stole your plane for a fast get away!

http://re3.mm-a2.yimg.com/image/2206606602

:ROTFLMAO::ROTFLMAO::ROTFLMAO::ROTFLMAO::ROTFLMAO:

HEY!:mad: Finders, keepers!!!

ROFLOL!!!!!!!:Funny-Post:

looks like she is ready to land

http://re3.mm-a6.yimg.com/image/3519233651

and now enjoying A Nap...on the beach. :p

http://re3.mm-a11.yimg.com/image/3527093

LOL! Should we be wearing black???:D

Kinda looks like it....:eek:

She WHO?????


I want that airplane. It's so cute! :D

one kidney
 

just wanted you too know that my dad has only one kidney, and he didn't find out till he was in his 60's. And he found out by accident due to another problem that since has been corrected and he is 70 now,it has never caused any kind of problems, he is still one of the strongest men i have ever known if not the strongest deb