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-   -   So my colposcopy results (https://www.neurotalk.org/multiple-sclerosis/53461-colposcopy-results.html)

dmplaura 09-02-2008 03:09 PM

So my colposcopy results
 
Came back showing a lot of cell changes apparently, confirmed that I have HPV (wasn't really a surprise, reading how many people have this) and that I will have to go have laser surgery to remove the affected cells.

Anyone out there gone this extra step (laser) after having a colposcopy?

I can't believe the clinic never called me back as they said they would. They just simply got the results. My family doctor looked them up and told me the news.

She did confirm they did biopsy and that this doesn't mean cancer. So that's a relief at least.

I've been sexually 'inactive' for 4 years or more now.... and I always practiced safe sex. Go figure. But I guess HPV can actually still get around such precautions regardless.

DM 09-02-2008 03:37 PM

Hey dmplaura~ AYUP, had a colposcopy in my 30's due to cell changes. *53 now*

I had lasor tx and outside of cramping, I walked out and went home to rest. *after going out for breakfast w/DH*

I know many women friends who have had the loop procedure, freezing or lasor for the same result. I think the lasor is a good way to treat it. They automatically do a bx when they see anything that requires a colposcopy, so NO, it doesn't mean it is serious. But, always a good idea to get it taken care of.

You'll do just fine and keep us posted.

dmplaura 09-02-2008 04:04 PM

Oh I shall :)

On the MS front today (wow, I forgot about my MS for a millisecond woo!), my GP talked to me about my headaches/head pain. She figures what I describe is the MS.

My neuro had actually suggested she try me on Lyrica. She chuckled and said, "I haven't seen many good results with Lyrica". So I asked about Topiramate, but she said this would not be a good idea to try, since I have had side effects on Carbamazepine and Neurontin in the past.

So she's prescribed me Clonazepam (Rivotril in Canada, Klonopin for those in the US). She figures my anxiety (which I also discussed) is contributing to the head pains and agrees this is probably also contributing to the burning mouth (which is pretty lousy today, as you can imagine, after hearing about the colposcopy). So I have 30 .5 mg tablets, and can take 1/2 to 1 tablet 3 times daily when needed. I'm going to give the 1/2 tablet a shot for now (good thing I kept my pill cutter!).

SandyC 09-02-2008 04:06 PM

HPV is so very common I heard many have it and don't know. I hope everything comes out Ok for you. As DM said, you'll be fine and back to yourself in no time. Hope your headaches are helped by the new med as well. :hug:

dmplaura 09-02-2008 04:11 PM

Thanks ladies. As you can imagine, hearing "oh now you need laser surgery" isn't exactly what's needed with just being diagnosed with MS in March lol ;).

I already had surgery at 25 for endometriosis!

I'm getting to the point of asking them to just remove all my lady stuff. Would be easier I'm almost thinking. :eek:

SandyC 09-02-2008 04:37 PM

I had mine removed and it's the best decision I ever made! Oh, Ok, I still have my ovaries but no baby box. Life has been wonderful for me since then! No more migraines, no more aunt Flo visits on a daily basis, no more bloating, no more crankiness, etc...

Can you tell I loved my surgery?

Gazelle 09-02-2008 04:37 PM

:D My mom used to say, "They took out the cradle and left the playpen."

Kinda funny way to look at it. ;)


The laser should be no huge deal, as DM said. I had the cryo and it wasn't horrible, bit of cramping and a lovely watery discharge for a couple weeks (gotta wear pads.... blech!!!). Get it done, go rest, you'll be fine!

SandyC 09-02-2008 04:40 PM

Quote:

Originally Posted by Gazelle (Post 360218)
:D My mom used to say, "They took out the cradle and left the playpen."

Kinda funny way to look at it. ;)

I absolutely love this!!!!! :D

dmplaura 09-02-2008 04:44 PM

Quote:

Originally Posted by Gazelle (Post 360218)
:D My mom used to say, "They took out the cradle and left the playpen."

Kinda funny way to look at it. ;)

LMAO!!!!

Hey, what CAN you say to argue you want the cradle out anyways?

I know I've mentioned it to doctors in the past, and they always dispute it. "You're still young, we can't do that now". Yeah, I'm 31, but I still don't want children! Why keep the cradle that's high maintenance if I don't want to have kids?!

Gazelle 09-02-2008 05:11 PM

I tried to argue that. My doc kept balking and saying it had to be a medical reason for insurance to cover it. Oh I know, but I had really, really heavy periods (still do). Could bleed through a super tampon AND a pad in 30 minutes. Yucky. And it was like that for the first 2-3 days.

Nope. Didn't work.

Dunno what you can say. It sucks being female!

SandyC 09-02-2008 05:13 PM

They used to say that to me too. I finally landed a good female gyne who looked me in the eye and said "NO ONE should ever have to go throgh what you've been going through for over ten years." I actually sat there with my mouth wide open. She gave me two choices, try the hormone where you inject six little tube things into your arm (remember that one?) or surgery. I opted for surgery since every BC or hormone I took caused my migraines to worsen. No way was I going to inject something I couldn't stop right away. Plus, the idea of no period was amazing!

Now I am going through menopause but it's pretty easy since I already went through a partial menopause when I had the surgery.

dmplaura 09-02-2008 05:13 PM

Hrm, after having the cradle out, do you have to take hormone pills or anything? or are you good to go with your ovaries still in tact?

Edit: I suffer atrocious migraines/headache as well, esp. around Auntie's visit every month. Not to mention the excessive bleeding is what lead me to surgery and they found severe endometriosis as a result.

Would that be grounds (with the recent findings of cells) to warrant a medical reason for removal?

I hear you about the BC and migraines. Depo Provera was the absolute worst one. That's when I experienced those Trigeminal Neuralgia type pains in my head with headache. I went off that promptly, and that's when I decided abstinence is best.

SandyC 09-02-2008 05:14 PM

Good to go so far except menopause is taking over. I tried the hormone stuff when I started getting facial hair but they gave me headaches once again. Not as bad but I also smoke so I decided against them. So, my doc gave me zanax for hyper days and Nair has great facial hair remover! lol

Gazelle, my docs pulled all that too. One even said "You have a husband who is sick and you may want more children later when he dies." I looked at him and said "Excuse me? My husband is not going to die anytime soon and I don't want any more children!" I reported him and he got in some trouble. Not enough to be fired, which I didn't expect but he can't talk like that to people.

Gazelle 09-02-2008 05:29 PM

It's been a lot more than 10 years that I've bled like that and I'm sick of it. But at this point I'll just live with it until nature takes its course. I'm 45, so hopefully that'll be soon. I have no one to measure against--my paternal grandmother died when I was 1 1/2, my maternal grandmother had a hysterectomy when she was in her early 30s, my mom had a hysterectomy in her early 30s, both parents are only children, and I don't have any sisters! So you could say I'm an orphan menopauser! :confused::D:confused::rolleyes:

It didn't make me happy either when I was told that. But it wasn't worth the fight at the time.

dmplaura 09-02-2008 05:43 PM

Not to steer the convo off, but I don't think I mentioned that my Clonazepam prescription came to 1 cent. :eek: So the pharmacy didn't even charge me the penny! LOL. First free prescription I've seen outside of a hospital! :)

greta 09-02-2008 05:44 PM

I had a LEEP after colposcopy. No big deal at all. Didn't hurt at all! You'll do great.

dmplaura 09-02-2008 06:00 PM

Quote:

Originally Posted by greta (Post 360264)
I had a LEEP after colposcopy. No big deal at all. Didn't hurt at all! You'll do great.

That's what I'm hoping.

When my doctor mentioned 'a lot of cell changes' and 'this is serious, they should have called you', it did make me worry. Like, that feeling you get before you faint? Yeah, that went through my body. :\

Thank goodness I have this new drug for anxiety though, even if I'm taking a low dose. Right now I'd be a wreck with the pain from burning mouth without it I think. And I picked up some Biotene mouth drops as well because my mouth has been dry as a desert the past 2 days (probably result of the AC drying the place out and I'm a mouth breather on top of it).

SandyC 09-02-2008 06:00 PM

Quote:

Originally Posted by dmplaura (Post 360263)
Not to steer the convo off, but I don't think I mentioned that my Clonazepam prescription came to 1 cent. :eek: So the pharmacy didn't even charge me the penny! LOL. First free prescription I've seen outside of a hospital! :)


How did that happen? What's your secret? :eek:

dmplaura 09-02-2008 06:02 PM

Quote:

Originally Posted by SandyC (Post 360270)
How did that happen? What's your secret? :eek:

Apparently my insurance through work covered that much of the cost for that medication. I was shocked myself. I only pay $2 for Amitriptyline, but this even beats that!

SandyC 09-02-2008 06:08 PM

No kidding! Whoohoo!

dmplaura 09-02-2008 06:23 PM

Shame that Clonazepam can be habit forming. Because I can tell you, 2 hours later, it has helped the burning mouth for sure. She doesn't want me to take it beyond taking it on days where I feel the mouth pain is bad. Some days I do actually have relief from it.

My doctor asked how I got so knowledgeable about different medications, so I name dropped NeuroTalk. :D And mentioned I post on a burning mouth forum as well with many in situations like mine, no known cause, just burning awful mouth pain.

She said, "Isn't the Internet wonderful?". Got that right doc!

Bearygood 09-02-2008 09:09 PM

Laura, you're going to be fine. :hug:

dmplaura 09-02-2008 09:21 PM

Quote:

Originally Posted by Bearygood (Post 360424)
Laura, you're going to be fine. :hug:

Hope so Beary! You can understand my worry and panic hearing her mussing over the computer screen saying, "I can't believe they didn't call you, this is serious". Of course, me half freaking asked "Does this mean cancer?!", to which she changed her tone and smiled and assured me that no it's not cancer.

I figure I survived the colposcopy, this can't be much worse.

Taffy 09-02-2008 09:29 PM

Ok...you are on the right track...:hug:

Bearygood 09-02-2008 09:44 PM

Quote:

Originally Posted by dmplaura (Post 360440)
Hope so Beary! You can understand my worry and panic hearing her mussing over the computer screen saying, "I can't believe they didn't call you, this is serious". Of course, me half freaking asked "Does this mean cancer?!", to which she changed her tone and smiled and assured me that no it's not cancer.

Yes, I definitely get it! I'm sure it was scary for a minute!

I always call about test results and don't just assume everything's okay if I don't hear. This dates back to my thyroid issue -- I should have been dxed over a year before I was. The doctor forgot to call me with the results of the one abnormal test that had staggered in behind the other normal ones. I now no longer assume that everything's okay if I don't hear and also request that copies of any blood test results be sent directly to me.

dmplaura 09-03-2008 12:31 AM

So now I'm confuddled about HPV. :eek:

It says that in most women it goes away in a few years. Well, it's been 4 years at least since I was sexually active. Perhaps since I didn't have a GP for so long and I wasn't getting regular paps done, this is the reason why they're finding this now? :confused:

Does it remain until the procedure is completed to remove the affected areas? Or would those areas perhaps disappear on their own? Or are some strains of this a lifelong event?

lady_express_44 09-03-2008 12:53 AM

I had laser treatment for early cervical cancer that was discovered 6 months after the MS, and while pregnant. Of course they couldn't treat me till the baby was born, and if I recall correctly I had two treatments. (I might be wrong about that, but I think I did . . . :confused:) I know was monitored on several occasions after that, over the next two years.

The anticipation of this procedure was scary . . . but was really no big deal at all!! I don't even remember being uncomfortable during or after. :)

Having my second baby was tricky though, with scare tissue on the cervix. :eek:

Cherie

dmplaura 09-03-2008 01:51 AM

Ugh, you know, I had the talk with my mom about just removing the uterus. Like, let's be done with it and call it a day. I don't want children. I've had too much agony with women parts. Out of the nursery with the cradle right? :p

My only concern is obviously that of, would I then have hormone troubles.

I think I'll give round 1 of this a shot, and if it persists as a problem THEN I will inquire about possible removal.

Cherie, weird how that works huh? Here we are September, almost exact to 6 months following my MS dx, and I'm told I have this.

sheena 09-03-2008 02:20 AM

Well I guess it is time for an HPV club LMAO. Yes, I have it too. Mine 1st showed in 2001 while pg with my only child. I was covered in the mess and nothing could be done. My major worry was infecting the baby. She ending up in the birth cannal too long and a c-section. To date, I see no sig of infection --eyes, voice.... I still pray she did not get it.

I have no idea what Bastard gave it to me. I was married - not cheating - for over 5 yrs till it showed up.

Hpv showes up when you are under stress, illness... (mind or body). I was told I could have been infected 10 yrs before. Alll of mine went away within 2 mos of child birth. I did not have to have lazor.

Today I have a few for the 1st time in 7 yrs. It is due to stress over MS. If it starts to ger bad then I'll have lazor but for now I think I'll try to just let it go away on its own.

I've never told this anywhere - yes I feel ashamed - but I did nothing wrong and I am told the person who gave it to me prob. did not know he had it. So, I guess that helps a bit. My girl is fine and that is all that matters. I thank God for a terrible 17hrs of labor so she could have her c-section.

Now, you see it is not all that bad.

dmplaura 09-03-2008 03:11 AM

sheena, does your's disappear completely and then reappear as you said, under stress?

I'm sure stress could have very well set mine off. That's for sure. I was so stressed during limbo period I was going nuts. No doubt that added to it.

Gazelle 09-03-2008 06:05 AM

Quote:

Originally Posted by lady_express_44 (Post 360643)
Having my second baby was tricky though, with scare tissue on the cervix. :eek:

Cherie

Sure. It WOULD be! Considering that you'd be scared too of something that large going through the cervix's little, bitty opening. No wonder it was scared!

:D

lady_express_44 09-03-2008 09:05 AM

Quote:

Originally Posted by Gazelle (Post 360724)
Sure. It WOULD be! Considering that you'd be scared too of something that large going through the cervix's little, bitty opening. No wonder it was scared!

:D


:p I think that is what is known as a freudian slip. :p

Cherie

SandyC 09-03-2008 11:06 AM

I don't have a cervix. They took it with the uterus. So two cancers down, no uterine or cervical cancer to worry about. :D

Don't worry about hormones if they only take your uterus. You will still have cycles, just no menstrual...whoohooo!

dmplaura 09-03-2008 01:07 PM

Well, my BMS situation is much lesser today. I haven't taken any Clonazepam, but I took 1 .25mg amount right before bed last night, and had the BEST sleep I've had in a long time. Woke up feeling so refreshed, and I could tell I slept well, because my bedding was not strewn all over the room like it normally would be. Appears I slept in 1 spot all night with little movement.

My mom swears she never went through menopause.. maybe I should ask Dad to confirm this! :D He may have a different story to tell LOL!

Riverwild 09-03-2008 01:44 PM

I don't have any experience with HPV but have friends who have had the laser treatment and they all said "no biggie"

I DO, however, relate to the LONG (8-10 days) HEAVY monthly stuff, and have since I was 9 years old! (This is ONE thing I never liked being ahead of all the other girls on!)

At 49, with no children, and no plans on having any, I was ready ten years ago or more, to have it all out. :mad:

I am sitting here now with my Depends on (yes it's THAT bad!) after waking up with cramps for the THIRD day in a row. I just got back in the house after going outside and doing my monthly scream at the top of my lungs...


COME ON, MENOPAUSE!!!:mad::mad::mad:

(good thing all my summer neighbors are gone!) :p

dmplaura 09-03-2008 02:44 PM

Sorry to hear you have such bad cramps Riverwild. The bad cramps plus pain during sex is what actually resulted in me having the laposcopy, and them finding endometriosis.

It used to be very bad. I'd faint in school from cramps. I missed a lot of time in high school due to this.

Gazelle 09-03-2008 05:41 PM

Quote:

Originally Posted by Riverwild (Post 360980)
I DO, however, relate to the LONG (8-10 days) HEAVY monthly stuff, and have since I was 9 years old! (This is ONE thing I never liked being ahead of all the other girls on!)

At 49, with no children, and no plans on having any, I was ready ten years ago or more, to have it all out. :mad:

I am sitting here now with my Depends on (yes it's THAT bad!) after waking up with cramps for the THIRD day in a row. I just got back in the house after going outside and doing my monthly scream at the top of my lungs...


COME ON, MENOPAUSE!!!:mad::mad::mad:

(good thing all my summer neighbors are gone!) :p


With ya, girlie. With ya. Mine would sometimes last 14 days or so. My H used to say that I had about 2 good days out of the month.

But Depends? YIKES!!! THAT is bad. That's really bad. Wowzer!

My mantra is, "I'll pluck anything you want, just bring on menopause!"

No one's listening to me, however. :rolleyes:

Wishing ya cramp-free days soon!

Gazelle 09-03-2008 05:42 PM

Quote:

Originally Posted by lady_express_44 (Post 360802)
:p I think that is what is known as a freudian slip. :p

Cherie

LOL

Pardon me, but your Freudian slip is showing! :o

dmplaura 09-03-2008 05:46 PM

Quote:

Originally Posted by Gazelle (Post 361073)
Pardon me, but your Freudian slip is showing! :o

ROFL!! Hahaha!

Shashi 09-03-2008 07:19 PM

Hi,

I had laser surgery for vaginal carcinoma in situ (cancer which hasn't spread yet) last year. I had a hysterectomy in 2002 and my cervix was removed. My doctor at that time told me that I didn't need any more Pap tests, so for three years, I went without one. My new family doctor recommended having one, so I went ahead and that was when the dysplasia and cancer was found. I'm now a huge proponent of Pap tests after hysterectomy.

The laser surgery was a breeze though. I had no pain, no discharge, nothing. In fact, I almost couldn't tell I'd had surgery. (I was put to sleep for the procedure.)

I'm have graduated from Paps every three months to every six months now because they've all been normal so far. And I hope they stay that way!

Good luck with everything.

Hugs,

Lisa


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