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-   -   Sorry to have to ask for heart support again. (https://www.neurotalk.org/bipolar-disorder/53569-sorry-heart-support.html)

Brokenfriend 09-03-2008 10:58 PM

Sorry to have to ask for heart support again.
 
My family members have their problems,but it hurts so bad to be rejected in the middle of mine. My dad said some bad things to me on the phone. My sister has been treating me wrong. They are going to stop supporting me. This is hurting me so much.

I started screaming today,because I feel so much pain. What they have said keeps going around,and around in my head. I feel dread,and all kinds of bad thoughts are returning that I use to have. I have not felt like this in 30 years,and my family support is lifting,and I'm being abandoned.

Either that,or there are secrets. My sister may be seeing if social services will take care of me. If this is so,I don't know,but it is killing me. I feel so much pain. I haven't felt like this before. It's torture.

I know the verses,and I know how to comfort,but all of what I know is failing me right now. I'm tired,and don't want to continue to go through this. My interests in life are fading,and I am totally stumped.

Social services still haven't provided me with a therapist. They have provided a NP to medicate me,but what they have given me is not affective.

This is the cry in my heart. BF

Mari 09-04-2008 12:20 AM

Dear Friend, :heartthrob:

Sorry that this is hard times for you.

Have you tried the Seroquel? I heard that it helps people sleep at around that dose when you take it at night time.


Mari

Brokenfriend 09-04-2008 01:32 AM

Thank you Mari
 
I've tried it. I cannot determine what it does yet,but it seemed to have caused me to have a deep sleep one night,and I woke up ,and didn't know what was going on. I didn't know where I was,but did soon after. Stuff like that.

The anxiety is still hitting me hard about possibly being abandoned in the middle of my anxiety problems from my own family. My dad basically helped take care of me till 1999. My sister sort of took over. Now she has MS,and says she cannot afford to take care of me. I heard her in the background say,in aggravation,let someone else take care of him. I'm shocked at the way things are unfolding. BF

Mari 09-04-2008 01:38 AM

Dear Friend,

Check with the NP.
I think that the Seroquel has to be taken for several nights before you can tell how it is going to work for you.

When you get your anxiety under control with the help of meds, it will be easier to deal with your sister's meanness.

Really. Focus on the medications. They might be able to change your life for the better.

Mari

Brokenfriend 09-04-2008 02:19 AM

Quote:

Originally Posted by Mari (Post 361360)
Dear Friend,

Check with the NP.
I think that the Seroquel has to be taken for several nights before you can tell how it is going to work for you.

When you get your anxiety under control with the help of meds, it will be easier to deal with your sister's meanness.

Really. Focus on the medications. They might be able to change your life for the better.

Mari

Mari I talked to her about this pain, anxiety,and mania spells that I have,and she said take another 0.25 Mg Xanax. I said that will have no affect. Then she said try Seroquel. She gave me some samples. I cannot feel it working on the anxiety pain/mania. I don't see her again until October. She gave me 12 pills.

It always seems like doctors,and nurses don't know what they are doing with anxiety patients. I've can say this because of all the mistakes they have done to me since the late 60's. I wouldn't wish high anxiety on any enemy. The whole process is to cruel. (Affliction,Doctors,and Diagnosis,cost,stigma)

BF

mymorgy 09-04-2008 06:52 AM

I can commiserate. When my mother was alive and well off she told me let the state take care of me. I have had nothing to do with my sister and her family for a few years. They are well off. She told me we were strangers and had nothing in common. I keep on telling myself that God gives us what we need not necessarily what we want.
You are torturing yourself. I hope the torture can stop. Have you tried klonopin and risperdal? They have helped me. I am being forced to change by my situation and to let go more. I had tried so hard in the first part of my life to achieve security but it was illusive. I couldn't have tried harder. Try to find ways to comfort yourself and keep the faith that things will work out the way they are supposed to
Bobby

Mari 09-04-2008 02:35 PM

Quote:

Originally Posted by Brokenfriend (Post 361368)
I talked to her about this pain, anxiety, and mania spells that I have,and she said take another 0.25 Mg Xanax. I said that will have no affect. Then she said try Seroquel. She gave me some samples. I cannot feel it working on the anxiety pain/mania. I don't see her again until October. She gave me 12 pills.

Dear Friend,

You are on too low a dose for it to help with mania. And it doesn't help at all for mania if you take it 12 times over the course of a few months.
At that low dose it helps with sleep -- but only on the nights that you take it.

How long is you appointment with her?
What do you tell her?

Do you tell her that you have not been able to work?
Do you tell her what you do all day?
Did you tell her how many many years you have been in treatment for anxiety and how unsuccessful this treatment has been?

What's wrong with her? Is she listening? Are you both talking and listening to each other?

Get an appointment with her supervising MD/ Psychiatrist.
NPs cannot write scripts unless under the direct supervision of an MD.

Maybe you need to go to emergency services. Perhaps they have a comprehensive team that will work with you.

Mari

BJ 09-04-2008 08:13 PM

Mari's right, you need proper meds to help you with your anxiety. I'm thinking of you Friend :hug:

DM 09-04-2008 08:33 PM

I can't give you any advice on the meds, etc BF, but I do want you to know that I am keeping you in my prayers. I really feel sad for your situation and just wanted you to know that I care.

{{{{{ Brokenfriend}}}}}

http://dl.glitter-graphics.net/pub/4...zu6fej66g3.jpg

Brokenfriend 09-04-2008 09:09 PM

Thank you Bobby.
 
Quote:

Originally Posted by mymorgy (Post 361412)
I can commiserate. When my mother was alive and well off she told me let the state take care of me. I have had nothing to do with my sister and her family for a few years. They are well off. She told me we were strangers and had nothing in common. I keep on telling myself that God gives us what we need not necessarily what we want.
You are torturing yourself. I hope the torture can stop. Have you tried klonopin and risperdal? They have helped me. I am being forced to change by my situation and to let go more. I had tried so hard in the first part of my life to achieve security but it was illusive. I couldn't have tried harder. Try to find ways to comfort yourself and keep the faith that things will work out the way they are supposed to
Bobby

I've tried the Klonopin,and it didn't seem to help,but I haven't tried the risperdal. Is risperdal like xanax?

My Faith was a little shaken,but I still have it. Thanks for the reply. BF

bizi 09-04-2008 09:51 PM

Dear friend,
forgive me my memory...
are you taking a mood stabilizer?
Is seroquel the only medication that they gave you?
klonipin lasts longer than the xanax so you don't have to take it so many times through out the day. It is really good at controlling anxiety at the right dose.
can';t believe they gave you only 12 pills of seroquel....ugh!
and I jsut think it is inhumane that they have not gotten you a therapist yet.
((((HUGS))))
bizi

Twinkletoes 09-04-2008 09:53 PM

So sorry ((((BrokenFriend)))). You deserve better than that from your family.

Hope you can find some meds that help. Sending hugs and prayers. :hug: :smileypray:

Brokenfriend 09-04-2008 10:20 PM

Mari
 
Quote:

Originally Posted by Mari (Post 361700)
Dear Friend,

You are on too low a dose for it to help with mania. And it doesn't help at all for mania if you take it 12 times over the course of a few months.
At that low dose it helps with sleep -- but only on the nights that you take it.

How long is you appointment with her?
What do you tell her?

Do you tell her that you have not been able to work?
Do you tell her what you do all day?
Did you tell her how many many years you have been in treatment for anxiety and how unsuccessful this treatment has been?

What's wrong with her? Is she listening? Are you both talking and listening to each other?

Get an appointment with her supervising MD/ Psychiatrist.
NPs cannot write scripts unless under the direct supervision of an MD.

Maybe you need to go to emergency services. Perhaps they have a comprehensive team that will work with you.

Mari

She gave me 12 pills to cut in half,and take it when I feel anxiety,and the pain. The pain in my chest from anxiety really concerns me. It hurt's on top of all the anxiety. I stopped drinking in 1981,and the pain developed some time after that.

I was sure that I was having a heart attack,but it turned out to be the anxiety. I don't know anyone else who has this anxiety symptom. It affects most of the middle,to the left side of my body,and goes to the left side of my back. I've worn out t shirts,and sweaters right in the middle of them from rubbing the pain. It's happening right now.

I tell my doctors,and my NP, but they just do not get it. I tell them the other symptoms,and I think that they can only take in part of it,and treat part of it. I tell them everything. Even when I was a teenager,and I had panic attacks,and I felt my throat squeezing in,though it was my imagination,the panic attack made it seem so real. I was playing around with a pea shooter straw,and the pea went backwards. I thought that the pea was still in my throat. This started a chain of panic attacks.

The doctors where of no help,and they didn't know what was going on. It was about 1965. I got over that phobia,and developed more,and more. The anxiety was bad,and the back of my neck shook some times. I had stiffness in the back of my neck in those days that would go up to the back of my ears,and a whole lot of bad sensations. I could go on,and on but you might remember some of these things when I wrote all this out when I first came to the forum.

People have never understood these anxiety manifestations that I have been trying to tell them for years. That's why I understand people who have problems who are not understood. I don't expect to be understood anymore. The road has been long,and the doctors have made to many mistakes. People don't understand,and I see them slowly back away. That's what my sister is doing. She doesn't understand it, and has become hostile. She has calmed down some though. I thought that my Dad understood,but he,and my sister must have talked,and they both turned away from me,and my dad talked very degrading to me on the phone recently.That's how he talked to me when I was growing up. I would think no.no.no. You don't understand dad. Then I realized he just didn't want to hear my problems anymore,and he cast me off,and out of his mind. My sister said one day,"Now you are affecting me!" I haven't tried to to anything to them. I guess my problems are too intense for them. I didn't expect them to decide to cast me away. This makes me hurt with rejection. I can't help this condition. I'm a nice person. I don't know whats going on. I am a moral,desent person with good conduct. I just don't know what to do. BF

Brokenfriend 09-04-2008 10:44 PM

Thanks Bizi
 
Quote:

Originally Posted by bizi (Post 362000)
Dear friend,
forgive me my memory...
are you taking a mood stabilizer?
Is seroquel the only medication that they gave you?
klonipin lasts longer than the xanax so you don't have to take it so many times through out the day. It is really good at controlling anxiety at the right dose.
can';t believe they gave you only 12 pills of seroquel....ugh!
and I jsut think it is inhumane that they have not gotten you a therapist yet.
((((HUGS))))
bizi

I'm on a very low dose of Xanax(The generic form) They give me 5, 0.25 Mg a day. This dose doesn't put a dent in my anxiety,but it's better then nothing. I'm on 250 Mg.s of Luvox for the OCD. The seroquel is a anti psychotic. I have to take Imodium,and Pepsid,because these conditions bother my digestion.

The Seroquel is 50 Mg.s,and she said break it in half to take it ,and see if it helps me when I go into one of those anxiety,mania events. There are so many sides to this illness. I feel a little paranoid sometimes. So She actually gave me 24 doses. I guess I can call her to prescribe me more. I don't know how much it cost. BF

bizi 09-04-2008 10:50 PM

Quote:

Originally Posted by Brokenfriend (Post 362019)
I stopped drinking in 1981,and the pain developed some time after that. BF

WEll maybe you should start drinking again....:eek:
Seriously....I don't know...we self medicate when doctors don't listen to us or treat us right...or just to make the pain go away. Alcohol is a good drug unfortunately is addictive as well so you have to be careful.
bizi

Mari 09-04-2008 11:31 PM

Quote:

Originally Posted by Brokenfriend (Post 362038)
I'm on a very low dose of Xanax(The generic form) They give me 5, 0.25 Mg a day. This dose doesn't put a dent in my anxiety,but it's better then nothing. I'm on 250 Mg.s of Luvox for the OCD. The seroquel is a anti psychotic. I have to take Imodium,and Pepsid,because these conditions bother my digestion.

The Seroquel is 50 Mg.s,and she said break it in half to take it ,and see if it helps me when I go into one of those anxiety,mania events. There are so many sides to this illness. I feel a little paranoid sometimes. So She actually gave me 24 doses. I guess I can call her to prescribe me more. I don't know how much it cost. BF

Dear Friend,

I don't think that Seroquel works like that. It has to be taken everyday at a high enough dose. 50 is low -ish. 25 is very low and helps with sleep but not the other symptoms you mention.
I'm not an expert and I do not have personal experience with Seroquel but her way really sounds dumb to me.
Why does she have you breaking it? Is she giving you samples?

Here is some info on Seroquel:
http://www.nami.org/Template.cfm?Sec...ContentID=8190
Quote:

How long does it take for Seroquel® to work?

It may take at least 2 to 3 weeks in order to see some improvement in your symptoms. The full benefit of quetiapine may not be seen for at least 4-6 weeks.
It does not work right away like Xanax. A person has to take it a little while to feel the benefits.

Seroquel is an expensive drug. It is not available in generic in the US.


You need to get those people to treat your anxiety according to accepted protocols. You need to find a way to get them to change, or else get someone else to treat you.

Also, stop waiting patiently between appointments.
Call them on Friday and tell them that you are in a bad way and need more help.
Ask to see them.
If they won't, go to emergency services.

Find a way to get proper treatment. It will be worth the fight.
People can sometimes improve drmatically with the right medications. You deserve the chance to get better.


mari

mymorgy 09-05-2008 06:32 AM

risperdal is an antipsychotic and it helps with obsessive thinking...
Bobby


r
Quote:

Originally Posted by Brokenfriend (Post 361978)
I've tried the Klonopin,and it didn't seem to help,but I haven't tried the risperdal. Is risperdal like xanax?

My Faith was a little shaken,but I still have it. Thanks for the reply. BF


bizi 09-05-2008 06:14 PM

not enough medication....They said try 25mg of seroquel,:mad:
some people take 200mg at night to sleep.
a friend of mine takes 50mg 3xday for her anxiety.
this is not acceptable.
Risperdal does sound like it may help you.
bizi

Brokenfriend 09-05-2008 11:39 PM

Bizi
 
Quote:

Originally Posted by bizi (Post 362040)
WEll maybe you should start drinking again....:eek:
Seriously....I don't know...we self medicate when doctors don't listen to us or treat us right...or just to make the pain go away. Alcohol is a good drug unfortunately is addictive as well so you have to be careful.
bizi

I have to laugh.Silly Silly

I was a alcoholic,and a son of a alcoholic,and it was harming my liver.

Thanks for the advise anyway. Still laughing. Free from alcohol addiction for 27 years.

keep giving me ideas though. I have to take the crap the doctors give me. :D BF

Brokenfriend 09-05-2008 11:49 PM

Mari
 
Quote:

Originally Posted by Mari (Post 362049)
Dear Friend,

I don't think that Seroquel works like that. It has to be taken everyday at a high enough dose. 50 is low -ish. 25 is very low and helps with sleep but not the other symptoms you mention.
I'm not an expert and I do not have personal experience with Seroquel but her way really sounds dumb to me.
Why does she have you breaking it? Is she giving you samples?

Here is some info on Seroquel:
[url]http://www.nami.org/Template.cfm?Section=About_Medications&template=/ContentManagement/ContentDisplay.cfm&C


It does not work right away like Xanax. A person has to take it a little while to feel the benefits.

Seroquel is an expensive drug. It is not available in generic in the US.


You need to get those people to treat your anxiety according to accepted protocols. You need to find a way to get them to change, or else get someone else to treat you.

Also, stop waiting patiently between appointments.
Call them on Friday and tell them that you are in a bad way and need more help.
Ask to see them.
If they won't, go to emergency services.

Find a way to get proper treatment. It will be worth the fight.
People can sometimes improve drmatically with the right medications. You deserve the chance to get better.


mari

Thanks for the input. I didn't know it was expensive. I've told both the doctor,and the NP that I'm running out of money. I wonder if they hear what I'm saying. Thanks for letting me know. She didn't tell me. BF:thud:

Abbie 09-05-2008 11:49 PM

Hi BF...

Just thought I'd share my experience with Seroquel.

I have been on Seroquel now for about 5 weeks... I started at 50mg for 4 days, then 100mg for 4 days, then 150 for 4 days, then 200mg for 4 days, then 300mg for 4 days, and now I'm on 400mg per day.

I will say that I am no longer on the BIG rollercoaster... I've moved to the Midsize rollercoaster.

I haven't had a what I call a zero to super freakout moment since hitting the 200mg mark. Which it totally amazing to me.

I will also say that Seroquel knocks me out at night... I wouldn't say that I am getting a restful sleep but I am sleeping.

I hope you find something soon to help you out...
:hug:
Abbie

DiMarie 09-06-2008 12:14 AM

Quote:

Originally Posted by Brokenfriend (Post 361978)
I've tried the Klonopin,and it didn't seem to help,but I haven't tried the risperdal. Is risperdal like xanax?

My Faith was a little shaken,but I still have it. Thanks for the reply. BF

BF, I feel so bad for you feeling alone and not supported. Sometimes it is just better to take it from the hands of those in the family because even if they want to help, they are not educated or trained to help. You really can't tell them how to support you. You say support they think money.

If I were you I would ask SSDI or an agency to step in as your care taker, and also with this much mixed up no one med or simple answer, why not a short stay program for pain and emotional assistance. Get the overhaul and special doctors to control your meds from every stand point.

Family can just be too close to the situation to help. I had to do everything for my daughter, yet she resented it so much. I have so much guilt that I was not able to do more to protect her....Even with the hospitalization though the doc;s out of town did not get, treating her physical pain would reduce the emotional strugle she had.
I will say a prayer, but do some phone calls and find guardianship programs to help advocate for you.
Di

Brokenfriend 09-06-2008 12:17 AM

Bizi
 
Quote:

Originally Posted by bizi (Post 362541)
not enough medication....They said try 25mg of seroquel,:mad:
some people take 200mg at night to sleep.
a friend of mine takes 50mg 3xday for her anxiety.
this is not acceptable.
Risperdal does sound like it may help you.
bizi

They keep under medicating me. I have a pain in my chest from anxiety every day now. I have become depressed......................I THINK THEY WANT ME TO SUFFER.....................I'm being silly................They cannot hear me. I should bring them a hearing aid the next time I see them. The medicine is out there,but they don't want me to feel the affects of a proper dosage. A Milligram of Xanax a day is not helping that pain at the top of my stomach. It's like giving me a baby aspirin for a migraine headache. They gave me some strong medications in the 1970's. It beats the heck out of me as to what they are doing. I've done every thing I know to heal,and to become well enough to function,and if these doctors won't listen to me,I cannot do anything else but suffer at my wits end. I'm out of answers. BF

bizi 09-06-2008 12:22 AM

hugs to you
(((((HUGS)))))
bizi:hug:

Brokenfriend 09-06-2008 12:34 AM

Bobby
 
Quote:

Originally Posted by mymorgy (Post 362165)
risperdal is an antipsychotic and it helps with obsessive thinking...
Bobby


r

Does Risperdal work right away,and does it come in generic form? I don't have insurance anymore. I dropped the Cobra Insurance. It was to expensive for me after paying for it many months. BF

mymorgy 09-06-2008 12:37 AM

I think it just came out in generic form. I buy it generic from Canada. I started on it over seven years ago and I think it started working fast.
Bobby

Brokenfriend 09-06-2008 12:42 AM

Quote:

Originally Posted by DiMarie (Post 362791)
BF, I feel so bad for you feeling alone and not supported. Sometimes it is just better to take it from the hands of those in the family because even if they want to help, they are not educated or trained to help. You really can't tell them how to support you. You say support they think money.

If I were you I would ask SSDI or an agency to step in as your care taker, and also with this much mixed up no one med or simple answer, why not a short stay program for pain and emotional assistance. Get the overhaul and special doctors to control your meds from every stand point.

Family can just be too close to the situation to help. I had to do everything for my daughter, yet she resented it so much. I have so much guilt that I was not able to do more to protect her....Even with the hospitalization though the doc;s out of town did not get, treating her physical pain would reduce the emotional strugle she had.
I will say a prayer, but do some phone calls and find guardianship programs to help advocate for you.
Di

Hi Di. Im in the SSDI waiting period. I got turned down two times,and now I'm going to their court with a lawyer in about 5 months. I've been waiting,and waiting.

Are there any caretaker agencies? I don't know of any except for Social Services. Thanks. BF:grouphug:

Brokenfriend 09-06-2008 12:45 AM

Bobby
 
Quote:

Originally Posted by mymorgy (Post 362803)
I think it just came out in generic form. I buy it generic from Canada. I started on it over seven years ago and I think it started working fast.
Bobby

Thank you. I don't see the NP until October. I'll ask her. BF

mymorgy 09-06-2008 12:49 AM

I have tried other antipsychotics but this is the one that works for me...the others either gave me side effects and also didn't really help the obsessive thinking.
Bobby

Brokenfriend 09-06-2008 12:49 AM

Thanks
 
Bizi,and Mari,I was being silly in some of my answers. I hope that none of my remarks where taken in a wrong way. I was being silly,and thanks for your help. BF:hug::hug::hug::grouphug::grouphug::grouphug:

Brokenfriend 09-06-2008 01:00 AM

Thanks Bobby
 
Quote:

Originally Posted by mymorgy (Post 362809)
I have tried other antipsychotics but this is the one that works for me...the others either gave me side effects and also didn't really help the obsessive thinking.
Bobby

I wish that the doctors would think really deeply,and consider the medicine that they give me,because what they are giving me,are not putting a dent in my anxiety,and that pain in my chest. It's not a discomfort. It's a pain in the upper part of my stomach area. It was so bad the other day,it was a ring of pain around my chest. I wish they would do something about that. They never ask how is that pain in your chest? They never ever ask. BF:hug:

Twinkletoes 09-06-2008 01:00 AM

Quote:

Originally Posted by Brokenfriend (Post 362810)
Bizi,and Mari,I was being silly in some of my answers. I hope that none of my remarks where taken in a wrong way. I was being silly,and thanks for your help. BF:hug::hug::hug::grouphug::grouphug::grouphug:

Silly is a good thing! Sure beats being depressed!

I hope you get the help you need very soon. :hug:

Brokenfriend 09-06-2008 01:11 AM

Thanks Twinkletoes
 
Sometimes I get silly in my sentences,and then I go,YIPS. Did they take it wrong. I assure people it's my sense of humor. Some people take me seriously,and I tell them that's a joke. My jokes may be affected by my illness'es. This was another one of my jokes. Oh me.:hug:

bizi 09-06-2008 01:34 AM

I am not sure what you are referring to.
You are fine friend...
always are for that matter.
bizi

Brokenfriend 09-06-2008 01:49 AM

Thanks bizi
 
I think I have a fear of being misunderstood. BF:hug:

mymorgy 09-06-2008 04:39 AM

http://www.needymeds.com/
this site gives you information where you can get drugs free from manufacturerers

Brokenfriend 09-06-2008 11:10 PM

Thank you Bobby.
 
Thats a interesting site.

I've been having more headaches then I can ever remember. I have one now. It's been a month of headaches,on top of the anxiety.

I've been taking advil,but It doesn't seem to help to much.

I'm going to get a ice pad. I think that I will be back this morning. BF:Doh:

Mari 09-06-2008 11:50 PM

Dear Friend,
Maybe sleep will help the headache.
Feel better soon.
Mari

Brokenfriend 09-07-2008 02:08 AM

Thank you Mari
 
I have headaches after I've slept. I'm just to worried. I'm loosing all family support. That's a new problem that I never thought would happen. I'm stumped.:Sigh:


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