Executed feeling
 

Last night was the 5th or 6th night I had a dream and in it I was being Electrocuted. In my dream its as painful as heck-----It starts in my feet and works up-----As most times in the dream I am on duty and there is a broken wire causing part of the floor to be live--When I realize its to late----I am really thinking that these are seizures now----My dream-Its just explaining the pain to me----My dreams do this for most of my night ills, for some strange reason----

I googled sleeping seizures and did not find anything to match.....

Both arms still feel odd and shaky--and I thru my neck out.......

Any ideas?

sorry for asking tantas preguntas (so many questions)

THANKS

You really are having a rough time of it Pete.:(:hug:

I dont have any answers but wanted to send my best. Are you going
to the Hospital??? How is the headache???? I hope your new year
will be the one where you get the answers and the help that you need.
Hang in there.:hug:

Electric shocks can be caused by neve pain/lesions on the spine too, I get them from my head all the way down to my butt, it is almost a pulsating shocking sensation, so may not be seizures at all but nerve dysfunction. And since it starts in your feet it almost sounds like some sort of neuropathy.

I have had a similar feeling, but it goes on in the back of my skull. It may be related to L'hirmettes (sp) for me ... although it does not travel down my body, but seems to occur within my brain. It only happens when I am sleeping too, and I have wondered if it is some kind of seizure.

It only happens once in a blue moon, maybe 2 - 3 times over a week, then I don't get it for months or years. :confused: I have never been tested because I figure if it was a seizure, it would keep happening. :confused:

I would mention this to the doc if I was you. :hug:

Cherie

I would definitely mention this to your doctor. Does your wife notice any unusual shaking at night when your sleeping? I always feel Jim's spasms and such because we sleep in the same bed. It's not unusual to have seizures with ms but only a doctor and additional testing can diagnose that. I would also not google symptoms if I were you and bring that to the doctor. Look on sites that doctors use such as the New England Journal, etc. Jim's doc wont even consider something unless I looked on reputable sites.

She probably notices less and less---

Thanks----I am at wits end------I watched my Mom suffer so with her Lupus---And everyone back then--The 70's just shrugged their shoulders-----


I am at the end of my pain Meds---And Headache meds---------I feel as id I could roll over and die-----So I will just---I dunno---for the next couple of days-------My shoulder doc can not give me headache meds----Like who the f wrote these rules-------Pre schoolers?

Thank God my Weapons are locked away from me----I am soo teed off------------


I am slowly losing my mind---1 ache at a time-----1 nitwit Doc at a time too.

sorry for constant complaining---ughhh

Have you noticed any numbness?

It might be lack of circulation. Or you could be pinching nerves while laying down. Back problems?

Monkey trying to think outside the box. :o

I have a back condition. I can wake up with zingers zapping me if I have been in one position too long.

You keep old Sparky locked up ok? :wink:

Wishing you a zap free free night. :hug:

PJames, I am urging you to go and see someone. Your not in the right place right now. Seriously, you need to go now before it's too late. Find a good friend, loved one or anyone to listen. :hug:

PS: I think your wife may notice more than you know. I have never forgotten when Jim was in his dark place. It was a hard time for all. Your pain affects not only you but your loved one's as well. Talk to her and don't stop. Trust me on this one.

What Sandy said, Pete....Please.... you are frightening us. We care about you..:hug:

They wasted my time going thru all this BS to come up with---I don't have a back problem---

I am sorry I am worrying you----I am just as awesomely down as one can get---In as much pain as one can be-----My atty and wife tried in vain to get me in to an appt today---No luck-----So I have one option for pain meds---That is the ER----I said I was developing a phobia to the docs--ER included--------

My ego does not like how they try to play God----Sometimes I get a salt of the Earth Doc---Other times---Huh------Put it this way---If I could I would lock some Docs for no good reasons---Just for being a Horses hind Quarter---You know----------

I danced this dance to no good and the same ending soooooooooooooo many times----I really have a hard time dealing------plus when the pain is so bad you cant stand----Your head is banging not the worst---6 outta 10 right now---But add the other pain tightness and discomfort----We got a 15 outta 10---------Its hard to pretend its OK-----I bite the life outta my pens

*mailing collection of old pens to Pete to chew on* ;)

Please get yourself to the ER and let us know how it goes. Hope you get a good doc that will listen and help. :hug:

I agree with Twinks. Go to the ER and if you don't like the ER by you go farther to one you do.

:hug::hug::hug:Pete:hug::hug::hug:

I agree with everyone else--go to the ER and get yourself checked out, please!!

Lordy I feel like a crazy man----Just a question---do you think I am losing it. My mind?

Maybe I can talk my wife into bringing me late at night or very early in the morning---Like a fishing trip, only different--This time I am the fish and the bait---The doc well he is fishing me of course----

Honest opinions are welcomed since you all have walked this turf well before I

Crazy? Well define crazy....

;)

The stuff you are saying is all stuff I have said, in so many words. I saw so many docs that did not a dang thing to help me. If I had seen them on fire, I would not have pee'd on them to put the fire out.

:p


So how can you go through that and not feel a little crazy? It's not a normal situation.

I do not get my hopes up that the next doc IS going to help, but yet, I HAVE to keep going because it still hurts. I have to keep trying.

All of them are not sadists, although a lot of them seem to be. Odds are you have to run itno a decent doc sooner or later, one who can do something for you.

Mine is a pain doc - those are THE only ones in Ohio who will rx any pain meds at all these days. All the docs are so afraid the feds are watching what they rx they won't give you anything.


The only ones who get screwed are people like us.

:hug:

I really hope you get some help.

Ok I told u I was gonna PM this but I'm gonna post it here case anyone can add to something I forgot. For when you go to the neuro on Tues........

Take a written or typed timeline of your symptoms short to the point, dates they began, are they still ongoing?

Doctors have a short period of time to digest alot of info and try to diagnose you, Give him the paper and let HIM do the talking..question asking.

take a list of your current medications and how many you are taking include if that medication works for you or not.

I already told u this but....Do NOT NOT talk about how incompetent all your other doctors are or have been.

If you have CD's, other tests results take those too.

Be patient, stay calm, and keep an open mind!

When the neuro asks you what you are there for give him a BRIEF synopsis of why and hand him the paper. Remember the more u talk, the less time he has to actually try to figure out the problem.

you are not crazy..you are frustrated with the pains and aches you are having and sometimes no answers to them.

YOU should go to ER, that way you can get the meds you have been on to help. Then as Sandy said you need someone to talk to...so talk away here if need it..talk with wifey, talk with all ....

the feelings can be so normal with frustration! We just dont want you to get past the frustration, you are wonderful remember that!!

Glad you shared the feelings,

I am having issues right now not with dreams, but like total limbs all numbness overnts a LOT!! I started a new dosage of prednisone taper to see if it kicks some of this away! I am undx, so with the pain and frustration, I have many a days when I want to scream it out to all....

hugssss and remember we are here, but also if you need to get someone for help dr wise too...talking is good medicine..hugsss,sarah:)

:hug:I think Renee gave you some good ideas Pete.....I wish you the best of
luck at the docs......I hope he is a good one. If you cant find one you
like........we have some good docs here in Western Mass. you are not
too far away.........gentle hugs to you...:hug:

I agree with bgb that some events, especially pain, can drive you to feeling like you are going crazy. :mad:

Have you had any counselling, Peter?
I think you need a safe place to vent, face to face, to learn some coping skills to get you through this. I really don't think ANYONE knows intrinsically how to deal with such adversity and challenges. :(

Have they done neuropsych testing?
I think this testing might show the stress that your condition is causing you, and provide objective evidence which may help your case.

Cherie

Lady express, that's a good idea.

Pete, I actually did go for councelling for a while. I rally fely like I was losing it and asked quite bluntly if that was the case, and if my pain and symptoms were all in my head (as the other docs would have me believe).

I had to do something, because I had gotten to such a state that I could not talk to a doc without panic or rage. I broke down before and after every appt.

I had one psych tell me I was not a hypochondriac, that the stress of what I was going through was more than I could deal with, that odd illnesses are incredibly tough to dx, that's all. It was not my fault, but not all docs can tell what is going on either.

That was all I really needed.

Incredible how a few words can change everything.

I had the same symptoms, the same pain, the same limbo, still no docs helping, but my attitude changed and everything else has been easier to deal with.

And now, when I talk to docs - more calmly, rationally - I get somewhere with them. If I run into one who can't or won't listen or help, it's not me, it's him, and I calmly walk away. I don't lose it anymore. I just move along to the next one.

You just need to believe the situation is THAT unreal, you need to be validated, to know there will be a solution and you will be okay somehow. Then you WILL be okay.

Talking to us can help, but talking to a psych could be the best thing you've done for yourself. It was for me.

I went too, bgb, and I chose a pyschiatrist because they are paid for by medical here, and they are MEDICAL doctors first. I had so many medical problems, that were obviously affecting my state of mind, emotions, etc. and I knew he could pick through what cancer/MS-related vs what might be psychological.

I think I cried through entirely every appointment for the first year (easy gig for him! :p) but I got it all out, and he was able to coach me through some very difficult times.

It was the best thing I ever could have done for myself at the time, even though it was hard to admit I needed to.

Cherie

Well, being that I'm a therapist, I strongly support going to therapy. It can be extremely helpful. I'm not saying your symptoms are psychological - but just even having such terrible physical problems can wreak havoc on all of you...including your mind.


Pete - I hope you can find someone to talk to that might be able to help.

If you're interested, maybe I can refer you to someone I might know in your area...


~Keri

depression and pain
 

Pete,

you don't sound crazy, you sound depressed. Pain, understandably causes depression. Depression causes a very real change,(usually worsening) of your pain.

An extremely low dose of Prozac helped me more than anything else I've tried. I hope you find something that helps you.

Katty

I will take you up on that Kerri--I just got outta the ER----I have my shoulder Doc Monday---I have the Neurologist Tuesday--

The ER was understanding--Gave me 3 day supply of pain Meds----the doc did this thing where he crossed my leg--it had --bad word--caused pain in my hip--this concerned him----I- We asked why--He said nothing----

What does that mean---Or was he baiting me?

Thanks for all the GREAT help---luv you folks soo much

Sounds like you're headed in the right direction,Pete. Hang in there and good luck at the doctors this week. :hug:

Tuesday I go to see the Neurologist--In Lexington MA--Its outta Beth Israel Hospital in Boston-----As of this moment----OMG the pain level is 11 outta 10----

Anyone remember that line in This Is Spinal Tap----That was my Fav cult type movie when I was young--Never knew what a Spinal Tap was--Never cared----Kinda Irony in that-----Ya the pain is definitely an 11---its one over 10..

be well and thanks

Praying you get some answers ,Pete and find out the cause of your pain so it can be treated.

Good luck tomorrow Pete. I hope you get some answers and help.:hug::hug:

Went to the Nuero---He is one Heck of a guy--Unique and does not mince words---Anyone from Mass who is in the unhappy Nuero Position should try him----

He Changed me up Med wise----I mean like everything-----He put me on Baclofen---H/ S---! And Methadone.

Just from yesterday after one dosage--I noticed a change---I actually felt somewhat human----Truth--The Methadone worries me a bit-----It seems to be the high end--But I guess thats where I was-----So I guess if I take it as advised--It should be fine:eek:---

I am much closer to a DX---Which is good------So--I guess I really needed a bit of understanding-Not the humiliating treatment of my PCP--Who was once OK--I thought-----I am lucky in a way because I did see this Nuero before the different medications I was on----So he knew my SX's prior to me taking any meds.....Anyway--I am looking forward to life---Especially if this change for the better lasts----Not saying I feel like me 2 years plus ago----But I feel a lot better than I have since? Wow! I can't remember!!---Life changes when your pain goes from an 11 to a ? umm 4?-----

Again if it stays close to this---I will be able to live a life again---And that is great---

Wow--Good change--Good news---Who woulda thunk?

Sorry prior for being a freekin' cry baby---I am really not------really.

Yay.........good news Pete. Im so happy you have a doc that could help
you!!!!!:hug: We take turns being cry babies here....thats what friends
are for;):) Im am very happy for you....you "sound" good.:) :hug::hug:

Is it the norm' to get a quick bodily response from the medication?

As I spoke to my Mother--Who Has Lupus--She just said--If you feel well that is great---But take one day at a time---And be happy with the days you are well----Something like that anyway---


BTW--I posted in the headache section---About an everyday headache------Note* the Nuero did not give me a specific headache med------Now here in Worcester MA---Its 28 Freezing rain----Cold-Raw---I would have the worst body aches and headache today-----And I DON'T-----He actually said---He thought this would take care of that Problem----And Day 1-1/2 it HAS:)

Sorry Now if I seem to be bragging---I am just shocked at the sudden positive change-------

I WONT ASK----If it will last-----I guess that is what my Mom was alluding to.......

This was one cool Miracle------I was not in the prayin" mode-----Who ever had that connection with Above for me---A Big Thanks

Ahhh, our prayers have been answered. Your Mom is a very wise woman..:hug:


BTW, I love your Signature line.

I'm so glad you got an understanding neurologist and that you're feeling better physically and spiritually, Pete. I can feel the sense of relief in your post. You'll continue to be in my prayers.

:eek:1 more question I think--Then I will be done here---Well this post---


Is it normal---I went 2 years plus in incredible darkness--Because of the illness-----These new Meds Make me feel like a new man----

OK the question-----Is I have been doin a ton of crying--------Is that just the emotional release-----of soo long?

Now that I feel better---I see so much pain out there-----I really was just inward focused for so long----

A quick history---I was one of the very few Christians--Devout in my Dept---And Actually tried to help some of the Bad Guys------

It really feels like I spent the last 2 years under a rock--------I love life again----care for people again-----Umm--I was actually able to have a conversation with my wife-----Past 6pm:eek:

Am I just totally bizarre---Or is this normal for people---


Last question on this thread----:grouphug: thanks---

Thank goodness they have helped with your pain. :hug: Baclofen was a lifesaver for me when I had a rough patch from pain and spasticity for a couple of years.

Nobody should have to live in pain in this modern age, we have medicines that can help almost any kind of pain. It made my day to see your last few posts. :hug: :)

I'd say it's mostly relief and appreciation.

Sometimes we have to get angry to get through the really hard times, and when that emotion is on the top of the pile, it's hard to experience any other.

So glad this is working for you Pete! :hug:

Cherie

First of all understand that pain can make you feel crazy. I take 100 mg of Tramadol every morning, just to get to work. That is a mild narcotic. I take ibuprofen several times a day. When the pain is really bad I take more Tramadol, however I pay for it with terrible constipation and dehydration. I was diagnosed in April of 2007 and started taking pain meds in November of 2007. The doc started me on Naproxen, it did nothing. Honestly you sound like you might benefit from a mild antidepressant. I resisted that, however have been on a mild dose of Zoloft since October and feel so much better. I think it actually helps with the pain. Be careful however I went on Cymbalta for a six week period, felt AWESOME for the first month. More energy and no pain, no pain,no pain, did you hear me. I thought I had found the magic potion, then all hell started to break lose in my bowels. I had tan stools, suffered from jaundice and when I checked and found that I was experiencing terrible side effects. I am not off of that thank God. Give yourself a break and forgive yourself. Humor helps. Take care.