Anyone know a GOOD, NICE RSD / CRPS doctor in Houston or Texas?
 

:)
Howdy from unfortunately an old school RSD CRPS vet (although we have done much better than so many others we have know, so i am thankful). For reasons i can't go into we lost our old doctors. Does anyone know any doctors in Houston, or anywhere else in Texas, with good RSD experience that they can recommend to take over treatment?

Thanks more than you can ever know.

Wishing y'all peace, love, and pain-relief,

Possum

Hope this helps
 

I have been trying to compile a list of doctors mentioned by people who have RSD/CRPS. In my search someone mentioned Dr. Gabor Racz from the International Pain Institute in Lubbock, TX and also a Dr. Miles Day who they said was in the top 10 doctors in the treatment of CRPS. They also have a Physical Therapy Clinic right next door who specializes in the treatment of CRPS/RSD. I dont know what treatments they support, but the person said that these doctors were excellent and listen to you.

Hope you find a new doc that you like. I highly recommend Dr. Donald Rhodes in Corpus Christi, TX. He uses a machine called a Dynatron STS & knows more than any other doctor I've ever met about RSD. Let me know if you have any questions.

I highly recommend an office visit with
Dr. Hassan Chahadeh

713-802-1511

He has been treating me for over 4 years. I woke up from my third lower back surgery w/ RSD. It has been a nightmare but I would be so much worse if it wasn't for his compasionate team @ the Katy FWY office.
I hope this helps,

John B.

After going into Texas Childrens hospital on crutches and leaving in a wheel chair, we found Dr Timothy Rand in Tomball. I cant write enough great things about him.

RSD Doctor in Houston
 

Seriously? Dr. Chadadeh is "compassionate"?? I found him to be an arrogant *** with a "God Complex" the worst of any doctor I've known. Rick, the PA (physcian's assistant) was nice, personable, but liked talking more than listening so often got things wrong (and Rick did all of the office visists except for the very last when Dr. Chadaheh took over on a busy day and had everyone's charts already noted and prescriptions written out so that he could get a patient in and out of the office in less than 10 minutes - that visit was the last straw for me, because I had started a completely new symptom, allodynia and hyperalgesia, and wanted something that would help with that - either a change in meds, or an increase of dosage) Dr. Chahadeh refused to listen to a single word, before I finished a sentence he would say "have surgery on your shoulder" to my complaint of worse pain in my shoulder (I have a tear in the rotator cuff, but not severe enough for surgery according to my orthatpedist) or "have an MRI done on your lower back" when I complained of the burning sensation all down my right side (saying that a "pinched nerve" would cause that - BS!! - and he repeated it in a voice dripping with sarcasm and appalled that a mere human would question his word). Since I could not go on with my current medications and dosages I started looking for another Pain Management doctor.

Ashley, his nurse, is a complete sweetie and was one of the reasons I stuck it out with him for so long - she, at least, could keep straight a person's symptoms and meds). In fact I didn't even see Dr. Chadadeh until the first "procedure" was set up in his hospital - a Stellate Ganglion Block.

Dr. Chahadeh came by my bed for a VERY few brief moments, didn't listen to what I had to say (which was the miscommunication Rick had made, that the accident I had that caused the RSD happened three YEARS ago, not three MONTHS ago. As most people familiar with RSD know (and which an SD specialist doctor *should* know), is that there isn't any cure for RSD that isn't performed within the first 3 to 6 months after the precipitating occurrance.

When the Stellate Ganglion Block didn't immediately cure my RSD he decided then and there that I didn't have RSD and proceded to schedule other "procedures" that had nothing to do with RSD - three steroid injections into my cervical spine, then a facet joint ablation - none of which worked, of course. So then since his miraculous healing abilities didn't work, he then labeled me as a drug-seeker and refused to change or increase my medication. Was, in fact planning on *Decreasing* my medications and dosage.

At which point I found another pain management specialist. He may not specialize in RSD, but he is at least willing to see his patients in the office rather than for the first meeting to be in the hospital.

Hugs,

CatNipped

Dr. Rhodes in Corpus Christi.
 

Dr. Rhodes has been successfully treating RSD/CRPS and other neurological disorders for 17 years. Depending on your condition, it can take some time, but he is just now getting prototypes of a new machine (an update over his previous machine) that is faster, better, and cuts down on return trips for updates. His treatment is non-invasive. I am one of his grateful patients.

DEFINITELY check out Dr. Krusz. He is in Dallas, a Neurologist and totally thinks outside of the box. He specializes in Ketamine and other infusions and his office is in a house vs. a medical building (they think that promotes a more relaxed environment). I just got back from a 4 day Ketamine infusion and I can't say enough about their entire staff. In fact, I spent over 2 hours with Dr. Krusz during the initial consultation. His phone number is 877-4pain44. It was very easy to make an appointment. However, they don't accept most insurance so you'll have to pay out of network...it's totally worth it though! This man is brilliant, compassionate and wants to help.

Dr. Krusz is my and my daughter's doctor!! I was just going to recommend him. He is absolutely amazing. Many of you know we just moved to Oklahoma and I have been looking for a doc closer to us but alas we have been making the drive back down to Dallas because Dr. Krusz is so amazing! We both have had great results with the ketamine infusions too!

Small world!! I just wish the ketamine worked for me.

I work for a major hotel brand and there is one located right down the street from his Dallas office. I can get you the friends and family rate the next time you go down there if you'd like...if you are interested just let me know. Thanks.

Wow Tiff! That would be amazing! We just spent a week there the week before last getting the ketamine infusions for my daughter. They didn't work this time and she is still in pain. I am calling them tomorrow to see what we need to do next. The hotel gets pretty expensive after a while. I don't have RSD but I have a bladder disease that is kind of like RSD in the bladder. I started seeing Dr. Krusz almost 2 years ago and talked to him about my 15 year old daughter who has RSD. She has been seeing him about 6 months now. After her first visit to him she walked out saying "Wow! He is brilliant"!

I said the exact same thing! I was there the week before you. Too bad we missed each other...maybe next time. I'm sorry to hear about your bladder problem as that can't be fun. I'm new to this whole board but feel free to pm me and I will give you directions on how to get the discount. It's very easy! Thanks.

Terri
 

Hey, was wanting to see the doc who does the STS. My problem, I called the office and they require you to purchase the unit at your first visit for a total of 4500. That is way beyond my means. The gal said they dont' work with insurance for these things. That I'd have to do that on my own. my primary does not cover the device. Not sure if Medicare B will pay for it either. I can't take 99% of the pain meds on the market because of concurrent diagnoses. Sigh am wondering how the avg joe can afford the treatments.
Deb

Question about your daughter
 

Hi! I just got Dr. Krusz's name from Dr. Schwartzman's office in PA. I had called to see if they knew anyone in Houston or Texas. My 16-yr-old son was diagnosed with RSD in November. He's had two nerve blocks which were successful but only lasted a few days the first time and almost a week the 2nd time, which was 2 weeks ago. But his pain took longer to come back each time and wasn't as severe. It was off the scale before, and he was taking 8 Vicadin a day and Neurontin. I was wondering if you would mind sharing info about your daughter. Did she have any nerve blocks and were they successful at all? I'm so sorry to hear that the ketamine infusions didn't work! Also, are you all closer to Dallas? I sure would like to find someone who does that in Houston. Sam's pain management dr. is an anesthesiologist at the Baylor Clinic of Pain in the Neurology Dept. We like him a lot, and he may do ketamine infusions. We go see him again this Friday.
Thanks for any info you wouldn't mind sharing.

RSD Doc in Houston
 

We were recommended to take our son to Dr. Phan at the Baylor College of Medicine Pain Management Clinic at the Medical Center in Houston. We like him a lot. He's very young, but he knows what he's talking about most of the time (he did recommend ice, and every post I read says that's a no-no). But he's very positive and encouraging and he listens to us and our son, who is 16. If you hear of anyone else, please let us know. Our son has had 2 nerve blocks which were successful but only lasted several days instead of the 2-3 weeks Dr. Phan had predicted. We're going to see him again this Friday.
God bless.

Can you go down for an initial consult with Dr. Krusz and then stay with your doctor in Houston? That is what I did. I gained a ton of knowledge from my 2 1/2 hour meeting with him plus I was able to try ketamine for 4 days. Or, know that he does offer phone appointments too so you don't have to go into his office every month. He is a fantastic doctor and I would highly recommend him!

good rsd dr
 

In answer to your inquiry regarding a good rsd dr, I wish I could find one who specializes in rsd in tx. In houston there is a Dr. Edmonton who adminsters the ketamine treatment, but he is pretty picky who he takes. I tried to get an appointment with him and he would not take me. I'm still looking in the state of Tx. There are several in Florida, Dr Masood Hashmi and Dr. Anthony Kirkpatric.

This is my OPINION
 

We went there, got a bank loan to buy the equipment, did everything exactly according to directions with zero results. We were not offered our money back. After trying to get a refund, and writing about our experience to other inquiring patients, we got a legal letter from Dr Rhodes threatening legal action. Nice, huh?
So, according to legalese, I can state my OPINION. This treatment did not work and was a total waste of money and most importantly HOPE. We drove down there based on the fact that his website that he created promised 90% pain relief or better to 90% of his patients. He also told us to bring along my autistic son for treatment as well. Thankfully we declined that at least.

Really?!
 

In reference to the aforementioned Dr., you must not have been treated by him for RSD/CRPS.....sounds like a planted compliment for the Podiatrist (yes, a foot Dr.....who is NOT Board Certified for Pain Management).

All I can say is do your do diligence and speak to as many patients of his as possible for committing a lot of time and even more money to a treatment that is dubious at best.

For those of you on Facebook, there is a new group being formed to discuss your experience with Dr Rhodes. South Texas Innovative Medicine Discussion Group.
Dr Rhodes is sending letters from his attorney to anyone who is questioning his practice. The Duchennes Muscular Dystrophy group removed discussion of his treatments since they said they could not afford a lawyer in case he sued them. He had moved from RSD to DMD and had generated a lot of interest from parents of suffering children desperate for successful treatment. Nice.

Glad to hear it works for some, but the rest of us should not have to spend $4500 for worthless equipment and a reputable doctor would return calls, emails and letters to try to work something out.

buyer beware.

I posted about Dr. Rhodes as a former patient trying to help other RSDers......it was not a spam post to make him look good or anything like that haha!!!.....honestly his treatments did not help me much, but I have met several people who had incredible life-changing results. He is extremely knowledgable about RSD. To me it didnt matter what his certifications are in.....it only matters how much he knows about it & how many RSD patients he has seen. I learned alot from him. Although it was very expensive, It was worth a try & I learned about the disease & how it works & ties into other symptoms......nothing else was working. That is just my truthful opinion as a former patient.

looking for good doctor
 

Hi,
I saw your post on neurotallk and am trying to find a good doctor to help my friend's daughter. Her left leg calf muscle has been atrophying for 4 months. It is now 1 inch smaller than the right leg. Her right leg is in a lot of pain. There is a noticable temperature difference between her right and left leg. She still hasn't gotten a diagnosis after an EEG of muscle and nerves, several MRIs, and many blood tests. Her pediatrician is saying that it might be RSD...any suggestions? She is in a stroller at 7 years while at the zoo because her leg pain is so severe.
Thank you for your time,
Bridget

RSD, Dr.Timothy Rand
 

I am wondering if you can get me a number for Dr. Rand, I tried iformation and none was listed, not even in the surrounding areas??? I was diagnosed with RSD in January and can't seem to find a doctor with any knowledge of this in the Houston area...ty.

With a child, they have the best chance for remission, but the best rests seem to come from inpatient RSD programs at one of the Children's hospitals, and I don't believe I've ever heard of one in TX. Either search the forum or start a new thread with a title that alerts you're looking for a child. Good luck.

CRPS/RSD_Fabulous Team of Doctors
 

Yes, I have had CRPS/RSD for ten years now. My pain management doctor, Dr. Eduardo Garcia, specializes in CRPS/RSD. He`s been my doctor going on 9+ years now. I am one of his more extreme cases, which I believe he has at least two or three others who are extreme cases as well. He also works closely with a Physiatrist/BioChemist, Dr. Lewis Clarke. They are both extraordinary, & go above & beyond the call of duty for their patients. They are located on Hwy 3 in the Kelsey Seybold Building on the lower floor. If you haven't found a Dr. you like, then you may want to give them a call. You can let them know Gina Andrews gave you their names. Dr. Garcia's office # is (281) 338-4443 then choose option #4.

Sincerely,
Gina

Dr Jeffrey Annabi in El Paso. He's who I go to and I really like him. He's open helpful and doesn't push anything on you. You do have to give a urine sample to prove you're not on anything not prescribed or illegal drugs though. He's the first Dr that I've been to that really wants to help.