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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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![]() Howdy from unfortunately an old school RSD CRPS vet (although we have done much better than so many others we have know, so i am thankful). For reasons i can't go into we lost our old doctors. Does anyone know any doctors in Houston, or anywhere else in Texas, with good RSD experience that they can recommend to take over treatment? Thanks more than you can ever know. Wishing y'all peace, love, and pain-relief, Possum |
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I have been trying to compile a list of doctors mentioned by people who have RSD/CRPS. In my search someone mentioned Dr. Gabor Racz from the International Pain Institute in Lubbock, TX and also a Dr. Miles Day who they said was in the top 10 doctors in the treatment of CRPS. They also have a Physical Therapy Clinic right next door who specializes in the treatment of CRPS/RSD. I dont know what treatments they support, but the person said that these doctors were excellent and listen to you.
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"Thanks for this!" says: | loretta (11-16-2009) |
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#3 | ||
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Hope you find a new doc that you like. I highly recommend Dr. Donald Rhodes in Corpus Christi, TX. He uses a machine called a Dynatron STS & knows more than any other doctor I've ever met about RSD. Let me know if you have any questions.
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"Thanks for this!" says: | loretta (11-16-2009) |
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All I can say is do your do diligence and speak to as many patients of his as possible for committing a lot of time and even more money to a treatment that is dubious at best. |
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#5 | ||
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For those of you on Facebook, there is a new group being formed to discuss your experience with Dr Rhodes. South Texas Innovative Medicine Discussion Group.
Dr Rhodes is sending letters from his attorney to anyone who is questioning his practice. The Duchennes Muscular Dystrophy group removed discussion of his treatments since they said they could not afford a lawyer in case he sued them. He had moved from RSD to DMD and had generated a lot of interest from parents of suffering children desperate for successful treatment. Nice. Glad to hear it works for some, but the rest of us should not have to spend $4500 for worthless equipment and a reputable doctor would return calls, emails and letters to try to work something out. buyer beware. |
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#6 | ||
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I posted about Dr. Rhodes as a former patient trying to help other RSDers......it was not a spam post to make him look good or anything like that haha!!!.....honestly his treatments did not help me much, but I have met several people who had incredible life-changing results. He is extremely knowledgable about RSD. To me it didnt matter what his certifications are in.....it only matters how much he knows about it & how many RSD patients he has seen. I learned alot from him. Although it was very expensive, It was worth a try & I learned about the disease & how it works & ties into other symptoms......nothing else was working. That is just my truthful opinion as a former patient.
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#7 | ||
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Dr. Hassan Chahadeh 713-802-1511 He has been treating me for over 4 years. I woke up from my third lower back surgery w/ RSD. It has been a nightmare but I would be so much worse if it wasn't for his compasionate team @ the Katy FWY office. I hope this helps, John B. |
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"Thanks for this!" says: | loretta (11-16-2009) |
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#8 | ||
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Ashley, his nurse, is a complete sweetie and was one of the reasons I stuck it out with him for so long - she, at least, could keep straight a person's symptoms and meds). In fact I didn't even see Dr. Chadadeh until the first "procedure" was set up in his hospital - a Stellate Ganglion Block. Dr. Chahadeh came by my bed for a VERY few brief moments, didn't listen to what I had to say (which was the miscommunication Rick had made, that the accident I had that caused the RSD happened three YEARS ago, not three MONTHS ago. As most people familiar with RSD know (and which an SD specialist doctor *should* know), is that there isn't any cure for RSD that isn't performed within the first 3 to 6 months after the precipitating occurrance. When the Stellate Ganglion Block didn't immediately cure my RSD he decided then and there that I didn't have RSD and proceded to schedule other "procedures" that had nothing to do with RSD - three steroid injections into my cervical spine, then a facet joint ablation - none of which worked, of course. So then since his miraculous healing abilities didn't work, he then labeled me as a drug-seeker and refused to change or increase my medication. Was, in fact planning on *Decreasing* my medications and dosage. At which point I found another pain management specialist. He may not specialize in RSD, but he is at least willing to see his patients in the office rather than for the first meeting to be in the hospital. Hugs, CatNipped |
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#9 | ||
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After going into Texas Childrens hospital on crutches and leaving in a wheel chair, we found Dr Timothy Rand in Tomball. I cant write enough great things about him.
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#10 | ||
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I am wondering if you can get me a number for Dr. Rand, I tried iformation and none was listed, not even in the surrounding areas??? I was diagnosed with RSD in January and can't seem to find a doctor with any knowledge of this in the Houston area...ty.
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