NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   Anyone heard of this one? (https://www.neurotalk.org/myasthenia-gravis/91006-heard.html)

erinhermes 06-25-2009 06:53 PM

Anyone heard of this one?
 
Hello all! Just got back from the hospital where they did my labs........my hands and feet are peeling really badly and have had NO energy for the last couple of days....long story short -my neuro thinks I'm sufferig from an allergic reaction to my IMURAN!

WTH? So, I have to go to the hospital IMMEDIATELY for a STAT blood draw and am waiting for the results...............:(

Came home to a hurt animal and a rude 17 yr old.....could just SCREAM!

The only positive out of today is that I may start Cellcept again - I've kept all of my old cellcept from b/4:D

Hopefully you are all happy and STRONG!

Big hugs!
Erin:D





Joanmarie63 06-25-2009 07:26 PM

:hug: ERIN :hug: I hope you start feeling better soon. As for an allergic reaction, sounds possible to me, I was never allergic to anything until after I started treatment for MG and now I can hardly take anything :( You are in my thoughts.

redtail 06-25-2009 07:28 PM

Awww Erin,

you don't need this right now, will be thinking of you,
kate

TxSimon 06-25-2009 08:05 PM

Quote:

Originally Posted by erinhermes (Post 528730)
Hello all! Just got back from the hospital where they did my labs........my hands and feet are peeling really badly and have had NO energy for the last couple of days....long story short -my neuro thinks I'm sufferig from an allergic reaction to my IMURAN!

WTH? So, I have to go to the hospital IMMEDIATELY for a STAT blood draw and am waiting for the results...............:(

Came home to a hurt animal and a rude 17 yr old.....could just SCREAM!

The only positive out of today is that I may start Cellcept again - I've kept all of my old cellcept from b/4:D

Hopefully you are all happy and STRONG!

Big hugs!
Erin:D







Erin,
Sorry that things are happening to you. You are in my prayers. I was on Immuran first and had bad side effects from it and had to go on CellCept. I took Immuran for 4 months but could not tolerate the side effects. CellCept has been better to me with less side effects. I hope the reaction, if that is what is happening, goes away quickly for you. Take care and stay in touch. On an up note, CellCept is now generic!!!!
Big Hugs to you,
Simon

ras1256 06-25-2009 09:48 PM

Erin,
Dang girl! We're not allowing any more problems for you, ok? Hopefully the cellcept will help you to remission and you can be done with this stuff!!!

Loves Ya Girl!

suev 06-25-2009 10:16 PM

Erin,

Really sorry to hear about your troubles. You deserve to catch a break - - and soon! 'Til then, hang in there - - and know that everyone here is rooting for ya!!

Sue

rach73 06-26-2009 06:46 AM

Hi Erin,

hope you feel better soon. My dad had an allergic reaction the same as yours when he had the contrast dye for a CT scan.

Its not nice.

Take care

Love Rach x

maryec 06-26-2009 11:04 AM

Erin
Sorry it hear about your drug reaction ! I was not allegic to anything when I was younger, now anything other than mestnon, pred. & tylenol, see do do me in ! Very frustating & scary, antibiotics, I know for sure are a big no no !

rezmommy 06-26-2009 11:12 AM

Hi Erin,
Sorry to hear that you have hit a rough patch. Hopefully your doc sorts things out quickly! Take care ~ Mel

Tbarney 06-26-2009 02:54 PM

I still am trying to decide which to take Imuran or Cellcept. Erin how long had you been on Imuran?

erinhermes 06-26-2009 02:58 PM

Hi Tbarney!
 
Hi Tbarney!I've been on Imuran for about 5 months now - don't understand why I'm having a reaction now! My blood work was fine, so I'm no longer scared about that!:D

Cellcept was great! The only thing I didn't like about it was how much it costs! I was even actually able to go down to 15 mgs of pred while I was on it!

How are you feeling today? Are you feeling better?

Big hugs!
Erin:hug::hug::hug:









Quote:

Originally Posted by Tbarney (Post 529165)
I still am trying to decide which to take Imuran or Cellcept. Erin how long had you been on Imuran?


xmas 25 06-27-2009 06:42 PM

###**##** how much can you take? i hope you just stuff yourself with sonme gooey ice cream and fresh bread with butter.[those are my comfort foods]

momma3love 06-27-2009 07:12 PM

Awwww Erin.....I am sorry you are having so many difficulties. Once you start becoming allergic to meds it seems to keep happening. So be careful now. I really hope you feel better soon. Allergic reactions seem to take a lot outta me. Take care and better luck with the Cellcept right? I will keep my fingers crossed for ya.

sabimax 06-27-2009 07:40 PM

my dad, is peeling hands....we assumed from his chemo he was taking back when ... but dr also said, poor nutrition can cause this too... good luck and hugss,sarah

jccgf 06-27-2009 09:28 PM

Is there any chance you could have been exposed to strep, and missed it?

http://www.google.com/search?hl=en&r...n&aq=f&oq=&aqi=

erinhermes 06-28-2009 02:29 PM

Hi xmas~
 
Hey hon!:D how are YOU doing today? I have been eating my comfort food = chocolate and lots of it! I know it will get better soon!

Big hugs!
Erin:hug::hug::hug:


Quote:

Originally Posted by xmas 25 (Post 529791)
###**##** how much can you take? i hope you just stuff yourself with sonme gooey ice cream and fresh bread with butter.[those are my comfort foods]


erinhermes 06-28-2009 02:31 PM

Hi there!
 
Hello and welcome! What wonderful advice! I'm going to see my neuro next week for another follow up - I'll ask him to give me the test!

Thank you!
Erin:D


Quote:

Originally Posted by jccglutenfree (Post 529848)
Is there any chance you could have been exposed to strep, and missed it?

http://www.google.com/search?hl=en&r...n&aq=f&oq=&aqi=


justdeb 06-28-2009 07:57 PM

Reaction
 
Erin, what you describe is more likely a reaction to the IVIG than anything else. IT is a common reaction to it. Do read up and see what ya think. PRaying you get betta soon.


All times are GMT -5. The time now is 06:43 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.