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-   -   Myasthenic nose?? (https://www.neurotalk.org/myasthenia-gravis/200778-myasthenic-nose.html)

southblues 02-08-2014 11:19 AM

Myasthenic nose??
 
What are people talking about when they say their nose is myasthenic?

bny806 02-09-2014 05:51 AM

I've never heard of this before, but I do get a droopy nose...it makes my upper lip stick out more, almost feel swollen.. I look like I snarl when I smile when this happens... I've also had the nasal speech when symptoms get bad - not sure if that is what they are talking about either.. hopefully someone else with more insight will chime in :)

Panorama 02-09-2014 07:55 AM

Quote:

Originally Posted by southblues (Post 1049745)
What are people talking about when they say their nose is myasthenic?

It may be this:
Profound Olfactory Dysfunction in Myasthenia Gravis
-Mark-

southblues 02-09-2014 08:27 AM

The reason that I asked is because I have had (for a long time) terrible trouble with my nose stopping up, I can't smell stuff, and I sound nasal. This occurs sporadically. My ears also stop up and my doctor has said that the ear thing is related to MG. I can for sure say that the ear thing happens when I am tired and "used up".

Panorama 02-09-2014 09:09 AM

Quote:

Originally Posted by southblues (Post 1049913)
I can't smell stuff . . .

It's been 5 or more years for me.

I starting to get some sense of smell back. It might be the Preds.

-Mark-

bny806 02-09-2014 02:24 PM

oh yes, the ear thing drives me batty!! When I am getting weaker, It's like the back of my throat doesn't work quite right, swallowing is affected, nasal voice happens and the ears feel so stopped up - like Eustachian tube dysfunction.. that can be so irritating. I definitely think it's all related!


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