NeuroTalk Support Groups - Pacing (long post, sorry)

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Pacing (long post, sorry) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/233528-pacing-post-sorry.html)

Pacing (long post, sorry)

My daughter left for a visit to her boyfriend's mom's yesterday. Tried as she might, things were not quite where they needed to be for me to get through this 'trail' of her being gone and my son not staying with me. (She usually goes to TN for a visit with 'him' every 6 weeks or so & my son typically stays with me when she does)

Yesterday, I went to get some pet shampoo & towels from the laundry room & wash a couple of pillows. When I opened the soap drawer on the washer, I noticed it was DISGUSTING...so I took it out & proceeded to the kitchen sink to wash it. Done. Returned it. Put the pillows in the washer. Grabbed the pet shampoo & towels. Grabbed my youngest pup & bathed her in the sink (I love little doggies). On to the next one and the last in the same way.

Sitting on the floor of the family room to dry/brush them, I saw the floor needed vacuuming. So I did.

Yesterday was garbage day & my daughter had taken the bins to the curb before she left. My son was going to come after school and bring them in. It was windy yesterday and the garbage people seem to think leaving the bins in the street is okay. So I brought the smaller recycling bin in mid-day. I heard a can rolling down the street a few hours later & not knowing when my son would arrive, I brought the other one in. My daughter was not able to get all the paper garbage from our round of organization into the bin for take-out yesterday, so there were several bags piled on the floor between my kitchen & dining room. I put them in the garbage bin I just retrieved from the street. Texted my son to let him know and 2 minutes later, he pulled in. Ugh.

We had gotten the day bed put together in the den for me just in case I could not make it upstairs. Or so we thought. I had sat on the bed to play with the kitty and the mattress platform shifted. So when my son was here, he cut a piece of mdf to brace the platform. It didn't work. So he went to the basement and brought up a box spring. Now the bed was super high & one end was a tad raised, but it would probably suffice. We had dinner. He did his laundry and went back home to his dad's.

Today, while trying to fix the satellite in the den, I discovered the cable from the wall was not hooked to the receiver (the receiver was connected to the tv, tho which I'm sure was the only thing my daughter checked). I looked behind the wall unit to get the cable...it was stuck under the unit. So...I emptied the wall unit just enough to be able to tip it far enough to pull the cable out. In that process, I thought of a brilliant idea for the day bed situation. My son left the hand saw in the kitchen, so I pulled some unuseable laminate planks from the basement & cut 3 of them to size. Took the mattress & box spring off. Put the newly cut laminate planks down. Then the platform and returned the mattress. I now needed to return everything to the wall unit and re-wash the sheets that were on the day bed because the kitty had been laying all over them.

I am probably pushing myself way way way too hard seeing how I just came out of a hella flare 2 weeks ago but...pacing is for pansies and I ain't no flower. I'm tired of being a hostage to this stupid crap. If I end up not being able to move, so be it. At least when they find me, I will know I accomplished something for the first time in months, if not years.

That is seriously amazing! I hope, hope, hope that you are able to move tomorrow. It's like you did two weeks of rehab crammed into one day.

If you get kickback, don't get discouraged just take as confirmation that you maybe overdid a wee bit. ;)

Quote:

Originally Posted by -Spike- (Post 1203467)

:hug:

My friend

:hug: back atcha!

Quote:

Originally Posted by Littlepaw (Post 1203474)

My mom is coming to help on Friday, my son will be back Saturday.

I will try really really hard not to get discouraged ;)

Wow you really got a lot done! Thanks for sharing it with us. It does feel good to get things done.
:-)
zinnia

Wonder Woman! I'm sure it helped your mood to get all of that accomplished.

I find it hard to figure out pacing and limits because they change so much from day to day.

Sounds like your house will be ready for your visitors this weekend so you can have some nice quality family time!

Ha! My daughter is good at organizing. Cleaning? Not so much. OCD & RSD are NOT friends!!!

Both my mom & my son are coming to work...there is no 'play time' allowed yet!

Just trying to make sure that the basic common areas are not of the "omg, I'm so embarrassed" clean & more " yes, please come in" clean for an impromptu meeting I have Friday morning.

And...I could never compete with Wonder Woman....gabapentin took the body that fits the uniform!!! I'm 'Wider Woman' ;)

Quote:

Originally Posted by Always_Believe (Post 1203581)

I can totally relate with the "omg, I'm so embarrassed". We have a dog walker that takes my dogs out when my husband is working and I am always worried she is going to think my house is a mess. I can't vacuum because the vibrations hurt my feet but a few times this winter I had no choice. No matter how careful people are rock salt would find its way into the house and stepping on that can be so painful.

Even though it's not a social visit I'm sure the extra help will be nice.

Quote:

Originally Posted by NurseKris (Post 1203597)

The extra help is pretty much a requirement. No way I can keep this up. Been at it (as a flower...super pacing) for 2 hours and I've barely started and yet my body is nearly done. Hard to believe emptying the black water from about 6 tiles of the kitchen floor that it has been mopped in the past month. Ick. So many more 6 tiles to go...