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christobelle 03-05-2014 08:15 AM

16 hours
 
Until I find out my MRI results.

So there you go.

St George 2013 03-05-2014 09:47 AM

Good morning christobelle :)
 
Quote:

Originally Posted by christobelle (Post 1054951)
Until I find out my MRI results.

So there you go.


It is so hard waiting for results isn't it ? I have small fiber neuropathy and I can remember the agony of waiting for the skin biopsy results.

I have you in my thoughts and prayers. Please let us know the results.

Debi from Georgia

christobelle 03-05-2014 03:33 PM

Thanks Debi.

Less than 9 hours now. It is SUCH a long wait.

Hoping that all is well with you, and thank you :)

NurseNancy 03-05-2014 04:12 PM

yes, it's very hard. to wait for appts, then wait for tests, then wait for results.
good luck and let us know.

clarkstar 03-05-2014 06:15 PM

best of luck! what are you hoping for?

SallyC 03-05-2014 08:20 PM

Here's wishing you the best and truest results. :pepsi:

christobelle 03-06-2014 02:56 AM

Well that goes down as one of the most humiliating days of my life.

The neurologist who was oh so helpful when he saw me a few weeks ago in the midst of my arm muscles operating independently of my direction, and who was oh so sure that the MRI would show something up, today, when it came back clear, essentially told me that there was nothing he could do and he couldn't give me anything or offer any help whatsoever and was I sure it wasn't in my head.

Unbelievable. I am just mortified.

And still stuck here with all manner of crap going on with my body and no reason as to why. And nothing I can take to ease it.

Devastated doesn't even scratch the surface of how I feel after today. And I am still stuck with all the horrid crap and zero idea on what the hell to do now.

NurseNancy 03-06-2014 04:42 AM

i'm so sorry that nothing could be resolved based on the mri.
i would keep in touch with your neuro. you may have to give things more time.
keep track of your sx's in a sx journal with dates and descriptions. it may help your dr over time.

sometimes it can take more time for lesions to show up on an mri.
don't give up hope. MS can be hard to dx and may reveal itself more over time.
please keep us posted on how you are.

Erika 03-06-2014 07:07 AM

Doctors are people who prescribe medicines of which they know little, to cure diseases of which they know less, in human beings of whom they know nothing.

With love, Erika

christobelle 03-06-2014 07:16 AM

Thank you both.

I have opted to seek out a second opinion, from an MS specialist (the fellow I saw was a general neuro).

I shall see how that goes.

I really just want to know what I'm dealing with so I can actually deal with it. But I need someone who is willing to actually look further than just some film. There is more to a disease than simple pictures of one aspect of a person's being.


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