Vanderbilt Anyone?
 

Has anyone seen a specialist at Vanderbilt for their MG? Saw my neuro today and he's good, but since I am getting wose instead of better (I've had mg for 11 years and had to retire on disability a year ago), he told me he has no ego and if I want to see a specialist for a fresh look at me, he would refer me in a heartbeat. I talked to my daughter (a nurse) and we have decided this might be a good idea.

However, we want to research the docs at Vanderbilt and see the best one for MG treatment. So any ideas?

Thanks.

I have very atypical MG, with symptoms going back at least 40 years (it keeps getting longer as I keep putting the story together). This past week I was seen at Vanderbilt. They have an MDA clinic on Thursday and they have many doctors specializing in MG, CMS, and other myopathies. I was not seen in the clinic, but by Dr. Lee, who was recommended by another MG patient. The wait time was August 1 when I saw my local neurologist to October 18. I posted my visit under the " neuro won't do further tests ". It was a good experience.
nc

Hi NC - thanks for the info. I'll look up Dr Lee and see if my neuro will refer me.