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-   -   new member (https://www.neurotalk.org/multiple-sclerosis/117932-new-member.html)

calligirl 03-30-2010 09:40 AM

new member
 
:)I was diagnosed with ms about 2 months ago and have finally come to grips with it. I am on 150mg of Lyrica and 20 mg of Baclofen a day. I am still having my nerve/muscle damage not to mention i feel drunk all day. I am so sleepy and exhausted. does anyone take these medicines and have the same side effects.

I am glad to find this forum because i have not had much support. My family has been awesome but they are in CA. i am in CO and my in-laws have been really non-supportive about all of this and that is being nice. it will nice to be able to talk to everyone going through the same thing.:grouphug:

barb02 03-30-2010 09:48 AM

Welcome Cali! I was dx three years ago, and I was in a fog for the first several months. Both of the med's that you are on can make you even more tired, but fatigue is one of the problems that a lot of us struggle with on a daily basis. There are lots of nice folks here. So if you have more questions, just ask away. There is also a search feature where you can find threads where people have discussed their experiences with baclofen and lyrica.

Kitty 03-30-2010 09:53 AM

Hi Calligirl! Welcome to NeuroTalk. You've found a great place for support and information regarding your MS. I've been dx for almost 5 years and I still don't understand this disease! :rolleyes:

I've taken Baclofen for spasticity and it does tend to make me a little loopy. My balance is already compromised and it just seems to make it worse. I've not ever taken Lyrica. Like Barb said, there are threads about the med in several different forums.

I'm sorry your in-laws aren't being as supportive as they could be. Might be that they're just scared and don't know what to do. I had that reaction from several people after I was first dx. Once I became more comfortable with my condition it seems like everyone else slowly did, too. It takes some time.

I hope to see you around the forum. There are lots of wonderful, caring and supportive people here who totally "get" where you're coming from.

Dejibo 03-30-2010 10:19 AM

Welcome Cali! glad you found us.

I found that in-laws, and regular family sometimes dont know how to be supportive. Many see the "but you look so good" side of the disease, and think "can it really be that bad?" and then they get it stuck in their heads that you are dreaming up most of the drama. Unless they take the time to become educated, or have the desire to want to be more compassionate, you are better off just doing the head nod, and saying "thank you! im pretty good today." and walking away. Dont let them stress you. Come here and vent.

You will find this to be a great crowd to be in. Knowledgeable, and trust worthy. Pull up a chair and hang out a while. :hug:

SandyC 03-30-2010 10:44 AM

Hi Cali and welcome to NT! Sorry about your diagnosis but glad you found us. The people here are great and very supportive. My hubby has spms, 22 years.

We're thinking about moving to Colorado in the next year or so if all goes well. We don't have much support either. My side of the family tends to support us more than Jim's side. Ack, that's life and we move on.

SallyC 03-30-2010 01:20 PM

Nice to meet you and to welcome you here at NeuroTalk. :)

I've had MS for a loooooong time and I still find it helpful and rewarding to come here, daily.

Family, who love us, are supportive, but they still don't fully understand, as we, here, do.

I'm happy you joined us. :hug:

PolarExpress 03-30-2010 05:27 PM

Welcome (I think?)..:D
I'm glad you found this place ~ some of the best people on the planet here!

FinLady 03-30-2010 09:06 PM

Hi Cali! Welcome to NT. Sorry about the dx, but glad you found us. :hug::hug:

doydie 03-30-2010 10:52 PM

Welcome Caligirl! Glad you finaly found us. I felt the same relief when I found this place many years ago! I was started on Tegretol for my pain and after every dose increase I was foggy for 8 days. It does get better it's just that you have quite a journey while you are getting there. My family is wonderful, maybe a little to protective. My inlaws, well I don't think they even know what it is. No one sees each other on that side of the family any way!

Koala77 03-30-2010 11:07 PM

Hi Cali and welcome to NeuroTalk. :hug:

I too am sorry for the reason that brought you too us, but I'm very pleased you found us.


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