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-   -   Question about IVIG (https://www.neurotalk.org/myasthenia-gravis/123027-question-ivig.html)

tysondouglass 05-26-2010 08:55 PM

Question about IVIG
 
Hey all, so i was wondering if you guys had any ideas about how to advocate about IVIG. I dont think the plex is working as well anymore, (especially last time) and im not horrible..but needing a nap EVERY day, atleast 3 hours..so i was wondering, do i just call my doctor and ask or what? Will he deny it?

allen L 05-26-2010 09:43 PM

Do you sleep well at night? I suffer from insomnia, have suffered from it for years and years, old age, weight problems, and stress from work and life, and I love to take naps if I feel the need.I dont always relate my tiredness or weakness to MG one day if I had a poor night


If you feel strongly about it,(ivig) you should contact your physician and toss the idea to him.
Only speaking for myself, I find the therapy totally amazing.

scrubbs 05-28-2010 11:51 AM

Quote:

Originally Posted by tysondouglass (Post 658487)
Hey all, so i was wondering if you guys had any ideas about how to advocate about IVIG. I dont think the plex is working as well anymore, (especially last time) and im not horrible..but needing a nap EVERY day, atleast 3 hours..so i was wondering, do i just call my doctor and ask or what? Will he deny it?

0

. I have expierenced every condition this desease has to offerand I am very fortunate that my condition has improved. Starting around the start of this year.

I do not know if my improvement is the result of the infusions, the cellcept, or both. Maybe neither?

I wish I knew


tony


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