New and waiting
 

Diagnosed with PN in June still don't know the cause all blood work has come back normal no diabetes, thyroid problems MRI discovered 2 disc protrusion with annular tear, also moderate lumbar levoscoliosis. was sent to a Physiatrist who did nerve test and believe condition is because of AIPD. Pain started in the feet and progress within two days to upper chest, tried neurotin didn't help now taking tramadol, pain has subsided to the point i can walk without severe pain, still have tingling in feet and legs, shooting pain in right leg. Go back to the Dr. next week waiting to see whats next. I have been reading a lot here.

what is AIPD?

Sorry typed wrong it is AIDP (Acute Inflammatory Demyelinating Polyradiculoneuropathy)

Hang in!
 

:)I too have PN, and it is so annoying, hope you have a good doctor, Nuerontin and Lyrica will help and so will vitamins. I try to move around as much as I can. I walk some everyday. Take care and chin Up!

so you have a diagnosis of aidp because of the emg? have you had any blood tests for autoimmune markers?

ANA screen was done which I was told was normal

Aidp--
 

--is a more physican technical way of saying what most of us would know as Guillain-Barre syndrome. (The term would be more specific than Guillain Barre, specifically desinating the mot common variant and excluding some of the less common ones that are grouped under the syndrome.)

See:

http://www.jsmarcussen.com/gbs/uk/overview.htm

I am not aiming this at you directly, but I get frustrated when I hear people saying things like this. "Lyrica will help" "Neurontin will help" "Vitamins will help" I've been on all of those... I've tried all three of those.. I've tried Topamax. I've tried so many things and have not found any relief--in fact, the PN has gotten much much worse over time, even though my vitamin levels are all at normal levels now. Lyrica and Neurontin are not the answers for everybody--they do not work for everyone. They aren't magical cures... what works for one will not work for another... they sure haven't worked for me. =(

Again... this isn't meant to be aimed directly at you.. but I see a LOT of people saying that one specific medicine works best... when in reality, that's not true--it depends on the individual.

Thyroid?
 

What is your thyroid problem?
I have been taking levothyroxin for many years. My GP reduced my dose by 20% in Feb. whereupon I became very unwell including extreme fatique, leg muscle and feet pain, burning, pins and needles. I just went back to my Feb. dose 6 days ago and I am beginning to feel better. It can take weeks to months to repair the damage. I could have been dealing with Hypothyroid Neuropathy.
I would ask your doc for your TSH, T4 and T3 readings. A high TSH for someone with a thyroid would indicate hypothyroidism with the above symptoms among many others.

sarah mae
 

I have had PN for 11 years. The VA and i tried everything they had for 2 years.The only that would help me was MORPHINE. I took 240 mg. a day for 4 years to get my pain to 1-2. It slowly started back and i am now taking 60 mg.

Take anything to get pain relief.


George