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-   -   you ever feel like there is something seriously wrong and the doctors keep missing it (https://www.neurotalk.org/multiple-sclerosis/130714-feel-seriously-wrong-doctors-missing.html)

legzzalot 08-19-2010 10:41 PM

you ever feel like there is something seriously wrong and the doctors keep missing it
 
My back hurts worse now than it did when i was 9 months pregnant and had been in labor for 2 days with DD. Its getting worse by the minute. I get that it is broken and has been since feb but this is a different kind of pain... the unbearable, hard to stand feel like my legs are going to buckle and my stomach wants to give me back my dinner kind of pain.

ice is not helping, neither is perocet, neurontin, soma, voltaren, or any of the other 80,000 pills I take a day!

It just feels like they are missing something and it's a really big something. And it annoys me that the ortho is on vacation

ewizabeth 08-19-2010 10:44 PM

What are they planning to do to fix this? Surgery, or what? Do they just let it heal or what? They need to do something don't they? I guess I don't understand how they can let you walk around with a broken back? :confused:

I hope they'll get you fixed up soon. :hug:

legzzalot 08-19-2010 11:56 PM

No idea. Last meeting with Ortho was telling me I was not a "viable candidate" for surgery because I have MS and we would have to bring my white blood cell count back up and blah blah blah... Thinks the vertebroplasty will not hold because the compression will just wear it out, can't pin it bc its too risky to spinal cord, no fusion surgery because I am too risky thanks to the 25+ MS lesions on my spinal cord.

Last month my neuro was against the vertebroplasty idea (non surgical, long needle goes into the fracture and fills it with medical cement to build the bone back up. Then she saw the last MRI and says we need to fix this now! Still haven't heard from ortho since they found the new fractures because he apparently decided to join my PCP in the land of people who have the luxury of vacationing.

And I really feel like they are missing something. Neuro wants another MRI of lumbar and another bone density test... But I don't see how a bone density issue would only effect my spine. That doesn't make sense.

I feel like the degenerative disc and joint issues they keep blowing off as minor may be a small piece to a big picture and all of my doctors keep overlooking something, I just don't know what it is. What it feels like besides my joints turning to stone is there is so much sheer force and pressure throughout my back that it is making the other bones break. I have always had back problems but this is insane.

Koala77 08-20-2010 12:07 AM

Have you had a bone density scan Leggz?

If you're fracturing that easily it sounds like you might have osteoporosis, and if you do have osteoporotic bones, then surgery probably wouldn't help. They can't hammer pins and plates into a bone that will crumble when they try.

I'm sorry you're in pain,and I hope you get relief soon.

legzzalot 08-20-2010 01:10 AM

yeah we did the scan back in.... wanna say april? Which was low but still in the normal range, so they added calcium and vit D. The weird thing is, they did the density scan on my hip... and not on my back, not that i would think that makes a lot of difference.

I keep asking for traction and they keep telling me no. But I swear if we just pulled the bones apart it would feel so much better!

Koala77 08-20-2010 02:18 AM

Quote:

Originally Posted by legzzalot (Post 686915)
....The weird thing is, they did the density scan on my hip... and not on my back, not that i would think that makes a lot of difference...

Nah.. shouldn't make any difference. If one large bone looks osteoporotic, then the rest would be too.

I wouldn't advocate traction..... especially with a fracture, but thet's just my opinion.

Dejibo 08-20-2010 07:34 AM

Have you tried some yoga stretches? sometimes those gentle stretches can get blood flow back inbetween those bones. I bet gentle traction would feel great!

I hope you feel better quick. :hug:

Kitty 08-20-2010 08:49 AM

You've had so many problems with your bones. Seems like the doctors you're seeing would be a little more vigilant in their attempt to figure this out. The spinal cord is nothing to fool around with.

I'd start keeping copious notes on all the doctors I've seen and what they say. Maybe even keep a running file of copies of your medical records from each doctor.

I really hope you can get this straightened out soon. You've been in pain way too long.

Desinie 08-21-2010 09:29 AM

I hope they get on the ball and do something to help you get pain relief,Legzz.:hug::hug: I know how frustrated you must be. These doctors aren't the ones in pain or they wouldn't be dilly dallying around trying to figure out what to do. In answer to your question in the title of your post, Yes. I feel that way with myself too even though I've been diagnosed with MS almost 11 years. Feel better!

ginnie 08-21-2010 09:40 AM

Hi legzz
 
I am sorry you are in pain. I have no fractures, but face fusion C3-7. I know about pain. Find a doctor who will listen. When you are in that much pain it is hard to focus. Pain can and will make you throw up. If you are not getting the help you need, go to someone else. It took alot of doctors for me to find one that would listen to me. I have DJD and DDD. I do get good pain control until very recently, that tipping point happened, down into degeneration. I wish for you all the best, and I hope answers are found for you soon. Ginnie It was me who figured out something more was wrong, and asked for the CT. None of the other doctors suspected this kind of degeneration. You know your own body better than anyone. If you know there is something wrong, you are probably right.


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