john coleman interview
 

Worth a listen, set aside an hour:

http://www.blogtalkradio.com/parkins...ull-recovery-f

so whadya think???
 

49 bucks a month for his secret. Hmmm, I don't know, I smell a rat!

I smell a rat when I hand over 150 euro to a neurologist for fifteen minutes of disinterested 'attention', and the dispensing of pure poison, with little follow through.

You can listen to the interview for free and there is a lot of valuable information in it. Why shouldn't he charge for his time, anymore than a bio-medical practitioner, not one of whom can claim to have assisted anyone into a state of being symptom free. Coleman has knowledge and he could not possibly respond to all requests for it, given the volume of demand, without charging for it. There is no one-size-fits-all remedy and dealing with individual cases is effortful, if done well.

Yes but....
 

Muireann,
He's a known charlatan here in Australia and INMO a complete wanker who tries to rip PWP with his pathway recovery from PD. Fortunately with little success here.
The parkinsons association and community here have been complaining about his ludicrous claims for many years now.
Previously he claims to have recovered from not just PD but a Parkinsons Plus syndrome which makes it even more untruthful.
I'm not having a go at you Muireann I'm just very annoyed that he has the gall to tell us like it's fact and vulnerable people newly diagnosed or those further down the track might stop taking the levodopa their MDS recommends or prescribes which would otherwise give them a greater degree of relief from the rigidity and bradykinesia they would otherwise suffer with.
Apologies for offending anyone who took much notice of him but on behalf of many parkies here I find this man "deeply offensive."

Could you elaborate on what, in your opinion, makes him a "known wanker" or a "complete charlatan". On what do you base your opinion? I am genuine interested to know. It's a substantial claim and you must have your reasons?

For sure!
 

Hi Muireann,
When you first posted about him I thought I'd let it slide down the list without commenting and it'd die a natural death but when you defended him it got my blood pressure rising.
He claims like I said in my previous posting to have had a Parkinsons Plus syndrome (MSA) which as you probably know has a much poorer prognosis than the PD that most of here us are diagnosed formally by an MDS with.
He hasn't got or ever suffered from any form of PD and tried advertising in our Parkinsons magazine, without any success as his claims were proven to be ridiculous, and without any real medical proof.
Unfortunately he advertised his pathways program in other places and may have pulled it off for a while but listening to his interview brought back that sickening feeling that he's still cashing in on PWP's vulnerability.

It would be impossible to 'prove' that he never had PD, if he has recovered. How exactly could it be proven? When I was first diagnosed, the neuro was suggesting PD+ and eventually they settled on Atypical PD. These things aren't nearly as definable as you seem to think. One neuro i attended says he prefers to call all these diseases 'basal ganglia disease', as you never know how they will play out. When i was first dx'd [2003] i asked a neuro, "Is it possible that someone could just dip into a low dopamine state for a time, be symptomatic and pull out of it again, but never get dx'd with PD, just not get caught in the diagnostic net?". He said, "Of course, yes we know that happens".

If they know that happens, clearly they should be a lot more reticent about wading in with what we all know damn well here by now are very harmful drugs. It's not like if you delay dx, the person is missing out on the chance of a drug cure. It's not like withholding treatment for a tumour.

Because it is labeled as 'incurable', there is a profound negative psychological impact upon diagnosis, that actually contributes to the decline of the diagnosed person, pretty much as they walk out the door of the clinic.

I have had two DaTScans, positive for PD, three yrs apart, showing progression to the other side. They said they won't be sending me for any more. They said I "take too much in". Of what? The radio active isotope they pump you full of - into the very part of your brain they're supposed to be protecting from 'toxins'? I got really bad tremor, over night, after that first scan. Won't expose myself to that again, regardless of what anyone would like to prove.

I took PD medication for many years, up to and including l-dopa. I am off all medication now for 1.5 years. I still have PD, some things are worse, some are better, but my overall quality of life is vastly improved. It has been a long, hard and painful journey. There is no cure in a pill or surgery. There are improvements that can come about through very concerted effort but this involves addressing every area of your life. I have no doubt that I would be doing even better today if i had never gone on PD medication.

The problem is not that Coleman is a charlaton. The problem is that in doing the very things that are necessary to recover - avoiding PD meds and distancing oneself from neurologists and their negative assessments and toxic invasive procedures, one is left with no way of proving a means of recovery other than staying healthy and trying to pass that knowledge on to others. You're not going to make it into a randomized, blind, controlled clinical trial, are you?

I have never been in contact with Coleman. I don't know if his Aquas homeopathy, Bowen therapy, no wheat, dairy, high protein diet would benefit me or not. But I apply a general principle of constantly re-ordering my priorities in daily life to align them with my goals of eating a very specific diet, exercising appropriately, taking supplements, sleeping well, having good relationships, raising a family, managing family finance, learning new things, having a fulfilling social life and fulfilling my obligations to others. Given the extremely limited resources available to me in a state of very compromised health, that's quite an art to cultivate. I would like a 'mentor' who has succeeded in so doing, to guide me. Seems like that person would be a lot less of a charlaton than the neurologists who did me nothing but harm and cost me a hell of a lot more money than fifty bucks/dollars/euros a month.

If you summarily dismiss everyone who escapes PD as never having had it in
the first place, how are you ever going to recover? If I eventually reach a state of being symptom free, I would be expected to undergo another DaTScan to prove i am rid of the disease. But there is no way i am going to undergo another of those tests having seen the impact it had on my symptoms already. Plus you risk damaging your thyroid with it. Why aren't the men of science publishing journal articles about "dipping into low dopamine states" and recovering from them, and trying to discover the means by which one does so?

I deliberately posted a link to the audio link rather than the transcript. You can detect a lot of truth in the voicing.

And furthermore, to address your comment about Coleman claiming a dx without medical evidence, here is the transcript of the interview, please see page 14 onwards where he discusses how he was diagnosed.

http://www.aquahydration.co.uk/docs/interview.pdf

have to agree with madeitup...Mr Coleman has been touting his" pd recovery cure" for many years in Australia - and to date I have not heard of one person who has been cured- except the said Mr Coleman. The parkinson's organisations at both state and federal levels in Australia have refused to endorse him or his product, these organisations are run by pwp for pwp and would be only too happy to ease the suffering of any one of the 80000+ pwp in Australia.

The old adage "caveat emptor " (let the buyer beware) should be applied to dealings with Mr Coleman

Cate

Cate,

In this interview, he actually states very clearly that he does not 'cure' PD, or any other disease for that matter, merely that he can help people bring about an improvement in their health, hopefully to the point of being 'symptom free'. This is not simply splitting hairs. Many people recover from cancer, only to die eventually of something else. Were they cured of cancer or were they in remission at time of death? Aiming to recover one's health is a good goal and requires that one be pro-active in medical matters, and crucially, in non-medical areas of one's life; that is why it makes no sense to be talking of a cure. Such talk I would consider unethical.

I am not surprised that the four people he has helped to become symptom free are keeping quiet about it. I am getting enough flak here for just opening up a discussion about the possibility of recovery. Part of what you need to do to maintain well being is to forget you ever had PD, dis-identify with it, and remember how it felt before you became sick. For a lot of people, healing would require that they focus on what brings about well-being but stop thinking and talking about the original diagnosis. Being in the public limelight would not further that goal. Coleman has the strength to bear it.

Lots of people recover from 'incurable' diseases. Take a look at The Spontaneous Remission Project, though I suspect recovery is anything but spontaneous:

http://www.noetic.org/research/proje...raphy-project/

My two adult children have been following this thread. The youngest told me she was initially skeptical of Coleman until she listened to the interview. Then she pointed out that it is easier for her and me to believe in Coleman because we have seen what it is like to spend years on meds but also know what it is like to now be med-free. Most people on this forum can only compare pre-medicated and medicated states. She added that it must be "horrible" to be told you could have recovered after years of committing yourself to drug therapy.

My older daughter commented that the moment people are told they could recover, when they 'know' they can't, it probably makes them feel that their claim to a dx is not being taken seriously in the first place. She also feels that falling into the neurologist's trap of going for L-dopa pre-empts an opportunity of recovery.

The buyer of any service must beware; I don't think that applies to Coleman over anyone else. The fact that he hasn't been endorsed by the Australian PD Association would not discourage me one bit. Such associations have to work closely with the neurological and pharmaceutical communities.

When a critical mass of people recover their health and some courageous neurologist publishes a journal article about the scale and quality of the iatrogenic effects of PD meds, then there will be a flood of law suits. That, and the observations of my children above, are the reasons you will not see PD associations rush to advocate for the kind of approach Coleman is outlining. Very often they depend on the support, financial and otherwise, of neurology departments and pharmaceutical companies, to endorse and fund their out-reach services, conferences, training of personnel, online Q & A services, privileging access to DBS programmes and so on. They are not going to rock that boat.