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-   -   Methadone? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/155285-methadone.html)

SandyS 08-13-2011 09:30 AM

Methadone?
 
Hi all,

Well my girl is having a major flare and her doc wants to put her on methadone for her pain, rather than oxycodone. I am a little leary considering she is only 18.

Any help or advice would be greatly appreciated.

Thanks

keep smilin 08-13-2011 10:07 AM

Quote:

Originally Posted by SandyS (Post 795388)
Hi all,

Well my girl is having a major flare and her doc wants to put her on methadone for her pain, rather than oxycodone. I am a little leary considering she is only 18.

Any help or advice would be greatly appreciated.

Thanks


Sandy,

Iam so sorry for Lindsay's flare...Is her tummy not feeling well either??? I tried Methadone and could not take it...it made me very sick to my tummy... I tried it twice matter of fact and results were the same both times!! It is a major narcotic and I truly agree with your concern!!! ESP at Lindsay's age..

Again, I'm sorry....

Hugz, Kathy

SandyS 08-13-2011 11:30 AM

Hi Kathy,

She just had a pacemaker adjustment. She is better, the pacemaker was the best thing we have done. She has had such a great summer and has totally abused her RSD with fun! I am worried about the Methadone. She hardly every takes pain meds. She is on Cymbalta only for the RSD. they added Neurontin for a few weeks to try to calm it down. I fear the only hope right now is Ketamine. Unfortunately, I have to go back to work and the only time I can take her is in November. Last year was crazy with missing work.

Hopefully, the flare will calm down, I have contacted her OT/message therapist, she can usually get it in check.



Quote:

Originally Posted by keep smilin (Post 795398)
Sandy,

Iam so sorry for Lindsay's flare...Is her tummy not feeling well either??? I tried Methadone and could not take it...it made me very sick to my tummy... I tried it twice matter of fact and results were the same both times!! It is a major narcotic and I truly agree with your concern!!! ESP at Lindsay's age..

Again, I'm sorry....

Hugz, Kathy


hurting 08-13-2011 11:36 AM

Sandy

I was on opana er 40 mg for 1.5 years it was no longer working for me giving me major headaches, foggy head all the time just to name a few side effects and most of all little help with my pain would work for only up to 3 hours. My PM Dr. change me over to methadone starting at 10 mg. 3 times a day and after 30 days uped it to 20 mg 3 time a day. For me it is working well with no side effects.

Cost for the opana was very high vs the methadone. It works for me without any problems. Hope this helps you.

Good luck finding the right pain med.

SandyS 08-13-2011 12:40 PM

Thank you for your response hurting. She has taken everything with no help. She hardly takes any pain meds, just when it gets to be too much. I guess the work methadone just sounds frightning.


Quote:

Originally Posted by hurting (Post 795424)
Sandy

I was on opana er 40 mg for 1.5 years it was no longer working for me giving me major headaches, foggy head all the time just to name a few side effects and most of all little help with my pain would work for only up to 3 hours. My PM Dr. change me over to methadone starting at 10 mg. 3 times a day and after 30 days uped it to 20 mg 3 time a day. For me it is working well with no side effects.

Cost for the opana was very high vs the methadone. It works for me without any problems. Hope this helps you.

Good luck finding the right pain med.


SandyRI 08-13-2011 01:44 PM

I took methadone for a while, just 5 mg. Twice a day. It was the ONLY med that took the horrible sting out of my head, it was a miracle! Methadone works well on nerve pain.

I was also freaked out about the thought of methadone. But it worked really well. Good luck.

Xoxo. sandy

SandyS 08-13-2011 01:44 PM

Thank you my friend. xoxoxo

Quote:

Originally Posted by SandyRI (Post 795463)
I took methadone for a while, just 5 mg. Twice a day. It was the ONLY med that took the horrible sting out of my head, it was a miracle! Methadone works well on nerve pain.

I was also freaked out about the thought of methadone. But it worked really well. Good luck.

Xoxo. sandy


AintSoBad 08-18-2011 01:07 AM

Sandy,
You may recall, that I have been on methadone for more than 20 years, and have tried others, and asked about them too. My doctor, a Genius at RSD, (expartner w/ Dr S) His name is Knobler.. Robert Knobler. D, ddd DAH!

He is truly great.
He keeps me alive! Literally! He makes me walk the narrow path! I admire him and his family!

Anyway, NOTHING has ever helped me, as the cocktail he has me on.
Methadone, for the RSD, (dosage must be titrated to).
Cymbalta, Really helps nerve pain.
Diazepam, for muscle spasm, and to help prevent migraine.
the Generic for Zanaflex, a muscle relaxer, to help sleep. (I also use a CPap machine w/ O2).
Then, the Magraine medication.

So, I cannot speak highly enough for methadone. It stops that BURN. and restores my ability to move. (Nothing is a miracle, btw).

It's only side effect, there is NO 'Buzz', thanks to the lord, but it can cause constipation, for which a little bit of miralax, OTC now, works great!
( A Little) !

I hope this helps, oh Lord, I hate to see our children in pain! I raised two of my own, and, even other children came to me if they hurt. (Not for meds of course) , but I could give them an ice pack, or a heat pack, like that.... let them relax, and know they were cared for. I spent over a decade being 'Mr Mom'.....
Years, that I wouldn't trade for Anything! Ever!

God Bless,,

Pete

asb

elijjennings 08-18-2011 09:32 AM

I am also being switched to methadone this week and I'm really really nervous. I suppose I've only heard about it being used in relation to heroin withdraws! I've also heard it can make you have a very upset stomach. All in all though if it makes the pain go away, even if just down a notch or two. I just can't so much pain any longer. Thanks for all the advice everyone has posted!!!!

finz 08-19-2011 01:54 AM

Quote:

Originally Posted by SandyS (Post 795422)
Hi Kathy,

She just had a pacemaker adjustment. She is better, the pacemaker was the best thing we have done. She has had such a great summer and has totally abused her RSD with fun! I am worried about the Methadone. She hardly every takes pain meds. She is on Cymbalta only for the RSD. they added Neurontin for a few weeks to try to calm it down. I fear the only hope right now is Ketamine. Unfortunately, I have to go back to work and the only time I can take her is in November. Last year was crazy with missing work.

Hopefully, the flare will calm down, I have contacted her OT/message therapist, she can usually get it in check.


Sandy,

NO WAY ON METHADONE for her.

It's a great useful medication in many cases, but has some risk of FATAL cardiac arrythmia issues.

I'll try to find some good articles for you


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