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-   -   changing laws and filing with ada (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/158264-changing-laws-filing-ada.html)

alt1268 09-29-2011 10:10 PM

changing laws and filing with ada
 
I was sitting here in this recliner today and I suddenly got upset over the stress that we all have to go thru on top of being in pain. So my thought process is what do I have to loose.
I contacted the disabilities rights group but they only take cases in California and New york. So tommorow I am filing charges with the ada against my employer who says they don't have a modified position for me as long as I am on a rollabout. But there is a position posted on their website to sit and watch monitors.
I am also going to write my legislation about the rsd education of health care providers . Obviously, that is not happening and then I want to try and get them to change workers comp. law. So that if 2 or more doctors have the same dx. That the workers comp. board should accept. not this crap, their dr. says so you need to try what he suggest and look for employment.

Get this workers comp. dr. says I should try a xylocaine inj. to see what nerve is involved, I should have support shoes and Dr. Scholls inserts. he states I can work a modified fulltime job. No long standing, sitting, climbing, etc. I have met this guy 10 min. for 3 visits over 2 plus years. Wow! :mad:

Russell 09-29-2011 10:50 PM

Anita,
You should contact an attorney that deals with RSD. He/she can do a lot more fighting in the right places. I got lucky and found an excellent one for my case...

Karen67 09-30-2011 07:54 AM

Hi Anita, man oh man... I am already in a surly mood this morning, and then I read your post about your employer and how they are really stickin' it to you!!! I can not believe how they are treating you. HOLY HANNAH I would be wacked out of my mind angry if I was in your shoes! Anyway, I am thinking about you and sending you positive and good ju-ju that this will go your way. :) Karen67 ps- I hope my rant has not fired you up...sorry 'bout that. :(

alt1268 09-30-2011 10:31 PM

Hi Karen,

No your rant didn't get me going, I'm already gone. lol
I just decided enough of people taking advantage of me. Everything I knew as life is gone and what is the worst that can happen if I voice my opionion on behalf of all of us who suffer from discrimination, health care officials who look at us like we have lost our mind, and playing the crappy workers comp. game, that puts so much unnessary stress on us that it causes spread and internal sickness.
The worst is no one will listen. Already got terminated, so they can't fire me. lol:D

Quote:

Originally Posted by Karen67 (Post 810741)
Hi Anita, man oh man... I am already in a surly mood this morning, and then I read your post about your employer and how they are really stickin' it to you!!! I can not believe how they are treating you. HOLY HANNAH I would be wacked out of my mind angry if I was in your shoes! Anyway, I am thinking about you and sending you positive and good ju-ju that this will go your way. :) Karen67 ps- I hope my rant has not fired you up...sorry 'bout that. :(


Karen67 10-01-2011 12:07 AM

Ok...well, I am glad that my spaz out did not put you into in awful headspace. I can tend to get a little worked up when someone I like is getting the screws put to them. Glad you are doing what you need to do and you get down with your bada!* self sistah! BIG *hugs* Karen

Jimking 10-01-2011 07:53 AM

Quote:

Originally Posted by alt1268 (Post 810978)
Hi Karen,

No your rant didn't get me going, I'm already gone. lol
I just decided enough of people taking advantage of me. Everything I knew as life is gone and what is the worst that can happen if I voice my opionion on behalf of all of us who suffer from discrimination, health care officials who look at us like we have lost our mind, and playing the crappy workers comp. game, that puts so much unnessary stress on us that it causes spread and internal sickness.
The worst is no one will listen. Already got terminated, so they can't fire me. lol:D

As someone who does not have RSD and the spouse of one who does everything bolded above in your comment is the common thread that joins most people with RSD together. I've seen it all first hand. And I believe much of it is criminal. Although my wife has had this condition nearly 10 years, is on SSDI and medicare, to this day and just recently a doctor told my wife after seeing her for 5 minutes, without an examination, without reading her records stated that she does not have RSD because RSD does not spread. When he said that I looked at the wife and said "Time to split". I looked at the doctor straight into his eyes and said she's been diagnosed many years ago, been there done that---RSD spreads, do your homework!!

Go after them alt1268, enough of this BS already! :)

ballerina 10-01-2011 04:20 PM

Quote:

Originally Posted by Jimking (Post 811066)
As someone who does not have RSD and the spouse of one who does everything bolded above in your comment is the common thread that joins most people with RSD together. I've seen it all first hand. And I believe much of it is criminal. Although my wife has had this condition nearly 10 years, is on SSDI and medicare, to this day and just recently a doctor told my wife after seeing her for 5 minutes, without an examination, without reading her records stated that she does not have RSD because RSD does not spread. When he said that I looked at the wife and said "Time to split". I looked at the doctor straight into his eyes and said she's been diagnosed many years ago, been there done that---RSD spreads, do your homework!!

Go after them alt1268, enough of this BS already! :)

Just curious Jim, how did you come upon this doc, was he an an SSDI doc? Good for socking it to him. I'll bet you were tempted to contest the charge for the co pay on your credit card.

Jimking 10-02-2011 07:19 AM

Quote:

Originally Posted by ballerina (Post 811158)
Just curious Jim, how did you come upon this doc, was he an an SSDI doc? Good for socking it to him. I'll bet you were tempted to contest the charge for the co pay on your credit card.

I paid the copay, after all, he did see her and talk to her. After he made that statement, my response, I left the examination room, she stayed and talked to him and told him in detail the years of tests etc. and that she is not going to repeat all those tests again and told the doc, you have not read my medical records, so goodbye. I was proud of her because she is on the shy side, stood her ground and was very calm with this doctor in which she told me he actually listened to her.

No, he was not an SSDI doctor. My wife's current doctor does not except medicare, we pay out of pocket. So, we are looking for a doctor who does except medicare and it seems many do not, but this doctor did. We are still searching for a new doctor at our own pace and not rushing it.........yet.

alt1268 10-03-2011 02:51 PM

Jimking, That is horrible. I don't get it. I am so glad you told the doctor to do his/her homework. I am fairly new at this but sitting down, sucking it up, sorry about your luck, ain't cutting it anymore. Thanks for the vote of confidence. Tell your wife I'm sorry she had to be subjectived to that inappropriate behavior.
Anita
Quote:

Originally Posted by Jimking (Post 811066)
As someone who does not have RSD and the spouse of one who does everything bolded above in your comment is the common thread that joins most people with RSD together. I've seen it all first hand. And I believe much of it is criminal. Although my wife has had this condition nearly 10 years, is on SSDI and medicare, to this day and just recently a doctor told my wife after seeing her for 5 minutes, without an examination, without reading her records stated that she does not have RSD because RSD does not spread. When he said that I looked at the wife and said "Time to split". I looked at the doctor straight into his eyes and said she's been diagnosed many years ago, been there done that---RSD spreads, do your homework!!

Go after them alt1268, enough of this BS already! :)



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