Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 09-29-2011, 10:10 PM #1
alt1268's Avatar
alt1268 alt1268 is offline
Member
 
Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
alt1268 alt1268 is offline
Member
alt1268's Avatar
 
Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
Default changing laws and filing with ada

I was sitting here in this recliner today and I suddenly got upset over the stress that we all have to go thru on top of being in pain. So my thought process is what do I have to loose.
I contacted the disabilities rights group but they only take cases in California and New york. So tommorow I am filing charges with the ada against my employer who says they don't have a modified position for me as long as I am on a rollabout. But there is a position posted on their website to sit and watch monitors.
I am also going to write my legislation about the rsd education of health care providers . Obviously, that is not happening and then I want to try and get them to change workers comp. law. So that if 2 or more doctors have the same dx. That the workers comp. board should accept. not this crap, their dr. says so you need to try what he suggest and look for employment.

Get this workers comp. dr. says I should try a xylocaine inj. to see what nerve is involved, I should have support shoes and Dr. Scholls inserts. he states I can work a modified fulltime job. No long standing, sitting, climbing, etc. I have met this guy 10 min. for 3 visits over 2 plus years. Wow!
__________________

.


GOD help me be faithful in the midst of my suffering. Alt1268
alt1268 is offline   Reply With QuoteReply With Quote

advertisement
Old 09-29-2011, 10:50 PM #2
Russell's Avatar
Russell Russell is offline
Member
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Default

Anita,
You should contact an attorney that deals with RSD. He/she can do a lot more fighting in the right places. I got lucky and found an excellent one for my case...
__________________
Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
Russell is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Karen67 (09-30-2011)
Old 09-30-2011, 07:54 AM #3
Karen67's Avatar
Karen67 Karen67 is offline
Junior Member
 
Join Date: Sep 2011
Location: TN
Posts: 91
10 yr Member
Karen67 Karen67 is offline
Junior Member
Karen67's Avatar
 
Join Date: Sep 2011
Location: TN
Posts: 91
10 yr Member
Default

Hi Anita, man oh man... I am already in a surly mood this morning, and then I read your post about your employer and how they are really stickin' it to you!!! I can not believe how they are treating you. HOLY HANNAH I would be wacked out of my mind angry if I was in your shoes! Anyway, I am thinking about you and sending you positive and good ju-ju that this will go your way. Karen67 ps- I hope my rant has not fired you up...sorry 'bout that.

Last edited by Karen67; 09-30-2011 at 07:59 AM. Reason: needed to say I'm sorry for being such a hothead.
Karen67 is offline   Reply With QuoteReply With Quote
Old 09-30-2011, 10:31 PM #4
alt1268's Avatar
alt1268 alt1268 is offline
Member
 
Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
alt1268 alt1268 is offline
Member
alt1268's Avatar
 
Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
Default

Hi Karen,

No your rant didn't get me going, I'm already gone. lol
I just decided enough of people taking advantage of me. Everything I knew as life is gone and what is the worst that can happen if I voice my opionion on behalf of all of us who suffer from discrimination, health care officials who look at us like we have lost our mind, and playing the crappy workers comp. game, that puts so much unnessary stress on us that it causes spread and internal sickness.
The worst is no one will listen. Already got terminated, so they can't fire me. lol

Quote:
Originally Posted by Karen67 View Post
Hi Anita, man oh man... I am already in a surly mood this morning, and then I read your post about your employer and how they are really stickin' it to you!!! I can not believe how they are treating you. HOLY HANNAH I would be wacked out of my mind angry if I was in your shoes! Anyway, I am thinking about you and sending you positive and good ju-ju that this will go your way. Karen67 ps- I hope my rant has not fired you up...sorry 'bout that.
__________________

.


GOD help me be faithful in the midst of my suffering. Alt1268
alt1268 is offline   Reply With QuoteReply With Quote
Old 10-01-2011, 12:07 AM #5
Karen67's Avatar
Karen67 Karen67 is offline
Junior Member
 
Join Date: Sep 2011
Location: TN
Posts: 91
10 yr Member
Karen67 Karen67 is offline
Junior Member
Karen67's Avatar
 
Join Date: Sep 2011
Location: TN
Posts: 91
10 yr Member
Default

Ok...well, I am glad that my spaz out did not put you into in awful headspace. I can tend to get a little worked up when someone I like is getting the screws put to them. Glad you are doing what you need to do and you get down with your bada!* self sistah! BIG *hugs* Karen
Karen67 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
alt1268 (10-01-2011)
Old 10-01-2011, 07:53 AM #6
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Default

Quote:
Originally Posted by alt1268 View Post
Hi Karen,

No your rant didn't get me going, I'm already gone. lol
I just decided enough of people taking advantage of me. Everything I knew as life is gone and what is the worst that can happen if I voice my opionion on behalf of all of us who suffer from discrimination, health care officials who look at us like we have lost our mind, and playing the crappy workers comp. game, that puts so much unnessary stress on us that it causes spread and internal sickness.
The worst is no one will listen. Already got terminated, so they can't fire me. lol
As someone who does not have RSD and the spouse of one who does everything bolded above in your comment is the common thread that joins most people with RSD together. I've seen it all first hand. And I believe much of it is criminal. Although my wife has had this condition nearly 10 years, is on SSDI and medicare, to this day and just recently a doctor told my wife after seeing her for 5 minutes, without an examination, without reading her records stated that she does not have RSD because RSD does not spread. When he said that I looked at the wife and said "Time to split". I looked at the doctor straight into his eyes and said she's been diagnosed many years ago, been there done that---RSD spreads, do your homework!!

Go after them alt1268, enough of this BS already!
Jimking is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Karen67 (10-01-2011), SandyRI (10-03-2011)
Old 10-01-2011, 04:20 PM #7
ballerina ballerina is offline
Member
 
Join Date: Feb 2011
Posts: 393
10 yr Member
ballerina ballerina is offline
Member
 
Join Date: Feb 2011
Posts: 393
10 yr Member
Default

Quote:
Originally Posted by Jimking View Post
As someone who does not have RSD and the spouse of one who does everything bolded above in your comment is the common thread that joins most people with RSD together. I've seen it all first hand. And I believe much of it is criminal. Although my wife has had this condition nearly 10 years, is on SSDI and medicare, to this day and just recently a doctor told my wife after seeing her for 5 minutes, without an examination, without reading her records stated that she does not have RSD because RSD does not spread. When he said that I looked at the wife and said "Time to split". I looked at the doctor straight into his eyes and said she's been diagnosed many years ago, been there done that---RSD spreads, do your homework!!

Go after them alt1268, enough of this BS already!
Just curious Jim, how did you come upon this doc, was he an an SSDI doc? Good for socking it to him. I'll bet you were tempted to contest the charge for the co pay on your credit card.
ballerina is offline   Reply With QuoteReply With Quote
Old 10-02-2011, 07:19 AM #8
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Default

Quote:
Originally Posted by ballerina View Post
Just curious Jim, how did you come upon this doc, was he an an SSDI doc? Good for socking it to him. I'll bet you were tempted to contest the charge for the co pay on your credit card.
I paid the copay, after all, he did see her and talk to her. After he made that statement, my response, I left the examination room, she stayed and talked to him and told him in detail the years of tests etc. and that she is not going to repeat all those tests again and told the doc, you have not read my medical records, so goodbye. I was proud of her because she is on the shy side, stood her ground and was very calm with this doctor in which she told me he actually listened to her.

No, he was not an SSDI doctor. My wife's current doctor does not except medicare, we pay out of pocket. So, we are looking for a doctor who does except medicare and it seems many do not, but this doctor did. We are still searching for a new doctor at our own pace and not rushing it.........yet.
Jimking is offline   Reply With QuoteReply With Quote
Old 10-03-2011, 02:51 PM #9
alt1268's Avatar
alt1268 alt1268 is offline
Member
 
Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
alt1268 alt1268 is offline
Member
alt1268's Avatar
 
Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
Default

Jimking, That is horrible. I don't get it. I am so glad you told the doctor to do his/her homework. I am fairly new at this but sitting down, sucking it up, sorry about your luck, ain't cutting it anymore. Thanks for the vote of confidence. Tell your wife I'm sorry she had to be subjectived to that inappropriate behavior.
Anita
Quote:
Originally Posted by Jimking View Post
As someone who does not have RSD and the spouse of one who does everything bolded above in your comment is the common thread that joins most people with RSD together. I've seen it all first hand. And I believe much of it is criminal. Although my wife has had this condition nearly 10 years, is on SSDI and medicare, to this day and just recently a doctor told my wife after seeing her for 5 minutes, without an examination, without reading her records stated that she does not have RSD because RSD does not spread. When he said that I looked at the wife and said "Time to split". I looked at the doctor straight into his eyes and said she's been diagnosed many years ago, been there done that---RSD spreads, do your homework!!

Go after them alt1268, enough of this BS already!
__________________

.


GOD help me be faithful in the midst of my suffering. Alt1268
alt1268 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
The LAW - Entry Laws & Accommodation Laws OneMoreTime Service & Support Animals 15 05-01-2011 01:31 PM
e-filing taxes Blessings2You The Stumble Inn 14 02-04-2011 08:44 PM
Filing a Second Application SSDIHelp Social Security Disability 0 06-14-2010 03:41 PM
Won on 3 counts with BOLI filing! tjack Reflex Sympathetic Dystrophy (RSD and CRPS) 3 01-11-2010 07:22 AM
Feds are changing pot laws for medical needs? Dejibo Multiple Sclerosis 19 10-20-2009 08:41 AM


All times are GMT -5. The time now is 11:52 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.