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-   -   MS (https://www.neurotalk.org/multiple-sclerosis/161236-ms.html)

kadi1805 11-25-2011 05:05 PM

MS
 
Hi my name is Kathy and I wanted to hear more about MS. Does anyone know what the mri report says extensive multifocal lesions scattered throughout the deep white matter of the cerebral hemispheres.

NurseNancy 11-27-2011 05:06 PM

hi kathy and welcome to NT,

i can't answer your Q but i'm glad you found us.
i'm sure someone will come along and have more info than i do.

looking forward to hearing more about you.

Debbie D 11-27-2011 05:23 PM

Best to talk to your doctor about the report...

Welcome to NT...lots of info, support and laughter here...

Lynn 11-28-2011 06:14 AM

Hi Kathy

None of us here are experts, but welcome and I am sure you will be able to get some great support here.

I can only assume from your post that you have had symptoms that have led to an MRI, but as yet don't have a firm diagnosis.

Others are right in saying that you need to talk to your doctor about the findings - there are lots of reasons why people have lesions on their brain, MS is only one.

Looking forward to getting to know you better

Regards

Lyn

kadi1805 11-28-2011 07:53 AM

MS
 
Quote:

Originally Posted by Lynn (Post 828109)
Hi Kathy

None of us here are experts, but welcome and I am sure you will be able to get some great support here.

I can only assume from your post that you have had symptoms that have led to an MRI, but as yet don't have a firm diagnosis.

Others are right in saying that you need to talk to your doctor about the findings - there are lots of reasons why people have lesions on their brain, MS is only one.

Looking forward to getting to know you better

Regards

Lyn

Thank you for some answers, I do have appt. on Dec. 5th with the nero, Have a great day Kathy

kadi1805 12-07-2011 08:20 AM

Dx ms
 
I was dx on Monday with MS. Friday the doctor still wants me to have a spinal tap. I have lots of brain lesions, he says he want to be real agressive now. It took some years to dx and now he says he needs to start meds soon. Wow 64 and I feel I have had this for some time. I only have certain systems as bad spascitiy and being real tired at times. Bad memory loss and some times balance. Muscle acks at times, hope it is not to late to treat me since I am in my 60. I would like some commants about the age factor. Kathy

Kitty 12-07-2011 09:10 AM

Hi Kathy. So sorry about the dx but at least you have something to aggressively treat.

I was 45 when I was officially dx but feel that I've had MS for quite a while before that. Just didn't know what I had.

It's a guessing game to find what works best for you. Everyone reacts differently to the DMD's. There is lots of info here and lots of folks who have great experiences to share.

NurseNancy 12-07-2011 09:25 AM

i was 53 when i was dx'd. i'm 62 now. i've been on copaxone since '03 and have done well and tolerated it well.

take one step at a time. it sounds like you have a good dr.
let us know what's happening. we're here to help.

Debbie D 12-07-2011 09:42 AM

I was dxd at 53 but feel as if I've had it years before. The docs attributed all the symptoms to my fibromyalgia.

I've been on Copaxone for 3 years now...doing okay.

I experience a lot of pain from spasticity too...and balance issues, cognitive dysfunction, bladder/bowel...all sorts of fun. I still manage to enjoy life though.

Why have a spinal tap when you have a firm diagnosis? It's one of the diagnostic tools. If you have the dx, why go through that?

Let us know if you are going ahead with the spinal...we have advice on how to deal with it afterwards.

Glad you found us!!

kicker 12-07-2011 09:50 AM

Quote:

Originally Posted by Kitty (Post 830538)
Hi Kathy. So sorry about the dx but at least you have something to aggressively treat.

I was 45 when I was officially dx but feel that I've had MS for quite a while before that. Just didn't know what I had.

It's a guessing game to find what works best for you. Everyone reacts differently to the DMD's. There is lots of info here and lots of folks who have great experiences to share.

What Kitty said. I was 46 when diagnosed in 2002, suspect I had it since '94, what Kitty says, it's a guessing game. Making some lemonade from these lemons (the ones I haven't squirted in others eyes)eventually diagnosed PPMS but at least I was kinda old before things got really bad and my kids almost grown. At least it's me, not them. Hey, best lemonade I've got.


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