Neuropathy
 

Hi,
I have been suffering with neuropathy for about 7 months. Started off in my feet and his moved into my calves as well. I have seen a neurologist. I had an EMG done. There is some nerve damage noted, with a small amount of muscle too. I have cold sensations starting at my ankles into my feet. The doctor does not seem too concerned. He said that my next step would be a spinal tap. He thinks I could have possibly had some type of infection years ago and since I have been under tremendous stress (my mom passed away 9 months ago) it could have triggered something. My blood work is perfect (thyroid, diabetes). I am beginning to wonder if I have some type of food allergy. I am an avid Splenda user (I use alot). I stopped for about two weeks, but got back on it. Just would love someones else's opinion on what this could possibly be. I forgot to mention that I have been on a series of B12 injections for about three months. Thanks for any input :))

Welcome to NeuroTalk:

I invite you to visit our PN forum, and do some reading.

The B12 thread:
http://neurotalk.psychcentral.com/thread85103.html

And our Subforum with many informational posts:
http://neurotalk.psychcentral.com/forum119.html

And the regular forum for conversation:
http://neurotalk.psychcentral.com/forum20.html

There are many possibilities for you, but we need to know more
about you in order to set you on a path, where you may be
able to heal from this. No guarantees, but some people can arrest or regress PN depending on your circumstances.

Nice to meet you!!
 

I have neuropathy in my feet and so does my brother. Our neuropathy is a side effect of medication. We use benefotamine which is a B1. You can google it for the address if you are interested. I do not sell this product or have any affiliation with the company nor am I a doctor. But I can tell you that it works for us.

Hello Staci
 

Welcome to Neuro Talk. You found a good site, and there are lots of compassionate people here as well. I also have PN in my left foot and calf. Maybe RSD I really don't know yet. My doctor put me on the same B12 as you, and told me that is one of the best things I can do. She is a physiosist, and did give me some other suppliments too. I am sorry you suffer with this. There are medications that help. I don't know if I would have a spinal tap for this or not. It would take a lot of convincing for me anyway. I don't go quietly to invasive proceedures very well. Keep posting to the PN forum with any of your concerns. Ginnie

hi i also have neuropathy and rls. when my blood work came back i had a vit D level of 9 no kidding.any way one more week of the 50000u of vit D2. I tried B12 before my blood work came back and it kicked my RLS into high gear. I was so bad i had it all day which i had not had in a few years, went off b12 still have days of all day RLS. Will be retested on the vit D in 2 weeks and will continue wit 2000 u per day. Maybe it wont be so low this time.
Brenda

jazimar
 

Do you take supplements other than benefotiamine? How much do you take a day?

I have been taking the benefotiamine, 100mg's about 3 to 4 a day, along with Methylcobalamin B12 and stabilized R- Lipoic Acid for 5 or 6 months. At first things seemed better; but now am really having a lot of pain; especially burning of feet and ankles.

Has the Benfotiamine improved your burning/PN??

Thanks,

Gerry