Finally Seen MS Specialist
 

:confused: well my appt was this morning and I took all my cd's and symptoms and test results. he had all my records and he didn't let me tell him all that I was going through and because I past the neuro test as I always do except that I almost fell in the hallway trying to walk one foot in front of the other.

So he said you don't have MS and he thinks I have diabetes which is causing my feet to burn and hurt but it is not showing it in my test but just seem a little elevated he said it can skip that. Then he wants my heart checked again because he wants to make sure that the lesions in my brain is not a result of clogged vessels I think he said and he didn't say why my tremors or twitches just that they have nothing to do with MS. So right now my body is split in half and oh he wants to do my lupus test over since I have my sister and cousin that have that I could be having symptoms of that but not showing on the test when it is taken. I think I remembered everything.

Nothing??? no one has nothing for me? I mean does this sound like something that you all been through? in March the one dr said it was now the new dr saying no it is not that. I know I have read what you all have been through so I am not surprise but I will go through all the test because you never know. and like someone told me before in another post that you can have more than one thing at a time.

Oh and he did say he do not think it is anything NEURO

most folks with diabetes have high blood sugars. are yours raised? Peripheral neuropathy can be so painful, but it can come with so many conditions. MG, MS, Lupus, lyme...the list goes on and on.

From the tone of your post (dear god its hard to tell intent, tone and humor in posts) it appears as if you think he wasnt listening, and maybe was a bit dismissive. If this is the case RUN to the next neuro. I saw one neuro who said "youre too old to have MS" I said "not if I have had it for years and no one caught it!" He didnt have an answer for that. He went on to say "still dont think you have it." went to the MS center who said "oh yeah! you have MS" They felt it so strongly I got to skip the spinal tap. So, if you are not syncing with this one, get a new one.

YES! we frequently have multiple issues. I have a brain tumor, sjoghrens, arthritis, and migraines. It seems that if you have one auto immune disorder your body tends to allow others in the door more easily.

Best advice is to clean up your diet (i have no idea what you eat now) but to clean out the processed foods, over salted, over manipulated stuff, and try to get wiggling. Even if its chair exercises. It helps burn off that cortisol that comes from having a stressful disease. Whether that is MS or diabetes or porphyritic stuff. (thought of you mariel)

Do you think you want to see another neuro? or were you happy with the answers this one gave you? Many of us go thru several before we find someone to listen to what we are saying. you say "my feet are burning!" they say "wear lighter socks!" you say "im off balance" they say "get up slower" its like...DUDE! thats not an answer its dismissive!

Your Neuro sounds pretty sure you don't have MS or even a Neurological disease. If you are not buying his DX or lack of a DX, then your best best is to get a second opinion, preferably at a MS clinic.

I hope you find answers soon and please keep us posted. We care..:hug:

He acknowledge that I have lesions, he acknowledge that 3 bands exist in my spinal fluid and he seen that all test for other diseases came back neg. He told me all in bold and it was hard to understand him because of his accent. So then he started braking things down in my body and saying my lower back degenerative disc disease could be worst than what we think so he wants mri for that. He wants my primary to check my heart to make sure the lesions were not cause by inflammation of the blood vessels. Then he didn't have anything really for the 3 bands in the spinal fluid except that with all that I have going on who knows. I am border line diabetic and I have high cholesterol. I eat a lot of chocolate and I mean a lot. So I know I have to change my eating habits for sure and I was working on that right now before I went to see him. But in the mean time my fingers keep cramps and stiff and the fatigue in my upper arms he could not explain that because he told me my neck disc were not that bad to cause that.

That was the MS clinic but he didn't give me a chance to speak to tell him what is going on with me. I wrote all my symptoms down because someone on the forum advise it to someone. I never got to read any of it I never got to show him the videos of my tremors or twitches he just said I don't see them today so I can not say they are hear. my old neuro at least looked at the videos.

He just seem like the big time dr that was showing his students that on paper there was nothing so there is nothing and that I past his in the office neuro test so that is that. I am letting him get the mri for my lumbar and see what he comes up with.

Oh and I just remembered I don't have another appt with him until NOV oh and he told me to go back to my old neuro

So, let me get this straight. You have brain lesions and O Bands in your spinal fluid and this guy is straight out dismissing MS as a possible dx? If that is the case, find a new doc - one who listens and can speak English clearly. Bizarre!

Ouch!!!! Sounds like this guy just doesn't want to be bothered pursuing a diagnosis. I agree with Holly and the others............find a new neuro!:hug:

yes old lesions and 3 bands and he said no to ms and I asked him but what about the bands??? he said there are so many things that is wrong with you with my disc it could be the cause I don't know.