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Hi :)
Hi, My Name is Gypsy and I live in Australia. After a misdiagnosis, wrong medication & medical mix-up 2 years ago, I've now been diagnosed with a rare form of Neurotoxic Syndrome. Life has changed alot and Im hoping to learn from others experiences and share my own. Im not quite sure which group I fit into so if any one has any suggestions it would be helpful :) My symptoms include a neurological sequalae with ataxia, twitches, uncontrolled movements, etc, Extreme Fatigue, cognitive difficulties & neuropathy among other things. This has left me virtually housebound, without my career and very isolated. However I am very proactive with my recovery, try both western and alternative therapies,attend physio, have a carer & exercise reguarly, other than this there is not much else available. My prognosis is unknown and my treatment only supportive. Does anyone else have a neurotoxic syndrome ? If anyone has any ideas or advice it would be much appreciated.
Warm Wishes Gypsy |
Nice to meet you!!
Gypsy,
:Wave-Hello: Hello and welcome each of you to NeuroTalk. Happy to see you have come to be with us. Here are a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place. Click on the following forum for some assistance. http://neurotalk.psychcentral.com/forum12.html Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray: Darlene :hug: |
I am new to
Sorry to hear of your illness. I have PCS no the same but wanted to let you know I am impressed by your gumption. Not sure I would have dealt with it very well. I will keep an eye out for information and let you know if I find any.
Hope you feel better |
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