Hi, My Name is Gypsy and I live in Australia. After a misdiagnosis, wrong medication & medical mix-up 2 years ago, I've now been diagnosed with a rare form of Neurotoxic Syndrome. Life has changed alot and Im hoping to learn from others experiences and share my own. Im not quite sure which group I fit into so if any one has any suggestions it would be helpful My symptoms include a neurological sequalae with ataxia, twitches, uncontrolled movements, etc, Extreme Fatigue, cognitive difficulties & neuropathy among other things. This has left me virtually housebound, without my career and very isolated. However I am very proactive with my recovery, try both western and alternative therapies,attend physio, have a carer & exercise reguarly, other than this there is not much else available. My prognosis is unknown and my treatment only supportive. Does anyone else have a neurotoxic syndrome ? If anyone has any ideas or advice it would be much appreciated.
Warm Wishes
Gypsy