NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   New Member Introductions (https://www.neurotalk.org/new-member-introductions/)
-   -   Small fiber neuropathy (https://www.neurotalk.org/new-member-introductions/174716-fiber-neuropathy.html)

Love62 08-13-2012 04:12 PM

Small fiber neuropathy
 
I was diagnosed in April with peripheral neuropathy in my feet/legs. My new neurologist says I have small fiber neuropathy in my feet/legs. I also have burning/tingling/electric shocks in my hands. neurologist says I can't have SFN in my feet and hands, that I most likely have carpal tunnel. Going in for a EMG/Nerve test on my hands tomorrow.

First, why the different diagnosis?
Second, Why can't I have both in feet & hands?
Third, as long as the medication works, I guess the diagnosis shouldn't matter.

I am on gabapentin. Right now I take 600mg 3x a day, every three days increase by 300mg until I reach 1200mg 3 times a day. Medication isn't working as of yet, and the side effects are awful

Rrae 08-13-2012 04:25 PM

Hello Love62!
 
Welcome to NT! :hug:

So sorry you are battling this frustrating condition.
You've found a great place for support and lots of information.
Check out the Peripheral Neuropathy forum! Lots of great people there in the same boat. You'll feel much better just knowing that you are not alone in this.

Come on over and meet folks who truly understand what you are going thru. Here's the link to get you there.
http://neurotalk.psychcentral.com/fo...aysprune=&f=20

It's great to have you!

Caring,
Rae
:grouphug:

Darlene 08-14-2012 12:39 AM

Hello & Welcome!!
 
Love62,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on her condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

glenntaj 08-14-2012 06:38 AM

It's really annoying--
 
--that a medical professional told you that you can't have small-fiber neruopathy in your feet and hands--the small, unmyelinated fibers that subsume the sensations of pain and temperature are all over the body, wherever there is skin, and small fiber neuropathy can be felt in any part of the body.

Perhaps a second opinion is called for, with a more expert specialist, or at a tertiary center that specializes in neuromuscular conditions?


All times are GMT -5. The time now is 08:18 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.