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-   -   Peeping for the longest (https://www.neurotalk.org/myasthenia-gravis/180189-peeping.html)

NinaMaxine 11-26-2012 12:07 AM

Peeping for the longest
 
Hi everyone,

I have been lurking the pages for over two weeks. I finally decided to register and post with other MG'ers! I will share my story later. Trying to rest but the prednisone won't allow me. So I'm going to pray and meditate!

Peace and blessings

AnnieB3 11-26-2012 01:09 AM

From peeping to one of our peeps. ;) Welcome, NinaMaxine. Do you like to be called Nina?

A lot of people have insomnia with Pred.

I hope you'll share when you're able to. You'll find that everyone here is very supportive and has a lot to share.

Annie

Anacrusis 11-26-2012 12:09 PM

Look forward to hearing your story. Glad you wanted to join after peeping! :)

Alan53 11-26-2012 02:45 PM

Welcome Nina the first time I told my story really helped me
I'm sure you will find it helpful:)

NinaMaxine 11-26-2012 08:24 PM

Hi all,

I got diagnosed in June 2009 after walking around with double vision for almost 2 months. Shortly after my arms started getting weak and I found myself being very fatigued. When walking upstairs my heart would start pumping like crazy! I was in the tub and almost fell out when reaching for the soap. I got out the tub where I was feeling so weak. I called my sister and told her something was seriously wrong and that I was dying. My sister started crying and screaming I was not dying. But I beg to differ, my body was leaving me and I had this peace come up on me that I can't explain! My family prayed me through because as I lay in bed looking at the ceiling I knew it wasn't my time yet!
And whatever I was going through it wasn't about me
But about helping those get through! We will make it through this together! I'm so thankful I found y'all! :grouphug:

Hometown Chicago, IL
Relocated to Carmel, IN in 2008
IVIG treatments every Saturday (10 weeks) on week 2
Prednisone 40 MG once a day
Mestinon 60 MG once a day
Ativan when needed (anxiety)


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