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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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New Member
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Hi everyone,
I have been lurking the pages for over two weeks. I finally decided to register and post with other MG'ers! I will share my story later. Trying to rest but the prednisone won't allow me. So I'm going to pray and meditate! Peace and blessings |
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#2 | ||
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Grand Magnate
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From peeping to one of our peeps.
![]() A lot of people have insomnia with Pred. I hope you'll share when you're able to. You'll find that everyone here is very supportive and has a lot to share. Annie |
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#3 | ||
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Member
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Look forward to hearing your story. Glad you wanted to join after peeping!
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#4 | |||
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Member
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Welcome Nina the first time I told my story really helped me
I'm sure you will find it helpful ![]() |
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#5 | ||
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New Member
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Hi all,
I got diagnosed in June 2009 after walking around with double vision for almost 2 months. Shortly after my arms started getting weak and I found myself being very fatigued. When walking upstairs my heart would start pumping like crazy! I was in the tub and almost fell out when reaching for the soap. I got out the tub where I was feeling so weak. I called my sister and told her something was seriously wrong and that I was dying. My sister started crying and screaming I was not dying. But I beg to differ, my body was leaving me and I had this peace come up on me that I can't explain! My family prayed me through because as I lay in bed looking at the ceiling I knew it wasn't my time yet! And whatever I was going through it wasn't about me But about helping those get through! We will make it through this together! I'm so thankful I found y'all! ![]() Hometown Chicago, IL Relocated to Carmel, IN in 2008 IVIG treatments every Saturday (10 weeks) on week 2 Prednisone 40 MG once a day Mestinon 60 MG once a day Ativan when needed (anxiety) |
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