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-   -   Altitude HELP! (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/184754-altitude-help.html)

MiaVita2012 03-01-2013 10:46 AM

Altitude HELP!
 
I have never had altitude sickness!I want to go to the mountains this weekend to get away(no sports).I was wondering if I could get feedback on PCS symptoms and their experiences with altitude.I never suffered from it before.My MD does not advise because altitude:thud:I am pretty much open since this is like the 4th vacation I have missed in last 6months.(?PUSH?)
:grouphug:

MOMMYMBD 03-01-2013 10:55 AM

I pushed myself through a vacation with my family a few months after my main symptoms got bad and it was much needed. It was an altitude decrease for me, which yes the pressure was there as well as the light issues but in my attempt it was worth it. It wasn't much worse to me than a normal rainy day pressure and though I don't remember all of it I had a great time and so very needed to get away.

Quote:

Originally Posted by MiaVita2012 (Post 961813)
I have never had altitude sickness!I want to go to the mountains this weekend to get away(no sports).I was wondering if I could get feedback on PCS symptoms and their experiences with altitude.I never suffered from it before.My MD does not advise because altitude:thud:I am pretty much open since this is like the 4th vacation I have missed in last 6months.(?PUSH?)
:grouphug:


Brain patch 03-01-2013 11:00 AM

Go on the vacation
 
I would recommend you go on the vacation. You may find that you cannot walk very far without getting out of breath but you can always sit and look at the beautiful scenery. You need to get away. Do it. :hug:
Brain

MiaVita2012 03-01-2013 11:05 AM

Thanks Mom~I am on the down side now of symptoms I have the least in year and half.I was miss directed for a year before I had finally got diagnosis and that was in Nov 2012....So I was pushing myself the whole time of The "unknown" diagnosis and it was not fun!But I made it threw and now after 4 months of nothing but rest....I am getting really bored now lol!I just don't want to ruin trip....maybe it's just the negative fears?IDK

MOMMYMBD 03-01-2013 11:10 AM

I felt the same way 100% and he's right, there will be times you won't be able to do certain things but make sure your family knows it's ok to go without you and don'tbe upset about it! Just use that time to grab your shades and sit outside and relax a bit. My boys wanted to go hiking an old waterfall area and I knew that at that point I wasn't up to it so I sat on the hill feeling a little sad... then a squirrel came up and i fed it and watched him play and it made such a difference in my whole outlook.

I"m sorry yours took so long to diagnose. I am still in that hole. No one knows why I am still having any issues so I am starting to brank out and find my own specialists who treat my symptoms and see if someone can't help. It sucks that we suffer longer, and go without life's fun because people don't know and won't research. I didn't ever find anything until I found this site where everyone basialcly found that ONE doctor who figured it out, finally.

Quote:

Originally Posted by MiaVita2012 (Post 961823)
Thanks Mom~I am on the down side now of symptoms I have the least in year and half.I was miss directed for a year before I had finally got diagnosis and that was in Nov 2012....So I was pushing myself the whole time of The "unknown" diagnosis and it was not fun!But I made it threw and now after 4 months of nothing but rest....I am getting really bored now lol!I just don't want to ruin trip....maybe it's just the negative fears?IDK


MiaVita2012 03-01-2013 11:17 AM

Ya in some cases it was kind of good in my eyes for long diagnosis because I did push threw the really BAD symptoms but now I have perm impairments...IDK if having a diagnosis earlier would of stopped the impairments or not....Back to subject I just do not want to live in fear of getting sick and ruin my own get away....but I also do need it greatly!!!What did you take to help you with altitude sickness?:confused:

MOMMYMBD 03-01-2013 11:20 AM

I have meds I was given in the ER at the very beginning for vertigo, they helped emmensely, it's basicallly a prescription strength dramamine though I can't remember the name of it.

Quote:

Originally Posted by MiaVita2012 (Post 961830)
Ya in some cases it was kind of good in my eyes for long diagnosis because I did push threw the really BAD symptoms but now I have perm impairments...IDK if having a diagnosis earlier would of stopped the impairments or not....Back to subject I just do not want to live in fear of getting sick and ruin my own get away....but I also do need it greatly!!!What did you take to help you with altitude sickness?:confused:


MiaVita2012 03-01-2013 11:24 AM

Thanks...I am still pondering this thought....I just emailed MD to see about some meds....otherwise I have my valium...he is more concerned about headaches amongst vertigo.
Quote:

Originally Posted by MOMMYMBD (Post 961832)
I have meds I was given in the ER at the very beginning for vertigo, they helped emmensely, it's basicallly a prescription strength dramamine though I can't remember the name of it.


PCS Mikey 03-01-2013 11:24 AM

Quote:

Originally Posted by MiaVita2012 (Post 961813)
(?PUSH?) :grouphug:

Hi Mia~

In the past 3 years of my adventures in PCS I've made several trips to Flagstaff, AZ which the elevation is around 7,000'. I live at about 1,200' elevation and for me, fortunately, the change in elevation didn't cause any issues, but that was me and I had to put my toe in the water to see what would happen.

I'm not sensitive to pressure changes with weather changes either. Those pressure changes are minute (small) when compared to the change in elevation from here (Phoenix) to much higher elevations.

Take your time, don't over commit yourself to any speed hiking at altitude, stay hydrated, and just enjoy! :)

Mike

MiaVita2012 03-02-2013 02:24 PM

Bummed but for the GOOD!
 
I had to stay behind because I cannot miss appt with new vestibular therapist this week.I have waited a month for this appt.I feel fine about missing trip.....I just have so much energy and ready to get this vestibular going because I will be 2years in less then 6months.

But I did make it out to socialize....I went to a bar/club with a friend and had one Merlot, had fun, feel fine today,And realized my charisma is coming back!

One of my friends came to see me back in Jan (before I got meds) and gave advice:That no matter what everyday I get dressed like you have somewhere to go 5days out of the week and at least leave the house daily for at least 30min....well I took it and have ran with it lol!!!I don't want to stop pushing to regain life and the only way I pump my breaks lol is if body declines....I told myself the next few months until I hit 2year mark is dedicated to vestibular.....I might get angry because I am putting car keys up for some months because I will do my vestibular with MD and constant @ home:D


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