my doctors say never have seen someone like me
 

Hi!:)

Yep, it's me again! But this is kind of important right now. I am having a neurologist appointment tommorrow!
Today my vestibular theraphy therapist(30 years of experience) and me were discussing my symptoms. I am not having any cognitive damage at all. My balance improved to normal trough theraphy.

Visual snow, Dream Feeling, Flashes, Light+Sound Sensivity, lightheadedness, Ice pick headaches and ear ringing, Tingeling+electric shock feeling
are my symptoms.
It's gets worse trough stress and concentration. The symotinms are there all the time, not just coming and going. It's like being trapped in that migraine aura all the time.
She told me, that she, in her 30 years of working with concussed clients, has never seen anyone like me. She talked with another doctor of mine. They both agree I might have Post Concussion Migraines.
They are kind of helpless! It's no upper neck issue, I asked because of that.

So, I really want some kind of meds that will decrease my concussion level. I never have rested so much in my whole life but there is no improvemnet. Not even a single symptom improved a bit.
All the symptoms occured after I stopped playing sports with a concussion.

So, there are a lot of question I am gonna asked tomorrow! Did anyone went trough that too, or knows any medications for that? Or any question I could asked my neurologist? Is it possible to heal from Post Traumatic Migraines, or did I damage my brain?
Thanks and sorry for spamming!:winky:

Lui,

I have looked through your past posts, and may have missed a few:

- what medications are you taking?

- are you on the supplements suggested on Mark's listing?

I understand your anxiety when you hear such news from your health providers but there are still avenues of therapy available, hang in there.

:grouphug:

Best Wishes.

well yeah, my neurologist just told me that I have probably damged my brain for my wohle life. They gonna check my eyes and my spine.

I doubt it. They just have not found the problem yet.

Often, when doctors can not fix a problem, they either say the problem does not exist or that they can't help.

i think so too. they gonna do an mri of my spine and eveluate my eyes.

Lui,
Don't stress too hard. The doctors told me that I would die and do not know how I lived. They just do not know everything for fact. They make their best guess but sometimes they are wrong. Prove them wrong!
Let us know what happens. Good luck.
Brain :hug:

So I should lay back and not worry becasue it's gonna go away wih time? I mean I'll have a lot of time!

No. That is not what I am saying. What I am telling you is that no matter if your brain is damaged for life, you still have a life and you will have to find ways to work around the disability. It is a new kind of life but all hope is not gone. I know it is hard hearing what the doctors are saying. I too have a brain injury that looks like it is for life. I also had liver and kidney failure that they told me I would die from and am almost 100 percent healed from that. Do you have a fighting spirit? It can go a long way.
Brain

Yes! I have decided to prove them wrong! I will do everything to show them that there is a way. I haven't given up yet! I am super positive that this will heal with time! Even if not, I'll learn to live with that! I think the most importasnt thing is, to NOT get depressive about it. I think everything is possible with a positive attitude. :)
The worst thing are my parents. They just can't deal with the fact that I'll come back not as healthy as I used to be. They shout at me, that this is all my fault and that I am just imagine that.
The last time they told me that, I started spoert with a concussion...:winky:

Yeah! Good for you. That is what I was looking for. :hug:
Don't worry about the family. They will come around. Ultimately, they do love you and just do not understand how life changing your injury is. They are trying to push you and probably just thinking you are having anxiety. You will need to educate them. Even with that you may still have some family members who just don't get it. Don't worry about them. You don't need the negativity.
That is the thing too is to fight the depression with all you have got.
I believe in you.
Brain