NeuroTalk Support Groups - new here struggling w chiari and ddd

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- - new here struggling w chiari and ddd (https://www.neurotalk.org/new-member-introductions/188772-struggling-chiari-ddd.html)

new here struggling w chiari and ddd

Hi all. I've been unable to work for five years now due to symptoms that docs can't tell me if it's BC of my chiari malformation or my cervical disc disease. SO frustrated! Two weeks ago things got way worse, after getting two cervical epidural injections. Now having trouble in my right arm which was fine until now. Saw my NS and he has no idea so he said I must have conversion disorder. I thought, OK, great if it's in my head (ironically, it is, my brain is crammed into my scull and pushing out into my spinal canal) I can see a psychiatrist in addition to my therapist and make all this suffering and helplessness go away.

Then I went home to research conversion disorder, the doc didn't really explain it to me, and that is not me AT ALL. I have a medically documented illness and I am not crazy. He just doesn't know what to do. So I'm firing him and traveling to the May field Chiari Center in Cincinnati. It feels like starting over, but I'm optimistic and hoping to get better.

I hope to talk to others here who have gone through some of the same things. Thanks for listening!

Nice to meet you!!

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summergirl,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Sad to hear about the problems you are having, hope you have better luck with Cincinnati. Here is the forum to the Arnold Chiari Malformation & Syringomyelia.

http://neurotalk.psychcentral.com/forum71.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Welcome to Neuro Talk Summergirl!! Sounds very challenging what you have been through. When I first read you post I had to look up and read about Chiari. I didn't know we had a forum for this condition. Darlene is so good to show the way to get there. You take care and keep us updated and I hope you find some answers to your questions.

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