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-   -   Whoot Whoot SCS trial started today (https://www.neurotalk.org/scs-and-pain-pumps/190337-whoot-whoot-scs-trial-started.html)

zookester 06-20-2013 08:52 PM

Whoot Whoot SCS trial started today
 
I just can't express how very blessed I feel right now to be out of pain! Happily buzzing now with my trial Medtronic SCS. The ONLY pain I now feel is the slight soreness from where the leads are placed but the pain I had felt from the Neuroma and CRPS 2 is very much masked. YIPPEE YAHOO.. I feel like jumping up and down for JOY!

Thanks to all; for your stories allowed me to make my decision going forward with this trial.

Tessa

“Be strong and of a good courage, fear not, nor be afraid of them: for the LORD thy God, he it is that doth go with thee; he will not fail thee, nor forsake thee.” Deuteronomy 31:6

Hannabananna 06-20-2013 09:51 PM

Yayyyyy
 
Oh how wonderful!!
NO JUMPING!!!

Now as you have read the trails are many times more effective than the implant...

Enjoy...it is such relief....so happy for you
J

Mark56 06-20-2013 11:36 PM

Dear Tessa
 
Quote:

Originally Posted by zookester (Post 993969)
I just can't express how very blessed I feel right now to be out of pain! Happily buzzing now with my trial Medtronic SCS. The ONLY pain I now feel is the slight soreness from where the leads are placed but the pain I had felt from the Neuroma and CRPS 2 is very much masked. YIPPEE YAHOO.. I feel like jumping up and down for JOY!

Thanks to all; for your stories allowed me to make my decision going forward with this trial.

Tessa

“Be strong and of a good courage, fear not, nor be afraid of them: for the LORD thy God, he it is that doth go with thee; he will not fail thee, nor forsake thee.” Deuteronomy 31:6

About sleep- you asked and I responded in a Private Message, you can access it readily by scrolling to the upper right hand corner of the Neurotalk screen where you will see your login name, your stats, and a little blue hyperlink to your Private Messages. Click on it and you will be zoomed to the message window where you may safely select to open the message I sent in reply to your questions about sleep and sitting.

Now, for something not covered in that Private Message, but needful just now that I read your forum post about "jumping up and down." DON'T! Feel the temptation, experience the joy, and revel in the relief. Remember BLAST.

Jumping definitely involves Stretching, the S of BLAST, so no Bending, Lifting Stretching, Twisting.....seriously. OK?

Now, lay on your side if that works, put a pillow between your knees and slip off to slumber safely.... then tomorrow after arising, relax knowing it will be OK to recline gently against fluffy pillows for ease while you enjoy. Then as the week progresses, walk and such carefully to see how the "test drive" of your SCS fits your needs.

Prayin all will be well for sure,
Yup :hug:

zookester 06-23-2013 09:22 AM

Day 1 & 2 - SCS trial (CRPS 2)
 
Wow.. I am just amazed at how this technology pleasantly masks the pain!

On day 1 most of the pain where the leads placed settled so I was able to do some home PT. I carefully situated myself on my recumbent bike and peddled happily for 2 - 30 min sessions with very low tension... ahhh it felt good to get my legs moving! I did have to turn the stim up a little while on the bike but, so happy that in doing so I was able to complete my session with a smile.

Day 2 was even better. My husband and I went on a little trail hike together. The fresh air and lush forest made for a spectacular day. Without the SCS I wouldn't have been able to do this!! We walked the trail for about 2.25 miles and afterwards the tears that rolled down my face were out of pure joy!!

I slept last night for 3 hours straight YIPPEE YAHOO!

God bless each and every one of you!

Tessa

Hannabananna 06-23-2013 09:57 AM

tears to mine also
 
thank you for sharing your JOY

Mark56 06-23-2013 12:41 PM

Well Hey Tessa.....
 
Sounds as though God has Blessed YOU!!!

Recumbent bike and walk? Pure joy that must be. YUP tears of joy are absolutely positively assuredly certainly and deliciously FINE!!!!

Enjoy! :D :D :D :D :D :D :D :D :D

zookester 06-23-2013 06:19 PM

Quote:

Originally Posted by Mark56 (Post 994648)
Sounds as though God has Blessed YOU!!!

Recumbent bike and walk? Pure joy that must be. YUP tears of joy are absolutely positively assuredly certainly and deliciously FINE!!!!

Enjoy! :D :D :D :D :D :D :D :D :D

Hey Mark,

Oh YES I do feel blessed indeed - God is good!

Another great day of blissful buzzing. Now I am trying to figure out how to get this swelling to recede; anyone out there have any ideas regarding that?

Rejoice!

Tessa

Mark56 06-24-2013 12:55 AM

Cold Packs
 
Quote:

Originally Posted by zookester (Post 994698)
Hey Mark,

Oh YES I do feel blessed indeed - God is good!

Another great day of blissful buzzing. Now I am trying to figure out how to get this swelling to recede; anyone out there have any ideas regarding that?

Rejoice!

Tessa

Those blue gel cold packs you may acquire in most pharmacies help. Time also helps and it costs less :). No matter the size of the wound, you are dealing with a wound, and swelling nearly always goes hand in glove with a would [ even a couple of weekends ago when I fell from the tongue of our boat trailer as we were launching the boat and I had to be on the bow to release the tether hook- ripped off my left little toenail and a goodly amount of skin on the bottom side of the toe and sole there. :o Now, courtesy of my nerve damage, I did not feel a thing, BUT the foot swelled nevertheless and wearing even my crocs to work was a challenge for about ten days thereafter].

So...... time and blue gel thingies.....
Yup, :hug:

Mark56 06-24-2013 12:59 AM

Oh, By the Way..... at MDinPain
 
Hey there, in case I did not mention boating as a something one can do to get OUT, enjoy the OUT, mostly NOT hurt the back by throwing it OUT, and not doing goofy things which might rip the stim cabling OUT...... boating is a good thing, and your kiddos are likely to enjoy it as well.

We even went today, and it was good being out again with an overcast sky, tempers of other boaters were in check, the company was good [friends] AND we were able to share a picnic together. There were no falls, no injuries, no tough stuff today. A good one indeed.

Yup, :D

zookester 06-24-2013 06:37 AM

Quote:

Originally Posted by Mark56 (Post 994746)
Those blue gel cold packs you may acquire in most pharmacies help. Time also helps and it costs less :). No matter the size of the wound, you are dealing with a wound, and swelling nearly always goes hand in glove with a would [ even a couple of weekends ago when I fell from the tongue of our boat trailer as we were launching the boat and I had to be on the bow to release the tether hook- ripped off my left little toenail and a goodly amount of skin on the bottom side of the toe and sole there. :o Now, courtesy of my nerve damage, I did not feel a thing, BUT the foot swelled nevertheless and wearing even my crocs to work was a challenge for about ten days thereafter].

So...... time and blue gel thingies.....
Yup, :hug:

lol.. I should have clarified a little about the swelling I was trying to treat. My swelling down my leg is from the CRPS 2 so although I would normally use those great little gel packs, in this case I cannot :( Ah.. but just as I am typing this, I answered my own question. Thanks Mark for your help in stimulating my brain enough to remember... I had previously used an ice/heat compression machine that was prescribed after my hip surgeries. I'll bet that the heat/compression setting would work out just dandy! Oh, thank you for making me think!

Whooopsies.. I had an allergy sneak sneeze attack yesterday and after it passed I realize that my SCS had lost its programming on my favorite setting.. ugh. Maybe one of you know if with only 3 days left in my trial if it is worth seeing if it can be adjusted? The other program is okay, its just that the area of stim isn't as precise as the group I lost. Any thoughts? Darn allergies..

May today bring you a special blessing,
Tessa


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