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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   CRPS on the BBC News website (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/191025-crps-bbc-news-website.html)

anon6715 07-06-2013 06:57 AM

CRPS on the BBC News website
 
albeit in the US & Canada section

http://www.bbc.co.uk/news/world-us-canada-23152464

mollymoo123 07-06-2013 01:24 PM

Cheers. its kind of strange watching a news piece on CRPS. :eek: I wont say that I see CRPS the way it was reported, But how can they tell it how it is unless they have had it. Now im off to convince my brain.......:p

Also that second girl looked like a zombie. I felt for her, she looked zonked out on meds. I wouldnt wish this on any child.

Kevscar 07-07-2013 01:53 AM

Kim Is there any chance you can join us for the Debate Tues 9th 4.30PM Westminster Hall. Hope wecan meet with Mp's and some Press afterwardds and make them aware of just how bad this is.

Vrae 07-08-2013 03:25 AM

This is hard enough to deal with as an adult, I can’t even imagine what it is like to be a young girl/boy growing up with this. Or to be a parent of a child with CRPS. What a helpless feeling for a parent.

What is it they say in Hollywood, any press is good press. I’m glad to see that it’s being reported on, but the segment, IMO, falls short of grabbing the viewer and holding their attention with the devastating aspects.

I agree, the second gal looked VERY sleep deprived for sure.

Brambledog 07-14-2013 09:25 AM

An odd little piece, strange to hear the UK voiceover but the clear US nature of it, like we can't be bothered to find our own sufferers and document their problems with the condition :rolleyes:

The second girl looked like she hadn't slept in months, poor thing. At least adults kind of understand what's happening, to a child it must be even more confusing and distressing...

Brams


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